Summer Fun

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I’m so sorry it’s been SO LONG since I’ve written!  I have no excuse!  My internet was hooked up the day I moved… I’ve just been lazy lol.

Wow okay… so I moved!  My place is huge!  I have the doors and 3 porches/decks to sit out on!  The one I chose, off my kitchen, kept getting stuff stolen off it, so I now use the back deck lol.

I quit smoking!  Or had started to on Champix the medicine, that you take for a week while still smoking, as you are slowly upping the dosage for day 8, but by day 8 I could barely breathe and had to roll off my bed and crawl the washroom bc I couldn’t stand lol.  I was so out of it I just kept randomly falling asleep!  I had finally come out of my stoned stuper long enough to check the side effects, and these were all listed as adverse stop taking medication NOW lol.  I guess it just didn’t hit me enough to listen until I doubled the dose!  Either way my smoking is now a third of what it was at least and I feel at least good about that until I see my family doctor again.

I went to the GI’s about my Crohn’s this past week, and they put me back on Aziathroprine!!!  And gave me another bunch of Prenisone in case I relapse before the Aziathroprine kicks in.  I’m still on a whack load of Prednisone, but two weeks in to showing signs of relapsing.  So I hope I don’t have to go back up on it, but I probably will bc the other usually takes months to work in me.  I have a nice Prednisone belly I call Winifred and chubby little round Prednisone cheeks to match… I look pregnant.  Not impressed about that LOL.

I am still getting the Small Bowel Follow Through done in September, just to see if there is any extra hidden inflammation or a partial or full blockage anywhere.  I think it sucks, but am glad just to double check with all the pain I’ve been having.  I will see my GI’s again in 3 months.

I also mentioned to my GI’s about how my Cardiologist thinks once the inflammation is under control, that my POTS will be too, but my doctor said that unfortunately that won’t likely happen.  It’s a very common false positive with Prednisone and people while they’re on it, and that most likely I’ll be just as sick if not more so once I’m off it again.  Will have to mention that to the Cardiologist next time I see him.  I hadn’t had my hopes totally set on that getting rid of my POTS, but I of course was hoping it might help make it not quite so disabling… and now I just feel like I’m stuck again.

I’ve also been to the dentist TWICE bc my stupid fillings keep falling out.  I understand possibly that since they were close along the gum line they may not last forever, but only a few months???  Come on now… and she said it might fall out soon again!!!  If the one does that’s been causing me so many problems, I’m just going to have her pull it bc it causes me non stop nerve pain anyway.  She put in two doses of the freezing which makes me shake like crazy bc of pots, and it still hurt enough that it made me jump out of my chair!  She thinks it’s the fibromyalgia nerve spot too.  YAY! lol.

I had my Occupational Therapist come since I moved, and she got me a wheel chair to try for a week.  It’s really light weight, and only small wheels bc you move it with your feet Flintstones style bc I just want one for it say I’m at the zoo all day, or whatever where I can’t just stop and rest, so a motorized one would be no good bc I’d never be able to lift it into a vehicle and I doubt my stubborn ass would use it around home.  Zeus is getting more use out of it as his napping spot lol.

Anyway, not much else is up besides trying to get stuff for outdoors to decorate with, and slowly but surely getting art, etc. up here inside.  This weather is crazy.  I just do something as simple as make the bed and I’m sweating like a crazy person!  I know Prednisone and POTS makes that worse too, but gross!  LOL.

Ash,

 

Adrenalin Works If You Work It!

 

Had to go to the dentist today bc of the two fillings that fell out.  I just got the damn things filled at the beginning of this year!  Hopefully they stay put for a while!  My appointment went well.  Any other POTSy’s find that the freezing makes them jumpy?  My heart rate goes nuts when I get it… reminds me of taking acid in high school lol.  My SSW Susan stopped by too to try to scare me while in the dentist chair! LOL Thankfully I was walking out as she was coming in!

I got home, and thought I’d better rest and try to get my heart rate under control, but my heart was so wired for sound I couldn’t sleep, so I did a bunch of packing and cooking instead!  I have most of my stuff packed, but it is getting down to the wire, and I need to use what energy I get to pack when I can!

My mouth, now over 6 hours later… is still frozen!!!  Not badly and it’s pretty much gone now, but holy hell!  And it’s weird, bc I’ve always had less problems with the left side of my mouth, but if they do ANY kind of work on that side, I swell right up and look like a stroke victim… not cute!  I’m glad  give my family a good laugh with it though! lol.

I went to my dad’s this past weekend and got to see my uncle Howard, Patty, and their one dog Killer (a tea cup Chiwawa) LOL  she’s so ridiculously tiny I was scared I’d break her, but she is too adorable and cute and loved when she finally decided I was deemed cuddle worthy I also got to see my cousin Joey and Lisa, and some other family friends.  I got my dad the book, The King’s Speech, since he loved the movie so much.  It goes into more depth of both the men’s lives, and has really cool old photos and letters that they sent one another.

I won’t be writing again, until after the move on Tuesday… that is “supposedly” when Cogeco is coming to set up my phone and internet too but we all know how well that turned out last time lol.  Then I’ll be seeing my dietitian, my PSW’s boss, and my OT worker as well.  It’s going to be pretty crazy with appointments and trying to get unpacked as well as trying to quit smoking!  Yes that’s right… my quit date is for the day I move.  I hope to hell I don’t kill anyone!

Alright, was just doing a quick check in to let everyone know I’m alive, just busy, and I’ll hopefully be writing more.. and more interesting things as well soon lol.

Ash,

Crohn’s Disease Update

I’m feeling much better now and actually liking this weather!  Err kinda lol.  I detest humidity… horrible stuff, but when it’s not humid out, the heat isn’t bothering me like it did last year.  Mind you, this is only the beginning of June!  But I’m wearing SPF 60 and still burning!  Maybe bc I have to take 1000 mg or IU’s or whatever of vitamin D.

Well I’m slowly packing for my move.  Last time… a whole couple months ago lol I had more problems with my Crohn’s Disease, than I did with POTS which surprised me.  So this time, I am being really careful since I obviously just had a flare.  Doing it when I’m well enough, and stopping even before I begin to feel too horrible.  I just need to be able to do something with this move, and even though I will have tons of help to even pack if I need, I still can’t stand the thoughts of not doing SOMETHING when I can.

I got a call from the Access Center, and Monday a dietitian is coming here and helping me figure out what would work best for me crohn’s and pots wise.  I know a lot of it is just common sense mixed in with a lot of salt for pots, but whatever I can learn why not?  Maybe she can give me some tips on cholesterol, and heart burn too.  We’ll see… not sure if it’s the same woman I went to the hospital last year to see (aka waste of my time lol)

Next Friday, I go to Kingston, and see my G.I.’s about how I am doing since the flare.  I am better, but still not up to par.  Or at least not in comparison to how I was after my last flare… mind you I was so much more healthy then.  I will be finding out what my medicine is going to be for when my Prednisone is finally done in July.

After I get out of there… and hopefully in decent time too, I go down and see my Cardiologist for the first time in almost 6 months!  Grrr lol.  This whole Bisoprolol medication that doesn’t work crap is finally on my last nerve.  I am going to ask him to switch.  Enough is enough!  I also want to talk to him about other symptoms besides just the heart rate and blood pressure.  I know that certainly worsens symptoms easily, but what about all the other stuff like heat intolerance, shakes, dizziness, etc.  See what he suggests I do, or whom I should go see.

On Wed. I think it was, I went with Grams, Amanda and Nick to his first soccer game.  Last year was adorable bc they just played around and learned the basics, but this year he is actually playing.  It was fun to watch them!  I hope I get to go to more games this year than last!

Tomorrow, my mom’s taking me out to get my groceries.  I have just finished reading Bethenny Frankle’s cook book.  I absolutely love it.  It’s nothing fancy, but teaches you the basic need to knows about experimenting yourself in the kitchen.  I was never taught anything but the basics, so I know nothing about herbs and spices, etc.  And I love this book bc it shows you all that, with just regular, yummy foods, you already have in your fridge.  Can’t wait to start experimenting more!

Anyway, going to head out, I couldn’t sleep and decided to update you all to let you know everything is going steady and good right now I hope you’re all doing well too despite all the crazy back and fourth weather a lot of you are having!  Will write more next week after my appointments.

Ash,

I Can Move! Yes!

So happy bc I am finally getting used to being on the Prednisone.  I still get bad insomnia, and bad nights of feeling terrible, but at least now, I am able to slowly take care of myself more and more!  I actually made pasta last night and then the dishes!  Wahoo! lol.

I went to the doctors, and she sent a referral to the Acess Center where nurses come into your home to help you out.  She was thinking IV help, which now that I am getting water into me more, I may not need.  Though it’s getting warmer, and maybe having that option isn’t such a bad idea with POTS since it was so bad last year.  She also signed a note for me, saying that having an air conditioner would benefit my health, so disability will pay for me to be able to buy one, and then the seasonal charge for the landlord.  That is going to be a massive help!

I’m still bruised everywhere!  My dad said it looks like I have a tattoo on my forearm from the one needle bursting a vein.  Not a sexy tattoo LOL.  So I’ve been trying despite the heat, to wear long sleeve shirts when I have to go out in public!

I’m trying to drink a coffee right now… it’s disgusting.  Not as gross as it was, but I seriously cannot believe I drink this crap lol.  Probably better to just stop now.  It’s weird, whenever I get really sick, I always throw away bad food / drink habits, like pepsi, but then I pick up another… wonder what it will be this time??? lol.

So I went with the housing co-ordinator on Thursday, to check out the apartment they are redesiging.  It used to be rented by a person in a wheel chair, so the owners are putting in all new kitchen and bathroom cabinetry, it’s repainted, new carpet is going in the living room.  There are two sinks in the bathroom.  One is for washing your hair, which would be kind of nice, and a big tub!  There is also a little room to itself that would be perfect for a computer room or spare for company.  There are 3 big decks, and two of them are my own private, and tons of windows, stained glass in some of them.  Very charming, and spacious, but still not too big for me.  I asked to have a day to think about it.  Weighing the pros and cons of living here.  This is an amazing little tiny apartment, especially for someone who is sick, but I am sick of all the stress with the land lord and always being watched by my nieghbors.  I moved out on my own ten years ago, I don’t need to be looked after.  I’m here to rest, and have my own spot to myself, and not be badgered every time I open my curtains.  So I decided in the end to take the place.  I literally walk out the door, and the bus is right there on the corner.  There’s a day care and another tennant on either side of me, so nights won’t be noisy.  The children don’t bother me at all being outside and playing.  If anything, it’s a sweet sound.  The housing company will be doing the entire move for me again (I don’t know what I’d do without these people!) and all I have to do is move from one to the other with Zeus.  I am slowly going through my crap again though getting rid of stuff I don’t need.  I should be moving around the 15th, or before if the place is ready.

Just wanted to give a big thanx to Julie, Justin and Frankie for being such great friends these past couple weeks with me being an emotional blob lol.  It helps to know I’m not alone in the fight, and that we’re all going to be kicking ass soon again!  Just takes time! *big hugs*

Alright, going to head out and attempt to clean up the mess I started in the living room.

Ash,

I Finally Know Yeah!

I now know for sure when I am moving! WOOHOO!  hehe.  I move this coming Friday!  I’m so excited to get into my nice, new, HEALTHY, apartment

Tomorrow is Family Day in Canada… what’s funny is very few Canadians even remember it let a lone celebrate.  Apparently it’s only a couple years old though.  Any Canadians out there celebrate this?  I don’t think we have…  This year for good old Family Day, my mom, sis, and grams are coming over and we’re moving a bunch of the boxes, and bags of bedding, clothing, etc. over to the apartment.  It will be nice to have stuff that can be put away and set up done, so I don’t have to worry about it after the move.

I made my little list of stuff to get help getting from disability.  I don’t know if it will be accepted, but I sure hope so!  I asked for a bar stool I found, with a back rest, so I can get my legs up, to use for doing dishes in the kitchen, a coat stand bc the only closet is off the bedroom, a couch I found at the Brick, and a reg. light vacuum that comes apart into a hand vacuum to use for furniture, and sucking up gross spiders… the bastards! lol, and a book shelf for in the living room.  I have a big one already, but it doesn’t hold all my stuff between my books and movies!  There’s not a LOT of storage space like I’ve been spoiled to have here, so the less I have to pack away into the one closet, the better!

The dentist went good!  The girl dentist, who normally works at their other office is sooo quicker than my normal dentist!  I really like her personality too!  She tried filling some of my cavities without freezing… and OMG lol it was painful!!!  She ended up having to freeze two for me and the rest I pushed myself through the pain.  With the epinephrine and me being in pain, it shot my adrenalin through the roof!  I felt fine, but I was mad shakey and really dizzy at first.  My mouth was swollen and pained, but nothing too bad!  I could still eat and drink fine afterward.  She agreed with me, when I go back to get the rest done (yes I still have more to go eek! lol damn heart issues) she’s definitely just going to freeze me up like crazy bc that’s better than putting me through that again.

Today I’ve been just working around the apartment packing more stuff, and now am out of boxes when I could be packing more!  I think what I’ll do, is after tomorrow bring the boxes back with me here and just repack what I have left in some of those.  It will be easier to recycle them here anyway bc we don’t have bins and stuff at the new place.

Not much else has been happening bc I’ve been in so much pain.  Ever since I was upped on the Bisoprolol, it feels like my body is trying to cave in on itself.  I think maybe it has affected my Fibromyalgia and the nerve damage in my Crohn’s bc my stomach isn’t being affected except that I’m getting horrible stomach pain like when I first got sick without all the other gross issues lol.  I call it my Freddy Kruger fingers stomach pain lol.  The crazy chest pain I was having is a lot better though.  Even when you know it’s POTS, it’s still scary to have it none the less, and it was lasting for almost 2 weeks!  Freaked me out, but now it’s just little bits of pain every once in a while not none stop

Tuesday, I go in to see the Neurologist.  I’m excited, but not wanting to be too hopeful.  I hear he usually only does studies on potsy’s at MacMaster Uni. so I don’t know if he will do much if anything for me, while I have a Cardiologist.  I’m hoping if anything, he will do more autonomic testing on me… but not too sure.  Will be interesting to see though what all he knows!

Alright, will write soon, but maybe not right away after the appointment with the move coming up.  Will see what kind of time I have in between, otherwise, will write from my new place

Later Gaters!

Ash,

Brain Fog Crazy!

Meant to bring my camera with me today.  I got the keys for my apartment yesterday, so mom, grams, Amanda, Nick and I went up for them to see it.  Love taking before shots before anything is in it, and then after once I have it all decorated.  I think which means I don’t know for sure still, but I think I’m moving sometime this coming week.  It’s hard not knowing when exactly bc I don’t know how much I should pack of the stuff I have left out!

Mom came back this afternoon with me, and helped me pack up and garbage more stuff.  I made her take the Scooby garbage can I had so I didn’t have to deal with it lol.  Nick will love it at least :-p

My dad and step mom, Lois, came over this morning.  He brought me roses for Valentines Day like he does every year nice since I’ve NEVER had a guy buy me flowers!  Even the douche whom I spent last Valentines Day didn’t…. douche! LOL.  Since they just got back on their yearly trip to Arizona (I know, wouldn’t that be nice huh?) he always brings back something little for us, and this year I got a calendar on a bunch of cactus’ …. I actually do like them weirdly enough so it’s fitting lol.

They came down to move the mattress from my Grams old bed to my mom’s bc I’m using my futon again (yay! lol) and he kept freaking out I was pushing it too much.  I go to get them a screwdriver and he ran after me so I wouldn’t have to lol.  Not quite THAT bad thankfully!  But it’s really sweet how he doesn’t question how terribly I’m doing.  I wasn’t feeling good at all this morning, and I was crouched inside my bedroom door talking to them as they were taking the frame apart, and my eyes just rolled back and I fell on my butt lol.  Didn’t fully faint though!  I think I’ve freaked them both out about it even more though, bc then they set up my futon frame for me, and made my bed (lol too cute) and then made me stay sitting until they were out of eye shot and then I got up and started moving stuff around again lol.

Sad thing was, when he handed me the roses, I thought, “Oh that’s sweet, a moving present.”  Not even realizing until I saw my sister’s facebook status, that it was for Valentines… bc I didn’t realize it was on Monday!  I’d make a horrible wife! lol.

After I barely moved my head and pulled a muscle in my neck, I decided to take a 20kg bag of cat litter and lift it with my back instead of my crap knees… bc my knees are crap… and then I pulled a muscle in my back.  I was in a lot of pain and was happy to take med.s that happily didn’t want to work!  So every time I’d lift something I’d keel over in pain.  So after a day of not actually resting, but trying to trick myself into thinking I was, I was in bed and got restlessness in my legs so I did some weird bending thing with my leg underneath me (don’t ask this helps) and instead of getting rid of it… I pulled a muscle in my calf! lol.  I got up bc my legs were going nuts and I fell over bc of the pulled muscle and just sat there and the floor shaking my head laughing trying to get my ass up off the floor.

Alright, will write again next week.  I can’t WAIT to go to the dentist!!!  No I’m lying I’m completely freaked out and am in complete denial that this appointment is coming up… until I actually have to go!

Ash,

PS New page on fighting the flu

Busy Bee!

My lease for my apartment here is up March 1st, but I was told I can move in any time into the new one.  I said I wanted to wait until the floor in the bathroom was redone.  Would give me time to pack without actually killing myself rushing, and I wouldn’t have to worry about trying to unpack, worry about Zeus getting outside, while  work men were coming in and out of the new place.

My sis came up and helped one evening with books movies, some bedding and clothes that were hard for me to get at with pots, and Susan’s student Aarifa like I mentioned as well, came by for an hour and helped get all the dishes out of the kitchen on the highest shelves, since I’m notorious for passing out in the kitchen it seems like.  I’ve now packed everything else except the clothes, and bathroom stuff, etc. I’m still using until up until the move.

As I’ve been packing, I’ve been cleaning the walls, and shelves, etc. and getting rid of the stuff I’m not bringing with me.  The only thing I hadn’t been doing was the carpet bc yet again I broke a vacuum!  I don’t know how I do this, but I just give it to my mom and she always figures out what’s wrong to fix it.  My red one she gave me that was light weight that broke, she couldn’t figure it out though!  So I had to borrow my grandma’s vacuum until I get out to get a new one.  I was cool with that until I saw the thing!  I a HUGE one and crazy heavy!  It works great, but has taken me three days and help from my mom to be able to vacuum this apartment lol.  I am finally done until everything gets moved out, and then I’ll have to do it again.

The reason I bothered to do it at all, is I am having the rental company tomorrow come here, to do a last inspection before the move.  With Zeus’ hair, and mine now partly falling out, there  was hair everywhere!  The vacuum has one of the big ass canisters you just have to empty… I’ve emptied it twice now and it’s full again lol.  That’s how bad it’s been since Christmas!  But I was just using a carpet sweeper… that yes, I broke too lol so I don’t think it was getting everything up, just what was on the surface.

Today, I went to the dentist for a teeth cleaning, and to get some cavities filled, but they got freaked out about my mitral valve prolapse, so I have to come back for that.  Normally bc I have horrible sensitivity, they freeze my mouth for even the cleaning, but they were freaked out to do that!  So I got a basic cleaning and some whitening done in between me being ready to punch the sweet hygienist for the pain.  And now I have to call the local dental college here, about getting a treatment done with freezing, so they can get in and under the gums bc they’re so inflamed they need two appointments alone to make sure they get done properly and completely!  Ahhh   I asked them what I was doing wrong.  I use special tooth paste for my teeth, I brush daily, I floss, wtf!!!!  So bc I have all these digestive wrecking illnesses, they’re causing the acid reflux problem I mentioned… so that, my medicine that’s supposed to help that makes my mouth dryer, along with other medicine I’m on, so it’s destroying my teeth.  And because my lovely immune system is a piece of crap, the damage isn’t able to heal on its own like my dentist hoped, it’s only making matters worse, causing them to have to do even more work!!!  So I go back in a few weeks to get the cavities and breaking … yes breaking teeth fixed, and then I am going to be getting a hold of the college for 3 more appointments.  Very stressful, bc my dentist warned me that all this work is going to make my teeth in the back even more sensitive, but obviously the work needs to be done, so there’s no way to help that.  At this point, the sensitivity is the least of the problems to worry about.  So long as my teeth are healthy.

Next week, I go to my doctors appointment about my fibromyalgia and sleep clinic study and getting her to fill out some forms for disability to prove that I am sick, and that’s why I’m moving (even though in order to get disability in the first place you obviously have to prove your sick) but whatever!  Lol.

Then the week after that, I go back in to see the Cardiologist.  Obviously the Bisoprolol is STILL not doing it’s job after almost a year.  I think it’s been 9 months now.  So he better switch my beta blocker or I’m going to go absolutely bat shit crazy!… if bat shit can make you crazy! haha.

The just after my next dental appointment, I go in to see the Neurologist!  Hopefully he’ll have some ideas   I’m really hoping he’ll be willing to do some more autonomic testing on me than the cardioloy type stuff I’ve had done to get more answers about my pots.  We shall see.  I’m excited

And yes at some point in between, I’ll be moving lol.  Actually, tomorrow, the student and I are going to compare dates of when it will work.  So I am thinking if it’s good with them, moving a week tomorrow.

I’ll write more next week!

Ash,

It’s Like A Dairy Queen Blizzard Out There!

I was told it was going to be bad this weekend.  I went and got some groceries yesterday so I didn’t have to attempt to go out in the craziness… and boy is it ever!  I’d say one of the biggest hits we’ve had yet!  But I still have no complaints since I’m not a driver, and I love looking out the window and seeing the beautiful snow everywhere   My parking lot is completely snowed in and it doesn’t look like there’s been a snow plow out for our place at all today.  When the snow plow goes by on the road, it blocks the driveway… kind of funny though.  Last year when my mom would come to pick me up, I would have to walk out across the road to meet her lol.

Speaking of weather…  the terrible scary weather over in Australia right now is so sad!  So many people lost, dead, injured, without homes.  I must say speaking of scary happenings over the world, I saw a little tv documentary on how in Haiti, they are using the rubble from the destroyed homes, to build new ones.  I think it’s bitter sweet in the sense they are building the new life from the old.  Still, couldn’t imagine what they are all going through even now

My social service worker, Susan, has a cousin that runs a private school up in Switzerland, and they are known for doing skiing classes, and it is very much a part of their curriculum and daily life style there.  Right now however, the entire place is having rain pouring on them, and there is no snow to ski on.  That’s scary!  The first time in 40 years that has happened!

With this time of year comes massive flu outbreaks too, but weirdly enough I haven’t heard anything about it yet really.  Yesterday though, I was reading the news and apparently there are crazier amounts of flu cases this year compared to last year!  Thank God I got a flu shot!

My place is being over taken by boxes… and boxes and boxes… and lots of other boxes.  Susan’s student who’s name I actually know how to spell now, Aarifa, came over and packed stuff from all of the cupboards that are up high, and now pretty much EVERYthing is packed that I’m not already using until it gets closer to the time to move.  All I have left is a few things in the bedroom I want to get rid of, and the couch, which the Salvation Army is coming to pick up at the beginning of February.

My poor dad is sick with Bronchitis, and then he and my step mom are going to their yearly winter trip to Arizona, Las Vegas, etc.  When he gets back, he is going to bring his truck up here and bring my big bed and eliptical trainer to my sister since I can’t use either.  So happy I’ll have my futon back soon

I’d been packing the odd box here and there, but every time I try to my Crohn’s kicks in and I have to rest whether I want to fight it or not.  My postural orthostatic tachycardia syndrome, is also giving me horrible nausea!  Usually I just get it in the evenings, but lately it’s been all day!  Very sickening to deal with.  I got an anti nausea bracelet, but I don’t find it helps a lot.  Just takes the edge off.

Susan brought me over some arthritis cream to try on my hands, wrists and knees.  It’s all natural so it’s not crazy stinky!  It’s medicinal smelling while your putting it on, and then it goes away!  And it doesn’t get all sticky to your clothes either.  I really like it, it’s nice.  Doesn’t get rid of the pain entirely, but definitely takes the edge off.

Alright, I’m going to head out bc I’m falling asleep as I type and I want to get cleaning some more of the apartment!

Take Care!

Ash,

ZzzzZZZZzzzzz

I cannot believe how pooped out I am today!  I am literally dragging my butt everywhere it seems lol.

 

Zeus is more than ready to move too I think!

I’ve been dealing with ODSP (Ontario Disability) getting all the proper information to them about the move for March 1st.  I was very stressed before not knowing if they would fund movers for me or not.  You’re allotted so much money for moving every two years, but they’re so picky about the prices for things, I didn’t know if they’d approve anything I sent them.  Thankfully thanks to my social service worker, Susan, I now have movers through the housing department at her work, who are doing this for me for free!  I couldn’t believe they offered to do this for me.  Not only that, but they will help clean up this apartment once I’m all moved out.

Like I mentioned before, I had been feeling pretty good and getting things packed.  Amanda and Nick came over and she packed like six boxes of movies and books, and bags and bags of clothes, coats, bedding, etc.  I felt horrible, but after they left I packed about four more boxes!  Now I am spent.  I feel like complete garbage and have nothing left of me now.

Susan’s student Aariha … I think it is, came by yesterday and ran me over to the dentist to sign some forms for them to get a hold of my cardiologist, and I got  home and could barely sit up to eat my lunch.  I think my Crohn’s is giving me a bit of a kick and that’s why I’m feeling a little worse for wear.  Indigestion and more pain than usual in my stomach, and lots of back and knee pain too along with the chest and heart palpitations.  So much for thinking for 3 whole days that Bisoprolol is working lol.  The medicine from my G.I.’s is definitely working bc it was no where near as bad as it normally gets, but definitely did affect me.

I will most definitely be moving before March 1st.  They’re basically waiting, bc the owner is redoing the bathroom floor, and putting in new washers and dryers in the building, and then I can move whenever I want!  Which I think is a great thing now, bc my sister found mold growing outside my apartment in the hallway!  Disgusting!  No wonder I’ve felt so badly since living here!

The other night (I found this pretty amusing) the drunk guy, who I have to be honest, I thought had turrets LOL not a funny thing to have, but funny I thought this, when in reality it’s just his drunken slur.  Anyway, he was out in the hallway around 3am.  I had woken up around 1am and couldn’t sleep so I was watching Iron Man.  I went to the peep hole at my door and saw him swaying all over the place half making crying noises, half angry noises and he was banging on a door to get it… this is the same apartment who set a turkey on fire, evacuating the entire building, but they refused to come out of their apartment until the fire department made them lol.  This is also the same man who was banging on the laundry room door to get in a week before instead of his own apartment!  I didn’t think anything of it, and I just ignored him and went back to my movie.  I hear him go outside and bc my bathroom light was on from when I got up, he started smashing it!!!  Not an easy window to get at either, bc it’s partially under ground, so he had to literally get on his hands and knees and lean in, and punched it like a wild man!  I grabbed the phone bc I was afraid I’d have to call the cops, but he soon stopped and came back in and passed out on the floor outside his apartment crying lol.

Besides all that craziness, things are going great!  I just need my health to give me a little nice boost of energy to keep going until this move is over.

I go to the dentist next week for my cavities and teeth cleaning EEEEEKKKK!  And then to my family doctor.  Then next month, I see the Neurologist/ Postural Orthostatic Tachycardia Syndrome specialist!!!!!  I can’t wait to work with him!  I will also at some point in February be seeing my Cardiologist.  I heard from his secretary yesterday and I am good to go with the dentist without any worries.

Take Care

Ash,

 

Insomnia Monday… No Wait Wednesday lol

Okay I’m totally out of it.. and as the title shows on NO sleep.  I apologize in advance to my horrible writing mistakes in this post bc even though there is a spell checker, I’m notorious for putting wrong words spelt right in the wrong spot… now you’re feeling as confused as I am aren’t you? Good… I’m not alone then.

So I had 3 great days.  The 3 best days I’ve had in about 5 years.  I felt good, had some boxes and some Christmas crazy going on in the apartment and I just went nuts packing stuff.  My place feels hollow now and very echoy… sadly my neighbors sex life has seemed to become more echoy as well *shudders*

Susan my Social Service Worker, has a new student Aristha or something and every time I say it, I’m saying a totally different name lol.  She’s older, which I like.  And she and Susan came by today for me to meet her.  Aristha or whatever she is, is coming by tomorrow for her first session with me.  Zeus made it very clear she digusts him and wouldn’t let her go near him without flailing and running off to the tub to scream his usual grumpy rant.  Mind you bc I didn’t sleep… that means he didn’t either.

I got rid of a whole whack load of more stuff on the Free Cycle site.  Google it bitches, bc you can get and give away free stuff in your city.  Such a great idea, bc it saves so many items from going to the dump, and helps many people who don’t have a lot of money.  I’ve gotten some stupid items that turned out to be more of a pain, and I’ve gotten great things too like my bread maker which I love!  Definitely recommend it.  The only thing I’m waiting to give away now is my couch.

I’ve been reading a LOT lately.  I finished up the new CSI digi novel which was amazing!  Also read Bitch in the Kitch and the first of the series… cannot remember its name and I lent it to my step mom to borrow.  It’s about all the interesting facts to do with food with a lot of sarcasm and swearing thrown in… perfection.  Changed my whole ideal on eating and cooking too!  Bitch in the Kitch is actually one of the cookbooks so you’d want to read the first book obviously before buying it.  So funny too.  I’ve also finished one of the free novels I got with my Kobo.. The Preacher’s something or other.  Good but wouldn’t bother to recommend it to anyone.  And am now reading everything Edgar Allen Poe has ever written lol.  I love his short stories especially!  Oh!  And read the play, The Importance of Being Ernest… omg I LOVE it!  I wish it was longer, and that I could see it performed live!

Anyway, besides that I’ve been on the phone like a fat kid clings to the refrigerator and I hate it lol.  I hate the telephone!  So many little things disability needs done.  Proving that I’m moving bc of health conditions, proving I am approved and actually moving to the new apartment… weirdos.  And getting quotes sent over to them for movers.  What do they care so long as I give them a receipt?  Which they’ll need too lol.

Also been on the phone starting my month of doctors appointment bookings!  Had a horrible time getting a hold of anyone of Christmas and the week after.  My family doctor for my knee and fibromyalgia, and my sleep study.. Susan is taking me as well to see what all my tests have said since my numb brain won’t remember everything.  Then I have to run to the dentist on Monday with the student social service worker (the same program I’m in) and sign a consent for my needle poking dentist to get a hold of my Cardiologist.  Since he NEVER phones me back! Grrrrr.    As well the Crohn’s Disease dudes to make my check up appointment… yes it’s been almost a month on these new pills.  They are now helping greatly with the heart burn and acid burn in the stomach, BUT I still have nerve damage pain that doesn’t seem to go away no matter what they give me… except Amytripline which I can’t take thanx to Postural Orthostatic Tachycardia Syndrome.

So a lot of my facebook, etc. friends have noticed me being absent a lot.  A big part of it was just all the holiday business and being with family a lot.  And now my computer which has always been a piece of crap is getting even worse!  To write an email on facebook, I literally have to wait a good 20 minutes after I’ve finished typing it, for the computer to actually input it onto the screen!  It’s insane!  Surprisingly, knock on wood, this program so far isn’t being effected, but hotmail, facebook and yahoo mail seems to be very hard to manouver around without a lot of swearing and giving up to go sit on the couch and try it again later.

I hope you’re all well and not still pooped out from the holidays!  We all seem to slowly but surely coming back to our normal crappy selves lol.  Xo!

Ash,