Arthritis Addative

My Bizkit (Zeus' Brother who's passed away)

My family doctors appointment went great as usual.  She checked my blood pressure again and it was 80/58…  I know I’ve had lower, since the last time I went, it was 53/33, but isn’t that still considered low??  My piece of crap blood pressure monitor says something to the effect of, anything under 90/ something is on the low end, but my family doctor said that’s what hers was all the time LOL.  But she wrote me out a note to send to disability about getting a new blood pressure monitor funded .  I need one that works! hehe.

So my Adrenal Fatigue test, cholesterol, B12, all the things I thought would be the reason for her calling me in, came back fine!  Great.. but my blood work shows inflammation with arthritis.

She asked me where I hurt… I have Fibromyalgia so I had a long list to name out.  She is sending me to get bone scans done to find out exactly where it is, and sent me a referral to a Rhuemetologist (sp?), so that will definitely be handy.  Also doubled my fibro.  nerve medication.

I was a little bummed about it yesterday when I got home, but my sister made a great point.  It’s been around already for a while at least, now the doctors can name it and do something about it, but nothing changes for the bad based on knowing what it is now.  I just hate, and I know anyone with more than one illness can relate, having one more thing to add to the list of things already wrong with our bodies.  Yet I am glad to know, so maybe I can improve things

Next up is Monday, when I go to the Neurologist.  Very interested to see what this guy has to say!

Take Care!

Ash,

Low Blood Pressure Fun

Last week I fell asleep on the couch and missed my medication.  Unfortunately it really affected my blood pressure.  The second I woke up, I had something to eat and took my Beta Blocker right away, and usually by the next day I’m back to me.  This time hasn’t been the case.

I went to my mom’s not even able enough to put my walker in the van, and went through terrible waves of nausea and weakness.

I stayed at my mom’s over night by couldn’t sleep from the symptoms until around 5am even though I went to bed at 8pm the night before.

The next day I went home and mom picked me up a new shovel.  I had to use my wheel chair all day which I absolutely hate, but I kept having mottled feet and feeling like I was going to drop.

Today I was finally able to have a shower and get some normal stuff around the home picked up.  The shower did me in big time and I won’t be able to vacuum like I wanted, but at least I’m squeaky clean!

Tomorrow I have a Social Service Worker student and the new one coming by in the morning, and then I have my family doctor appointment.  Hopefully she’ll have some answers for me.

Hope you all are well.  I’m not unhappy, just hoping to feel as good as I was again!  Watching Dexter and OMG so good

Ttyl!

Ash,

Summer Fun

Image via Wikipedia

I’m so sorry it’s been SO LONG since I’ve written!  I have no excuse!  My internet was hooked up the day I moved… I’ve just been lazy lol.

Wow okay… so I moved!  My place is huge!  I have the doors and 3 porches/decks to sit out on!  The one I chose, off my kitchen, kept getting stuff stolen off it, so I now use the back deck lol.

I quit smoking!  Or had started to on Champix the medicine, that you take for a week while still smoking, as you are slowly upping the dosage for day 8, but by day 8 I could barely breathe and had to roll off my bed and crawl the washroom bc I couldn’t stand lol.  I was so out of it I just kept randomly falling asleep!  I had finally come out of my stoned stuper long enough to check the side effects, and these were all listed as adverse stop taking medication NOW lol.  I guess it just didn’t hit me enough to listen until I doubled the dose!  Either way my smoking is now a third of what it was at least and I feel at least good about that until I see my family doctor again.

I went to the GI’s about my Crohn’s this past week, and they put me back on Aziathroprine!!!  And gave me another bunch of Prenisone in case I relapse before the Aziathroprine kicks in.  I’m still on a whack load of Prednisone, but two weeks in to showing signs of relapsing.  So I hope I don’t have to go back up on it, but I probably will bc the other usually takes months to work in me.  I have a nice Prednisone belly I call Winifred and chubby little round Prednisone cheeks to match… I look pregnant.  Not impressed about that LOL.

I am still getting the Small Bowel Follow Through done in September, just to see if there is any extra hidden inflammation or a partial or full blockage anywhere.  I think it sucks, but am glad just to double check with all the pain I’ve been having.  I will see my GI’s again in 3 months.

I also mentioned to my GI’s about how my Cardiologist thinks once the inflammation is under control, that my POTS will be too, but my doctor said that unfortunately that won’t likely happen.  It’s a very common false positive with Prednisone and people while they’re on it, and that most likely I’ll be just as sick if not more so once I’m off it again.  Will have to mention that to the Cardiologist next time I see him.  I hadn’t had my hopes totally set on that getting rid of my POTS, but I of course was hoping it might help make it not quite so disabling… and now I just feel like I’m stuck again.

I’ve also been to the dentist TWICE bc my stupid fillings keep falling out.  I understand possibly that since they were close along the gum line they may not last forever, but only a few months???  Come on now… and she said it might fall out soon again!!!  If the one does that’s been causing me so many problems, I’m just going to have her pull it bc it causes me non stop nerve pain anyway.  She put in two doses of the freezing which makes me shake like crazy bc of pots, and it still hurt enough that it made me jump out of my chair!  She thinks it’s the fibromyalgia nerve spot too.  YAY! lol.

I had my Occupational Therapist come since I moved, and she got me a wheel chair to try for a week.  It’s really light weight, and only small wheels bc you move it with your feet Flintstones style bc I just want one for it say I’m at the zoo all day, or whatever where I can’t just stop and rest, so a motorized one would be no good bc I’d never be able to lift it into a vehicle and I doubt my stubborn ass would use it around home.  Zeus is getting more use out of it as his napping spot lol.

Anyway, not much else is up besides trying to get stuff for outdoors to decorate with, and slowly but surely getting art, etc. up here inside.  This weather is crazy.  I just do something as simple as make the bed and I’m sweating like a crazy person!  I know Prednisone and POTS makes that worse too, but gross!  LOL.

Ash,

 

I Can Move! Yes!

So happy bc I am finally getting used to being on the Prednisone.  I still get bad insomnia, and bad nights of feeling terrible, but at least now, I am able to slowly take care of myself more and more!  I actually made pasta last night and then the dishes!  Wahoo! lol.

I went to the doctors, and she sent a referral to the Acess Center where nurses come into your home to help you out.  She was thinking IV help, which now that I am getting water into me more, I may not need.  Though it’s getting warmer, and maybe having that option isn’t such a bad idea with POTS since it was so bad last year.  She also signed a note for me, saying that having an air conditioner would benefit my health, so disability will pay for me to be able to buy one, and then the seasonal charge for the landlord.  That is going to be a massive help!

I’m still bruised everywhere!  My dad said it looks like I have a tattoo on my forearm from the one needle bursting a vein.  Not a sexy tattoo LOL.  So I’ve been trying despite the heat, to wear long sleeve shirts when I have to go out in public!

I’m trying to drink a coffee right now… it’s disgusting.  Not as gross as it was, but I seriously cannot believe I drink this crap lol.  Probably better to just stop now.  It’s weird, whenever I get really sick, I always throw away bad food / drink habits, like pepsi, but then I pick up another… wonder what it will be this time??? lol.

So I went with the housing co-ordinator on Thursday, to check out the apartment they are redesiging.  It used to be rented by a person in a wheel chair, so the owners are putting in all new kitchen and bathroom cabinetry, it’s repainted, new carpet is going in the living room.  There are two sinks in the bathroom.  One is for washing your hair, which would be kind of nice, and a big tub!  There is also a little room to itself that would be perfect for a computer room or spare for company.  There are 3 big decks, and two of them are my own private, and tons of windows, stained glass in some of them.  Very charming, and spacious, but still not too big for me.  I asked to have a day to think about it.  Weighing the pros and cons of living here.  This is an amazing little tiny apartment, especially for someone who is sick, but I am sick of all the stress with the land lord and always being watched by my nieghbors.  I moved out on my own ten years ago, I don’t need to be looked after.  I’m here to rest, and have my own spot to myself, and not be badgered every time I open my curtains.  So I decided in the end to take the place.  I literally walk out the door, and the bus is right there on the corner.  There’s a day care and another tennant on either side of me, so nights won’t be noisy.  The children don’t bother me at all being outside and playing.  If anything, it’s a sweet sound.  The housing company will be doing the entire move for me again (I don’t know what I’d do without these people!) and all I have to do is move from one to the other with Zeus.  I am slowly going through my crap again though getting rid of stuff I don’t need.  I should be moving around the 15th, or before if the place is ready.

Just wanted to give a big thanx to Julie, Justin and Frankie for being such great friends these past couple weeks with me being an emotional blob lol.  It helps to know I’m not alone in the fight, and that we’re all going to be kicking ass soon again!  Just takes time! *big hugs*

Alright, going to head out and attempt to clean up the mess I started in the living room.

Ash,

Prednisone Nights

All this week has been very emotional for me.  Feeling like a constant burden on my family.  They’ve done nothing to make me feel this way, but I can’t help feeling useless some days.  Where am I supposed to go with a life like this?  I feel like I strive to live and wonder why.  What’s my purpose?

My Gramps asked my grandma the same thing this week.  He lives in a nursing home and doesn’t even know where he is most of the time.  He stays in bed, needs to be bathed, etc.  What kind of life is that?  Obviously I selfishly want my grandpa to always be around, but I know in a small way how he’s feeling.  It feels like there’s no point to any of it.  To live a life, suffering, relying on others.  Period. 

I go to my family doctor later this morning, and then my dad and Lois are coming up to visit me because I have been so down.  Thursday, I am going to look at a place with the housing co-ordinator and then Lilian my PSW is coming.  I still have a lot of things to catch up on, like getting the tooth I broke fixed coming home from Belleville General Hospital, but right now it’s just not in me emotionally or physically.

Susan came by today, my social service worker, and talked to me a lot about how I have been feeling.  She thinks I need to start getting nurses in here daily, and get IV’s of potassium water, to stay hydrated since I’m having a hard time keeping anything into me.  She also wants me to talk to my GP tomorrow about going to a pain management doctor. 

I spend all day long sick and tired.  I used to love when night time would come, bc it would mean I’d have a few hours of not having to be concious to the fact I feel so terrible, but these damn pills are keeping me up all night regretting any food I ate during the day. 

Besides that, I’m doing okay.  Just shakey on my feet, and just waiting as each day goes by to start feeling better bit by bit.  I got back to my crohn’s disease doctors, and the cardiologist on the tenth.  Hopefully I will feel better for the drive by then.

Hope you’re all doing well!

Ash,

GP & New PSW

I finally took some photos of the apartment.  Not great ones, but they’ll have to do dammit! lol.

The weather here has been beautiful but freezing cold!  I’m always cold here!  Still better than hot weather though!

Thursday my new Personal Support Worker, Lilian came.  She is from Germany and moved to Canada years ago just for fun.  She seems like a cool person if you know her well, and has been a personal support worker for eight years….  you wouldn’t know it though lol.  I asked her to dust my living room and bedroom… she didn’t do the tv stand or the bookshelf, or the coffee table in the living room, and missed my dresser and desk… so she only did my night stand in my bedroom.  I asked her to sweep the kitchen and bathroom and bedroom area, and she only did the kitchen.  I asked to do the windows and mirrors, which she did none of.  And she left with 15 minutes still to spare.  I think I am going to go nuts by the end of this.  Why get in the job if you’re not even willing to do it properly, let alone half assed?

Yesterday, I went to my family doctor.  We always talk about books, bc I always have one to read while I’m waiting for her.  I let her play around on my Kobo to see how they work lol.  She filled out my forms for the special diet.  If you have one of the ones on the list, they’ll give you a little extra money bc special diets are usually more expensive.  There’s a lot of weird medical terms for stuff on there too that I didn’t know what they were, so I had waaay more than I realized.  I got crohn’s marked on it obviously, which was the only one I had on the original form, lactose intolerance, high blood pressure, high cholesterol and I think that may be it… can’t remember.

She also filled out a tax form that shows what problems I have, like with walking, etc. and that will help me get more money back I guess.

She also gave me a prescription for Restless Leg Syndrome.  I wasn’t going to do it originally, but now I’m getting it every night in my left leg and arm, and now quite often in my right leg.  It can make me go days without sleeping.  The medicine… can’t remember the name of course, that they put you on, is actually for Parkinson’s Disease.  So I’m hoping, that maybe it will help me with the crazy shaking I do ALL THE TIME.   I can handle my regular shaking, but hate it bc everyone I meet always thinks I’m shy and nervous from it.  But when it gets real bad, I can barely write, drink, anything!  I haven’t started it yet bc I haven’t been up near the pharmacy, but I will let yas know how it goes.

I’m now reading Jene Beker’s book, “Strutting It.”  I thought it was about her life working for Fashion Television, and her view of the fashion world, which it is to an extent, but a majority of it is for aspiring models… obviously not me LOL.  No interest in that, but still a good book so far.

Tonight my mom is coming over for dinner, and then I am hoping to get over there to her house on Sunday to do a crap load of laundry.  The laundry room here won’t be done until near the end of the summer, but I’m happy bc now I have my blue box! LOL sad I know…

Was having problems with my landlord bc she apparently said to my neighbor that there were cat litter bags or something all over the front stoop of my apartment… I’ve never left anything outside here except my welcome mat!  I was pissed bc she was annoyed I had a cat, etc.  But when I talked to housing who set the apartment up for me, and who I pay rent to, go to with questions, etc.  they said she signed off on me having a cat and that she knew I did long before I moved in.  It’s everyone else in the building who is not allowed to have cats bc they aren’t considered to be good pet owners or mentally capable of having one.  So she was obviously doing it bc she didn’t want to admit that to my neighbor but instead made me look bad.  Also there is workmen dust outside on my grass, bc you can see little pieces of rubble, that the guys who redid my bathroom obviously just through out there, so that must be all this supposed cat litter she’s seeing, since mine stays in a bag in the back closet.  Then I throw what Zeus‘ uses in a garbage bag, and take outside to the end of the driveway on garbage day. GGGRRRR women!  Grow some balls!

Alright, I’m out, will write again soon!

Ash,

Since I’ve Been Moved

I had such a hard time last week with getting rid of my psw and my counselor was out of commission bc she had the flu so badly.  She checked in to make sure I was okay, and my family was wonderful for being there for me.  They definitely had my back too.

My mom stayed the other night and we moved my living room around to give it more room and hung a bunch of pictures.  The walls in my room are really weird, so I can’t hang photos in there!  Drives me nuts lol.  I got a new floor rug, a coat stand, curtains, and a really comfy counter chair to use in the kitchen.  It’s really comfy too, and I’ve been cooking and able to do the dishes a lot more.  I will post pictures soon

My new PSW Lilian, starts here this Thursday. I haven’t met her yet though.  I’ll let yas know how it turns out.  I also have my family doctor’s appointment on Friday afternoon.  I need her to fill out some forms for my taxes and disability, and ask her if I can get something for restless leg syndrome bc it’s drive me nuts EVERY night!

I’m now reading the book, “Emma.”  If you’re into olden day girly books I definitely recommend this one

Besides that, there hasn’t been a whole lot going on!  My Grams brought by her old computer for me to use, so I thought I’d post one more entry on here before I switch over this afternoon!  Excited to use a computer that isn’t so bloody slow!

The weather has been beautiful here minus the night we had a thunder storm!  Today it is snowing and raining… go figure.. Canadian temps!

Hope you all are going well, and I’ll write again after my appointment this week.

Ash,

Family Doctor Appointment

Hey!  Sorry I didn’t write right away, but I just didn’t have the energy to sit at the computer and write out all I wanted to mention.

Susan picked me up and took me to my doctor‘s appointment.  I still can’t get used to how willing to help my doctor is!  I am used to my last doctor throwing away and not listening to me and rushing like he needed to pee! lol.  It’s so remarkable to have someone willing and wanting to do everything she can… someone who actually cares how I’m doing!  I am truly lucky to have her as my doctor.

She told me to try Volteran for my fibromyalgia pain.  Have any of you tried it?  What is your experience with gels and creams to help with pain?  I noticed it helped my lower hip/butt area pain, but not my hands and fingers.  Mind you I didn’t rest them either.

I got her to check out my knee.  When you have any sort of chronic problem with your body, no matter what it is, you know when something is different.  It was a little different of a pain in my knee from the rest, and is almost constant and by far more painful.  I was cool with just leaving as is, if she said it was fibromyalgia as well, but I wanted to make sure it wasn’t something else considering I was told when I was younger, I may some day need knee surgery.  I come to find out when I am sitting I get this almost restless feeling in my left side and I twist and sounds like my hip cracks… that’s not been my hip.  It’s my knee popping back into place! Lol.  My doctor just moved my leg three different ways and POP!!!  So apparently my knees grind into my leg bones.  Not arthritis, but Patellofemoral something or other lol.  Nothing can really be done, medically, but you knees are weakened and make your knees more prone to injury.  The only thing you can do is these Patellofermoral physical therapy exercises that help strengthen the knee joints, etc.

She also switched my Pantaprazol for my Crohn’s pain, to instead of a sodium form of the pill, to a magnesium form of it.  I actually keep forgetting to try it bc my pill box for the week is filled with the old one and I keep just automatically taking it lol.  But I will let yas know if there is any difference when I give it a go.  But I was pretty mad to find out there were crohn’s ulcers, scrapes, etc. seen in my Ilium that they didn’t mention to me when I was there.  They had only said inflammation.  There were also some ulcers found where my stomach attaches to the Ilium too when they said it was fine.  I think even if nothing is to be worried about or done about it, that I at least have the right to know what’s happening in my body.

I also looked at my sleep study info.  Apparently I slept less than 3 hours, and woke up 83 times in that time!  The recommended me getting a night guard bc I grind my teeth… done, they also said I have restless leg syndrome even once I’m asleep so I should get meds for that.  I said no bc I know it can keep me up at night, but it’s not there every night, and it’s not reason I haven’t slept properly for the last 14 years.  It just showed up in the last year.  So my only option is back to my psychiatrist who had been helping me before with my depression medicine and sleep med.s and start trying more sleeping pills.  She’s the one that has the long list of ones I’ve already tried… I have no idea what all I have.

I have no idea why, but it’s 3am and my cat is screaming and driving me nuts!!!  I think he’s bored, but he’s pissing me off and probably my neighbors too! lol.

Amanda and I went and saw the new Natalie Portman and Ashton Kutcher movie… No Strings Attached.  Very funny and definitely good.  I wouldn’t recommend going to the theater to see it, but definitely rent it when it comes out!  This weekend we are hoping to go see the new Anthony Hopkins movie, the Rite.  I can’t wait!

Next up is my Cardiologist appointment next Friday.  Should be interesting to see what he says.

Talk to yas later!

Ash,

 

Insomnia Monday… No Wait Wednesday lol

Okay I’m totally out of it.. and as the title shows on NO sleep.  I apologize in advance to my horrible writing mistakes in this post bc even though there is a spell checker, I’m notorious for putting wrong words spelt right in the wrong spot… now you’re feeling as confused as I am aren’t you? Good… I’m not alone then.

So I had 3 great days.  The 3 best days I’ve had in about 5 years.  I felt good, had some boxes and some Christmas crazy going on in the apartment and I just went nuts packing stuff.  My place feels hollow now and very echoy… sadly my neighbors sex life has seemed to become more echoy as well *shudders*

Susan my Social Service Worker, has a new student Aristha or something and every time I say it, I’m saying a totally different name lol.  She’s older, which I like.  And she and Susan came by today for me to meet her.  Aristha or whatever she is, is coming by tomorrow for her first session with me.  Zeus made it very clear she digusts him and wouldn’t let her go near him without flailing and running off to the tub to scream his usual grumpy rant.  Mind you bc I didn’t sleep… that means he didn’t either.

I got rid of a whole whack load of more stuff on the Free Cycle site.  Google it bitches, bc you can get and give away free stuff in your city.  Such a great idea, bc it saves so many items from going to the dump, and helps many people who don’t have a lot of money.  I’ve gotten some stupid items that turned out to be more of a pain, and I’ve gotten great things too like my bread maker which I love!  Definitely recommend it.  The only thing I’m waiting to give away now is my couch.

I’ve been reading a LOT lately.  I finished up the new CSI digi novel which was amazing!  Also read Bitch in the Kitch and the first of the series… cannot remember its name and I lent it to my step mom to borrow.  It’s about all the interesting facts to do with food with a lot of sarcasm and swearing thrown in… perfection.  Changed my whole ideal on eating and cooking too!  Bitch in the Kitch is actually one of the cookbooks so you’d want to read the first book obviously before buying it.  So funny too.  I’ve also finished one of the free novels I got with my Kobo.. The Preacher’s something or other.  Good but wouldn’t bother to recommend it to anyone.  And am now reading everything Edgar Allen Poe has ever written lol.  I love his short stories especially!  Oh!  And read the play, The Importance of Being Ernest… omg I LOVE it!  I wish it was longer, and that I could see it performed live!

Anyway, besides that I’ve been on the phone like a fat kid clings to the refrigerator and I hate it lol.  I hate the telephone!  So many little things disability needs done.  Proving that I’m moving bc of health conditions, proving I am approved and actually moving to the new apartment… weirdos.  And getting quotes sent over to them for movers.  What do they care so long as I give them a receipt?  Which they’ll need too lol.

Also been on the phone starting my month of doctors appointment bookings!  Had a horrible time getting a hold of anyone of Christmas and the week after.  My family doctor for my knee and fibromyalgia, and my sleep study.. Susan is taking me as well to see what all my tests have said since my numb brain won’t remember everything.  Then I have to run to the dentist on Monday with the student social service worker (the same program I’m in) and sign a consent for my needle poking dentist to get a hold of my Cardiologist.  Since he NEVER phones me back! Grrrrr.    As well the Crohn’s Disease dudes to make my check up appointment… yes it’s been almost a month on these new pills.  They are now helping greatly with the heart burn and acid burn in the stomach, BUT I still have nerve damage pain that doesn’t seem to go away no matter what they give me… except Amytripline which I can’t take thanx to Postural Orthostatic Tachycardia Syndrome.

So a lot of my facebook, etc. friends have noticed me being absent a lot.  A big part of it was just all the holiday business and being with family a lot.  And now my computer which has always been a piece of crap is getting even worse!  To write an email on facebook, I literally have to wait a good 20 minutes after I’ve finished typing it, for the computer to actually input it onto the screen!  It’s insane!  Surprisingly, knock on wood, this program so far isn’t being effected, but hotmail, facebook and yahoo mail seems to be very hard to manouver around without a lot of swearing and giving up to go sit on the couch and try it again later.

I hope you’re all well and not still pooped out from the holidays!  We all seem to slowly but surely coming back to our normal crappy selves lol.  Xo!

Ash,

Watching Ghost Shows!

I’m SO happy that Ghost Hunters is back on!!!  I don’t get the original station it comes on, only on a Canadian station, so I’m excited they’re showing this seasons episodes finally! WOOO!

HOPE

My Grams and I went on a little trek this morning lol.  When my family doctor called, her secretary gave me the name and street that the Gyno was located.  We got there 5 minutes late bc it was in a house with no sign.  I come in… find out I’m at the wrong place!  So the lady there was nice enough to give directions to the right Gyno, and call them to say I was on my way lol.

The gynecologist was cool I like her!  She’s only in her mid to late thirties, and she makes you feel really comfortable to talk to!  I’m glad I decided to wait to see her instead of get in faster with the other.  I’m going just down the street on Tuesday to get my pelvic ultrasound done.  There’s nothing to be worried about or anything, she just thought since I hadn’t had one, it would be a good idea, and that way I’d have a full check up done.  I think it’s smart with so many cancers that happen to do easy things like that.

I went back to mom’s and hung out with Nick.  We watched volcanoes and twisters on YouTube lol.  It was nice actually bc he always puts me in a good mood   He was sitting on my lap and actually helped my knee pain lol. Speaking of which, I found my knee braces last night!!!!!  They are such a big help when the pain starts to become intolerable.  I was watching, Chasing Mummies (OMG I love that show!) and decided to look around the basket where I put all my heating pads, etc. and just happen to notice some fitted sheets I don’t use anymore… lifted them, and BWAM there they were!!!

Zeus had to get in there too to cuddle lol

Susan, my social service worker came by this morning, and she had me cracking up laughing telling me stories of her nursing days.  I always feel a lot better about things once I see her.  She’s one person who totally has my back, and never questions how I’m feeling, or anything.  She’s very cool, and hilarious.

We found out my Gramps who is in a nursing home, now has a lung disease.  We knew quite a few years ago he had Emphysema from when he smoked, but now I guess there is another one that has popped up   My Grams has a VERY hard time hearing, and not a great memory when it comes to that kind of thing, so it’s hard to get information about it from her.  She is going tomorrow to talk to his doctor about it, so hopefully he’ll make it more clear for her, bc she is quite worried about it.

Today, is my brother Kirk, and step mom’s birthdays!!!  Kirk is 40, and I think Lois is 52… not sure lol.  I think they had her 50th a couple years ago.  I’ll have to remember to give her a call tomorrow.  My dad’s is on the 9th, so I hope I can get out there to see him

The nausea is back to normal!  The pain in my stomach is too for the most part.  It sounds weird, but it’s hard to tell when you’re used to having chronic pain there, so at least it’s dulled to being tolerable like the pain is usually.  I go back to see my crohn’s disease specialists on the 19th to see how the scopes turned out, and decide what’s next.  I have NO idea, which is annoying bc they discuss as the scopes are performed, if they see anything or not, but obviously I wasn’t much for paying attention to them LOL.  I know he had me stop to look at some polyps, at least one of which I saw him remove, but that’s nothing new, or unusual at all.

So besides those, I’m just waiting to get the call from the cardiologist to go back in when he’s back, which should be any day now.  That and the dentist… *shudders* lol.  I also called the sleep clinic bc it has been over 10 weeks since my sleep study, and they are sending it to my GP to have her go over it with me.  I don’t know if that means there’s anything that showed or not.  I’m going to wait a couple weeks and just call and see if they don’t.

Hope you’re all doing okay!  And a special shout out to my loop who suffers with postural orthostatic tachycardia syndrome, etc. and finally got the okay from her doctor to drive again!!!!!!!!!!!!!!!!!!!!!!!  So happy for you!

Talk to you all soon.

Ash,