I Am Slowly Going Crazy

pretty flowers from my Grams

I’m a pretty positive person.  I try to look at bad days as only temporary and remind myself that the next day will only get better.  This week is definitely putting that statement for a ride!  Every day I wake up to feeling more and more terrible than I did the day before.  My highlight from today… being able to finally have a damn shower!  Mind you my hair didn’t get washed, but my body isn’t smelly! lol.

I am getting a bunch of cleaning stuff when I go grocery shopping at the end of this week so I can do the big overhaul cleaning of the apartment.  It kills me to do it, but I keep noticing more and more stuff on walls that needs to be wiped down… like black fingerprints on the door from when I do crossword books LOL.  I think the only reason I feel antsy to do it though, is bc I don’t feel well enough to actually do it!  That or I’d feel like I’m turning into the female version of my dad who’d follow you around with a broom and paper towel just in case any dirt came off you lol.  Jk jk!

Zeus misbehaving!

My goal, since I will be impatient as shit during April to want to garden, was to save the big cleaning until then.  So it would keep me busy and keep my hands out of the plants, but depending on how I feel, I might start early.

I am also thinking of chopping off a big chunk of my hair.  Canada won’t take my hair for cancer patients bc it’s dyed.  The States accepts dyed hair, but not out of the country hair… so this growing has been for a waste!  When I wash my hair, it takes me a good twenty minutes or more to brush it after.  I have to go through sections in order to keep my brush from being sucked into the rats nest… and since I break brushes on a regular basis, I think it would be nice for a change.

one of the scarves to sell

I keep getting these headaches in my eyes that I used to get when I was on Effexor.  I only ever got it, when I was late or missed a dose.  So the other day I woke up really early, so I didn’t take my new medicine early, and waited… aka forgot.  Today I wake up crazy early again and the same thing!  Went to take my nightly med.s and realized I totally forgot to take the morning one again!

My stomach is acting like I have been drinking coffee on an empty stomach times a hundred.  I can’t wait to get the testing done on the 13th of this month so I can finally get something done about this pain… hopefully!

My landlord came by today and got my tax info. for me.  He’s so nice to do mine for free!  And my counselor Susan came over too for a bit to catch up.  Was a much needed session (now realizing bc I missed my damn med.s No wonder I’m so loopy)

I feel at any moment I’m either going to burst into tears for no reason, or start laughing uncontrollably… I really need to take my med.s tomorrow morning lol.

Ash,

Low Blood Pressure Fun

Last week I fell asleep on the couch and missed my medication.  Unfortunately it really affected my blood pressure.  The second I woke up, I had something to eat and took my Beta Blocker right away, and usually by the next day I’m back to me.  This time hasn’t been the case.

I went to my mom’s not even able enough to put my walker in the van, and went through terrible waves of nausea and weakness.

I stayed at my mom’s over night by couldn’t sleep from the symptoms until around 5am even though I went to bed at 8pm the night before.

The next day I went home and mom picked me up a new shovel.  I had to use my wheel chair all day which I absolutely hate, but I kept having mottled feet and feeling like I was going to drop.

Today I was finally able to have a shower and get some normal stuff around the home picked up.  The shower did me in big time and I won’t be able to vacuum like I wanted, but at least I’m squeaky clean!

Tomorrow I have a Social Service Worker student and the new one coming by in the morning, and then I have my family doctor appointment.  Hopefully she’ll have some answers for me.

Hope you all are well.  I’m not unhappy, just hoping to feel as good as I was again!  Watching Dexter and OMG so good

Ttyl!

Ash,

Oh Geeze

I can’t believe it’s been since before Halloween since I wrote!!!!

my Christmas tree

I am going to a Neurologist at the end of this month… why I don’t know actually lol.  I figure it’s for my POTS, bc I never got the appointment I was supposed to have with my Cardiologist, I got this appointment instead!  My SSW is going to be taking me, which is sweet, and she kicks people’s asses into gear too lol.

I am also going to my family doctor next week bc of something to do with my test results when I had my physical.  Could be many simple things, but I’m still interested as to why she called to have me come in!

My grandpa passed away just before Christmas.  It was really sad, but for the best bc he wasn’t eating, or even waking up in the end.  My sister did a really sweet thing for all of us, and got one of our favorite photos of him before he got sick blown up and framed in black and white.  I have it hanging in my hallway   I love it.

Christmas was great.  We went to my dad’s Christmas Eve, and I got to see all my brothers and nieces and nephews, and a lot of family friends I adore like family.  Dinner was good too YUM! hehe.

Then Christmas morning, I went up to my mom’s and had a dinner with them, and ANOTHER ONE on Boxing Day when my aunt Kelly came down to celebrate with us.

I was able to get a recumbent bike finally, and am doing 15 minutes on it a day, on the days I’m not shoveling snow!  Yes I am shoveling too and damn it’s not easy!!! I had a bit of a flu last week and it just about killed me to shovel, but thankfully the weather has not been typical, so there hasn’t been as much snow as usual.

Besides that, I just finished knitting myself a scarf… yes knitting lol.  I love it   This is the first thing I’ve ever knitted for myself!  I just have to do the fringe at the ends and I’m done

I am now hooked on Dexter.  My sister got me into it, but I have to watch it on Netflix bc I don’t get HBO.  It gives me an excuse to exercise and knit while I’m watching it.

I am also reading the Girl with the Dragon Tattoo which isn’t at all what I thought it was going to be.  I am also reading 44 Scotland Street, which is awesome so far   Just the lives of a bunch of people who live at 44 Scotland Street, lol but it’s good

New Years, I fell asleep at 9pm LOL.  Wasn’t my intention, and could have went out, but I went to my mom’s, and fell asleep bc I wasn’t feeling the greatest.

Hope you are all well

Ash,

Summer Fun

Image via Wikipedia

I’m so sorry it’s been SO LONG since I’ve written!  I have no excuse!  My internet was hooked up the day I moved… I’ve just been lazy lol.

Wow okay… so I moved!  My place is huge!  I have the doors and 3 porches/decks to sit out on!  The one I chose, off my kitchen, kept getting stuff stolen off it, so I now use the back deck lol.

I quit smoking!  Or had started to on Champix the medicine, that you take for a week while still smoking, as you are slowly upping the dosage for day 8, but by day 8 I could barely breathe and had to roll off my bed and crawl the washroom bc I couldn’t stand lol.  I was so out of it I just kept randomly falling asleep!  I had finally come out of my stoned stuper long enough to check the side effects, and these were all listed as adverse stop taking medication NOW lol.  I guess it just didn’t hit me enough to listen until I doubled the dose!  Either way my smoking is now a third of what it was at least and I feel at least good about that until I see my family doctor again.

I went to the GI’s about my Crohn’s this past week, and they put me back on Aziathroprine!!!  And gave me another bunch of Prenisone in case I relapse before the Aziathroprine kicks in.  I’m still on a whack load of Prednisone, but two weeks in to showing signs of relapsing.  So I hope I don’t have to go back up on it, but I probably will bc the other usually takes months to work in me.  I have a nice Prednisone belly I call Winifred and chubby little round Prednisone cheeks to match… I look pregnant.  Not impressed about that LOL.

I am still getting the Small Bowel Follow Through done in September, just to see if there is any extra hidden inflammation or a partial or full blockage anywhere.  I think it sucks, but am glad just to double check with all the pain I’ve been having.  I will see my GI’s again in 3 months.

I also mentioned to my GI’s about how my Cardiologist thinks once the inflammation is under control, that my POTS will be too, but my doctor said that unfortunately that won’t likely happen.  It’s a very common false positive with Prednisone and people while they’re on it, and that most likely I’ll be just as sick if not more so once I’m off it again.  Will have to mention that to the Cardiologist next time I see him.  I hadn’t had my hopes totally set on that getting rid of my POTS, but I of course was hoping it might help make it not quite so disabling… and now I just feel like I’m stuck again.

I’ve also been to the dentist TWICE bc my stupid fillings keep falling out.  I understand possibly that since they were close along the gum line they may not last forever, but only a few months???  Come on now… and she said it might fall out soon again!!!  If the one does that’s been causing me so many problems, I’m just going to have her pull it bc it causes me non stop nerve pain anyway.  She put in two doses of the freezing which makes me shake like crazy bc of pots, and it still hurt enough that it made me jump out of my chair!  She thinks it’s the fibromyalgia nerve spot too.  YAY! lol.

I had my Occupational Therapist come since I moved, and she got me a wheel chair to try for a week.  It’s really light weight, and only small wheels bc you move it with your feet Flintstones style bc I just want one for it say I’m at the zoo all day, or whatever where I can’t just stop and rest, so a motorized one would be no good bc I’d never be able to lift it into a vehicle and I doubt my stubborn ass would use it around home.  Zeus is getting more use out of it as his napping spot lol.

Anyway, not much else is up besides trying to get stuff for outdoors to decorate with, and slowly but surely getting art, etc. up here inside.  This weather is crazy.  I just do something as simple as make the bed and I’m sweating like a crazy person!  I know Prednisone and POTS makes that worse too, but gross!  LOL.

Ash,

 

Blah Why Am I Breaking?

I know we ALL go through the grieving process of going through physical illnesses, and yes those days blow sometimes worse than the illnesses themselves!  I am thankful I haven’t gone through one of those moments in quite a while.  It’s so draining and overwhelming!  I am however have a bit of a relapse with my depression.  Not so much a relapse, bc I consider that to be sick all over again and needing to be treated for it, but instead more of a set back.  Nothing in particular seems to be the cause of it, and it can leave as quickly as it comes.

I’ve been feeling down and out of it for a while, and when my various aches and wantings to vomit subside long enough to let me, all I do is sleep.  I feel like I just want to sleep until the next thing happens, and wake up long enough for that, and go back to bed again.  I wake up and feel like I’m asking myself, what’s the point?  I have tons I could be doing, but I’m not feeling well enough to do any of it… so I just go back to sleep since I don’t feel like watching tv or playing on the computer all day.

I have no interest in going anywhere when I’m in constant pain, and feel like I’m about to throw up every time I’m sitting up for any long stretch of time.  I talked to my dad a couple times yesterday on the phone and I could barely deal with it.  I constantly feel like I’m on the verge of tears, but nothing comes bc I have no real reason for being upset.  I know it started around the time I found out I was getting help with movers.  Wonderful amazing news, and that night I was so upset I almost took my anti anxiety medicine which I may take only a couple times a year, if that.  It really scared me.  And just when I thought I was feeling better emotionally, it started back up again.

I don’t want to call anyone, or deal with anybody bc it’s such a pain for them to constantly deal with me being upset about being sick, or sick of being depressed lol.  It just never ends!  When your whole life revolves around your health, it’s hard not to be thinking of it, bc you’re constantly aware of what your body is doing, and waiting for the worst of it to start up.  That’s not the right way to live, and it’s not the right way to be pulling other people into my pit.  So I’ve just been doing it on my own this time.

I will write more either later this week or next when I have more to share.  I should be finding out this week an exact date when I will be moving.  I just hope even though there is so little left to pack, that I’ll be able to finish it all.

Until Next Time…

Ash,

Insomnia Monday… No Wait Wednesday lol

Okay I’m totally out of it.. and as the title shows on NO sleep.  I apologize in advance to my horrible writing mistakes in this post bc even though there is a spell checker, I’m notorious for putting wrong words spelt right in the wrong spot… now you’re feeling as confused as I am aren’t you? Good… I’m not alone then.

So I had 3 great days.  The 3 best days I’ve had in about 5 years.  I felt good, had some boxes and some Christmas crazy going on in the apartment and I just went nuts packing stuff.  My place feels hollow now and very echoy… sadly my neighbors sex life has seemed to become more echoy as well *shudders*

Susan my Social Service Worker, has a new student Aristha or something and every time I say it, I’m saying a totally different name lol.  She’s older, which I like.  And she and Susan came by today for me to meet her.  Aristha or whatever she is, is coming by tomorrow for her first session with me.  Zeus made it very clear she digusts him and wouldn’t let her go near him without flailing and running off to the tub to scream his usual grumpy rant.  Mind you bc I didn’t sleep… that means he didn’t either.

I got rid of a whole whack load of more stuff on the Free Cycle site.  Google it bitches, bc you can get and give away free stuff in your city.  Such a great idea, bc it saves so many items from going to the dump, and helps many people who don’t have a lot of money.  I’ve gotten some stupid items that turned out to be more of a pain, and I’ve gotten great things too like my bread maker which I love!  Definitely recommend it.  The only thing I’m waiting to give away now is my couch.

I’ve been reading a LOT lately.  I finished up the new CSI digi novel which was amazing!  Also read Bitch in the Kitch and the first of the series… cannot remember its name and I lent it to my step mom to borrow.  It’s about all the interesting facts to do with food with a lot of sarcasm and swearing thrown in… perfection.  Changed my whole ideal on eating and cooking too!  Bitch in the Kitch is actually one of the cookbooks so you’d want to read the first book obviously before buying it.  So funny too.  I’ve also finished one of the free novels I got with my Kobo.. The Preacher’s something or other.  Good but wouldn’t bother to recommend it to anyone.  And am now reading everything Edgar Allen Poe has ever written lol.  I love his short stories especially!  Oh!  And read the play, The Importance of Being Ernest… omg I LOVE it!  I wish it was longer, and that I could see it performed live!

Anyway, besides that I’ve been on the phone like a fat kid clings to the refrigerator and I hate it lol.  I hate the telephone!  So many little things disability needs done.  Proving that I’m moving bc of health conditions, proving I am approved and actually moving to the new apartment… weirdos.  And getting quotes sent over to them for movers.  What do they care so long as I give them a receipt?  Which they’ll need too lol.

Also been on the phone starting my month of doctors appointment bookings!  Had a horrible time getting a hold of anyone of Christmas and the week after.  My family doctor for my knee and fibromyalgia, and my sleep study.. Susan is taking me as well to see what all my tests have said since my numb brain won’t remember everything.  Then I have to run to the dentist on Monday with the student social service worker (the same program I’m in) and sign a consent for my needle poking dentist to get a hold of my Cardiologist.  Since he NEVER phones me back! Grrrrr.    As well the Crohn’s Disease dudes to make my check up appointment… yes it’s been almost a month on these new pills.  They are now helping greatly with the heart burn and acid burn in the stomach, BUT I still have nerve damage pain that doesn’t seem to go away no matter what they give me… except Amytripline which I can’t take thanx to Postural Orthostatic Tachycardia Syndrome.

So a lot of my facebook, etc. friends have noticed me being absent a lot.  A big part of it was just all the holiday business and being with family a lot.  And now my computer which has always been a piece of crap is getting even worse!  To write an email on facebook, I literally have to wait a good 20 minutes after I’ve finished typing it, for the computer to actually input it onto the screen!  It’s insane!  Surprisingly, knock on wood, this program so far isn’t being effected, but hotmail, facebook and yahoo mail seems to be very hard to manouver around without a lot of swearing and giving up to go sit on the couch and try it again later.

I hope you’re all well and not still pooped out from the holidays!  We all seem to slowly but surely coming back to our normal crappy selves lol.  Xo!

Ash,

Watching Ghost Shows!

I’m SO happy that Ghost Hunters is back on!!!  I don’t get the original station it comes on, only on a Canadian station, so I’m excited they’re showing this seasons episodes finally! WOOO!

HOPE

My Grams and I went on a little trek this morning lol.  When my family doctor called, her secretary gave me the name and street that the Gyno was located.  We got there 5 minutes late bc it was in a house with no sign.  I come in… find out I’m at the wrong place!  So the lady there was nice enough to give directions to the right Gyno, and call them to say I was on my way lol.

The gynecologist was cool I like her!  She’s only in her mid to late thirties, and she makes you feel really comfortable to talk to!  I’m glad I decided to wait to see her instead of get in faster with the other.  I’m going just down the street on Tuesday to get my pelvic ultrasound done.  There’s nothing to be worried about or anything, she just thought since I hadn’t had one, it would be a good idea, and that way I’d have a full check up done.  I think it’s smart with so many cancers that happen to do easy things like that.

I went back to mom’s and hung out with Nick.  We watched volcanoes and twisters on YouTube lol.  It was nice actually bc he always puts me in a good mood   He was sitting on my lap and actually helped my knee pain lol. Speaking of which, I found my knee braces last night!!!!!  They are such a big help when the pain starts to become intolerable.  I was watching, Chasing Mummies (OMG I love that show!) and decided to look around the basket where I put all my heating pads, etc. and just happen to notice some fitted sheets I don’t use anymore… lifted them, and BWAM there they were!!!

Zeus had to get in there too to cuddle lol

Susan, my social service worker came by this morning, and she had me cracking up laughing telling me stories of her nursing days.  I always feel a lot better about things once I see her.  She’s one person who totally has my back, and never questions how I’m feeling, or anything.  She’s very cool, and hilarious.

We found out my Gramps who is in a nursing home, now has a lung disease.  We knew quite a few years ago he had Emphysema from when he smoked, but now I guess there is another one that has popped up   My Grams has a VERY hard time hearing, and not a great memory when it comes to that kind of thing, so it’s hard to get information about it from her.  She is going tomorrow to talk to his doctor about it, so hopefully he’ll make it more clear for her, bc she is quite worried about it.

Today, is my brother Kirk, and step mom’s birthdays!!!  Kirk is 40, and I think Lois is 52… not sure lol.  I think they had her 50th a couple years ago.  I’ll have to remember to give her a call tomorrow.  My dad’s is on the 9th, so I hope I can get out there to see him

The nausea is back to normal!  The pain in my stomach is too for the most part.  It sounds weird, but it’s hard to tell when you’re used to having chronic pain there, so at least it’s dulled to being tolerable like the pain is usually.  I go back to see my crohn’s disease specialists on the 19th to see how the scopes turned out, and decide what’s next.  I have NO idea, which is annoying bc they discuss as the scopes are performed, if they see anything or not, but obviously I wasn’t much for paying attention to them LOL.  I know he had me stop to look at some polyps, at least one of which I saw him remove, but that’s nothing new, or unusual at all.

So besides those, I’m just waiting to get the call from the cardiologist to go back in when he’s back, which should be any day now.  That and the dentist… *shudders* lol.  I also called the sleep clinic bc it has been over 10 weeks since my sleep study, and they are sending it to my GP to have her go over it with me.  I don’t know if that means there’s anything that showed or not.  I’m going to wait a couple weeks and just call and see if they don’t.

Hope you’re all doing okay!  And a special shout out to my loop who suffers with postural orthostatic tachycardia syndrome, etc. and finally got the okay from her doctor to drive again!!!!!!!!!!!!!!!!!!!!!!!  So happy for you!

Talk to you all soon.

Ash,

Hospital 2010 Crohn’s Disease

Finally all the Crohn’s Disease tests that were stressing me out are over!  Whipee!

I was going through a LOT of back pain for a few days before the tests, but it was alright.  Even going all day and part of the day Friday without food was good.  I felt so sick to my stomach I didn’t even want to drink water lol.

 

my wonderful PSW Marlene

So my mom and grams took me in 9am.  I had my walker for after the tests, and I’m glad I did, but I walked right by the receptionist and forgot to book my next follow up appointment lol.

I was scared about getting the throat scope.  I wanted to be able to do it, but I was afraid it would get me really sick, to the point where I couldn’t get it done, but I did!  They had  a hard time getting the sedative to work on me.  They had to give me 4 doses, so I was more than aware for the lower scope.  I’ve never had a bad experience with it, but the pain I went through is unreal!  I really feel like the guy was a little off his game, bc even the G. I. that sits with the student and tells him what to do, said, “I don’t know why you’re banging off the wall so much, that’s why we use a camera.” LOL.  I never experience much pain usually if any, until they enter the smaller bowel, but this time I had horrible pain the whole way through, that I actually teared up.

So by the time we got to the throat scope and I was plenty medicated… I was nervous.  I didn’t want this guy acting like this with my throat too!  It didn’t help that the cord the camera is attached to, was way thicker than I thought lol.  The numbing spray worked fast, but you can still feel it very much so.  I kept automatically swallowing, which made me gag EVERY time lol.  I don’t know how I didn’t throw up, but I made it through!  It was bad gagging so much, but I’m more than happy with it bc I was able to get through it

We stopped off at my mom’s to get my mom’s stuff bc I had to have someone stay with me for 15 hours after.  I hung out with my sis, and ended up keeled over in my mom’s bed in even worse pain than before.  We stayed until Nick got home from school and he was rubbing my hand with his it was totally adorable   Whenever Amanda tells him my tummy is bothering me, he always leans over and kisses my stomach lol.

Amanda and I agree, that we don’t want Nick to know about my POTS.  It’s very hard to explain it to him without making the dear soul worry.  He knows about Crohn’s Disease, bc of how sick Amanda gets from it, so it’s something that is easier to have him understand.  It’s serious, but nothing to worry about.  So when my POTS affects me, we always say it’s my tummy problem like mama’s.  That way he knows not to jump on me, etc., but that he has nothing to worry about.  Hell I don’t get into it with my other nieces and nephews, and they’re all teenagers and the oldest in her 20′s.  I don’t want to unecessarily worry them when they’re so sensitive when it comes to family.

Mom and I came back here, and I got Subway, and she got Pizza Hut, and we just laid around all night and watched TV.  It was nice.  I thought it was silly to have my mom have to stay with me, but in the end I was glad she did!  She just left a couple hours ago to get ready for work.

Tonight, my sis Amanda wants to go to the movies.  Not sure what we’re seeing yet.  She wants to see the new Saw, but our certificates don’t cover 3D movies, so we might be going to see something else.

Tomorrow, I am going up to my mom’s to hand out candies, and take pictures of all of the kids on Halloween.  It will be so cute to see them all   And later this week, I head to the Gyno.  Will write more afterward.  I hope you all have a great Halloween!

Ash,

Crohn’s Disease I Hate You lol

Image via Wikipedia

We’ve always had a remarkable relationship.. I ate the right foods, you weren’t a bitch… what happened to this arrangement???  I think it’s over between you and me this truce… bring it!!!

Grams brought me in to my GI appointment.  Talked to a cute medical student about crap… literally lol.  And then got to see my good old Crohn’s Disease doctor Dr. Beyak.  He pushed and shoved on my stomach, liver area, intestines, you name it and no pain.  He check my thyroid, my eyes, down my mouth, my blood pressure and heart rate.

He doesn’t believe that it’s my crohn’s affecting my lower GI tract, which I totally agree, since all the pain, uncomfortableness, indigestion, seems to be coming from my stomach.  He doesn’t know if he thinks it’s even crohn’s in my stomach though either.  With my type of crohn’s it could be simply GERD another digestive disease, treated the same as crohn’s I believe, or it could be cancer.  They really have no idea why I’m sick.  So I’m going in for a lower scope even though I’m not due for one, but why not kill two birds with one stone?  Have a colonscopy and say that LOL.  Then they will go and have me bite on this plastic piece between my teeth and insert the camera through it, and I have to purposely swallow it down into my stomach.. and not gag… yeah right lol.  This would be hard to begin with, but when you have crazy nausea… the attending might be getting scrubs full of vomit as a morning treat lol.

I have had lower scopes done before.  The prep isn’t pleasant and makes me really sick for some reason lol but the test itself isn’t that bad at all.  I’ve never had an upper scope done, and even though it is nothing on the grand scale of tests, it still frightens me.  I’m not worried about complications, or anything like that, bc the GI team here is one of the best around, but I guess just bc I’ll feel like crap, gag, etc. I just hate having to have to get it done.  I hate complaining bc my poor sister goes through so much worse with her crohn’s on a daily basis, but I’ve been amazingly lucky compared to most, let alone her, so I’m not used to having to deal with these issues.

If nothing is diagnosed from there, then I will have to get a barium cat scan to get another look at the bowel, which I’ve had before.  That’s no biggy.  And then we go from there.  I will be hearing from them probably the beginning of next week since they’re now closed, and then my appointment will be about 3 weeks from then.

My Fibromyalgia was also confirmed with my GI today, and he figures since I get most of the pain by the end of the day, and not in the morning, that it’s only that, and not Rheumatoid Arthritis as well.  So that’s good at least.

Anyway, I’m feeling kinda down from it all even though it was expected to an extent, but these dumb appointments always wreak havoc on me afterward.  I’ll write more soon!

Ash,

There’s Snow Not Too Far From Here!

I found out it’s snowing in Barrie!  That is totally awesome lol.  I love the snow!

I have been feeling wiped the last few days.  I think it’s from all of that lack of sleep while having that cold so it kinda wore me out finally.  I am having a really weird crunching feeling in my eyes ears and head… like a head ache sort of.  Hard to explain, but the light makes it worse.

My Crohn’s Disease is doing so much better.  I got an emergency appointment with my G.I.’s for Friday at 1:30, so my Grams is going to take me in.  I really think it was only a set back or warning, not a relapse bc I’m not having the same symptoms, just think that I need to go back on my remission drug Azathioprine.  I don’t take it all the time, but I think my Postural Orthostatic Tachycardia Syndrome is flaring it up.  I do have nerve damage in my intestines so it’s bound to happen.

I started my Meal on Wheels program on Monday.  They bring food over for Monday, Wednesday, Thursday and Fridays.  I have to find a container like thing to have them leave it in for when I am not home.  Very odd lol, that or have someone be here to pick it up when I’m not home on Friday bc of my doctor’s appointment.

I’m going to be selling some of my furniture because of when I move.  I have way too much stuff.  My mom is going to take my bed (I’d rather use my futon) My heart rate goes crazy climbing into bed, and I’m huffing and puffing by the time I’m in there lol. I’m also going to sell two of my end tables and keep the one I got from my grandpa Bruce, and also my love seat.  I doubt I will have room for it and my couch in a new place, and I want to use my new chair!  Right now it’s my computer chair lol.

Tomorrow Marlene my Personal Support Worker comes, and on Thursday, my case manager is coming to set me up with the grab bar for the shower.  I may also be going with my Social Service Worker, Susan, to the YMCA to get my gym membership!  I’m really excited about it so I can go swimming again!

Anyway, I’m going to head out.  My sister is crazy sick with a cold… whoops! LOL.  I’m going to go have a nap and then make some fish for dinner if I’m well enough.

Take Care!

Ash,

PS Want to be in a POTS video?  Email Kayla your picture and how long you have suffered at:  auburngirl52791@aol.com