Have a Great Easter!

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I haven’t written in about 2-3 weeks!  I’ve been lazy on this I know!

My new PSW is going great.  She is a huge help, and I look forward to her coming every week to help out

I’ve been having a lot of problems with my Crohn’s Disease.  I’ve been in a LOT of Freddy Kruger pain.  I’ve been sleeping yet again with what my sister calls my ass bag lol.  It’s just an oatmel bag that you heat in the microwave, but it smells like burnt oatmeal the more you use it.  Oh well, it helps me! lol.

My uncle Howard, recently had a heart attack.  Not a really bad one, but he has had a terrible heart attack in the past, and this time around it really hit me hard.   I was a bawling mess.  Really makes me question being a smoker.  I have to make an appointment with my family doctor soon, so I’m going to see what she suggests and what my options are if I do decide to quit.

The new medicine, Mirapex, is working well for my Restless Leg Syndrome, but it is still keeping my heart rate a little too high.  Which of course in turn, makes me feel like crap, but I need to be able to sleep!

This weekend is Easter, and Amanda, Nick and I, will be driving out to my dad’s and Lois’ to see my nieces and oldest nephew, and do the outside Easter Egg Hunt, so I have to remember my camera!

My aunt Kelly will be here off the train at 5pm tonight to stay until Monday at my mom’s, so I’ll be going up there off and on to see her too.  I was just there yesterday doing laundry (laundry room isn’t redone here yet) so I’ll probably wait until tomorrow to see her.

Anyway, not much else is new.  I’ve been reading all the Jane Austen novels that are on my Kobo E Reader, and now I’m reading, oh hell I forget lol.

My friend Carlie and her son Wyatte are coming over on Monday to hang out for a bit, and then at some point the week after, my roommate from college Jess, is going to come down.  She keeps moving further away!  So this will be our first girls night in about two years!

Don’t forget about the Crohn’s and Colitis BBQ at M&M’s Meat Shop locations around Canada on May 7th!!!

Hope you all have a wonderful Easter!

Ash,

New Med. Causes POTS?

So this medicine I was given I decided against hearing nothing bad from my pharmacist to look it up myself.  One of it’s main symptoms, is pots!  They actually say, may cause Postural Orthostatic Tachycardia Syndrome!  It also can turn your sweat brown, red or black, and stain fabrics!!!  In extreme cases it’s caused Melanoma.  Can cause scary drops in blood pressure, make breathing worse, etc. for some of the other main symptoms … no. LOL.  I called my doctor the next morning and asked instead of being on Codopra, if she’d send me one for Mirapex which my mom is on.  It can cause the fluctuating with blood pressure and heart rate, but not badly, and only for the beginning while you get used to it.  So far, all I’ve had from it is drowsiness which could be from the weather getting warmer here which always gets my POTS going.  I did ask on a POTS forum if anyone else had taken Codopra before, and one girl who’s dad has POTS as well as Parkasins does, and he had had no problems with it, but honestly I didn’t want to take the chance after what I had read.

My Social Service Worker gave me a great tip with my Personal Support Worker.  She said to make a list, of exactly what rooms I wanted swept, exactly what furniture to dust, etc.  in case she was just forgetting what I told her, or feeling like she could get away with it.  So I did, and she did EVERYthing on the list.  All the sweeping, windows, mirrors, furniture I wanted dusted, the dishes, etc.  It was great   Such a reliever.  Now I just have to get past the weird first while where you don’t know what the hell to say to each other lol.  But I am so happy it is working out so far, bc I hate dealing with trying to boss someone around who’s not my employee or having to talk to their boss.

I am now reading, The King’s Speech.  Which is really good so far!  A big part of the book, which was written for the movie, was helped out hugely by the grandson of the Elocutionist.  I thought that was really interesting, so you feel as though you are really reading the past family life of just an ordinary man, and the King, who was in big part still only a Duke, to see him on more of a personal level, and see his weak side through the letters they sent to each other.  I really like it.   I want to watch the movie after I am done reading this.

I need to get my taxes done, bring the receipts that I was too tired out from the new med.s to do yesterday to ODSP (Ontario Disability & Support Program) from the move, go grocery shopping, hopefully see my dad on Saturday if I’m well enough for the drive, and get my Zeus some new food.  I’ve decided for now to boycott Walmart after them being such dicks to me when I went to get my chair (had to carry it all by myself, etc.) and try a new grocery store that just opened up.  The only real perk to Walmart is that I can get any light bulbs, cat litter, and little extras like that, that aren’t as easy to find at other places.  Oh well!  Better than being treated like dirt!

I am still waiting to hear back from the Cardiologist about my next appointment.  I will probably give him a shout tomorrow to see if he’s back yet, or still at conferences.

Will write more soon!

Ash,

PS These are my temp. photos of my place, just to show some of the stuff.  Once I get EVERY thing done, and who knows when the hell that will be lol, I’ll take better ones to show

GP & New PSW

I finally took some photos of the apartment.  Not great ones, but they’ll have to do dammit! lol.

The weather here has been beautiful but freezing cold!  I’m always cold here!  Still better than hot weather though!

Thursday my new Personal Support Worker, Lilian came.  She is from Germany and moved to Canada years ago just for fun.  She seems like a cool person if you know her well, and has been a personal support worker for eight years….  you wouldn’t know it though lol.  I asked her to dust my living room and bedroom… she didn’t do the tv stand or the bookshelf, or the coffee table in the living room, and missed my dresser and desk… so she only did my night stand in my bedroom.  I asked her to sweep the kitchen and bathroom and bedroom area, and she only did the kitchen.  I asked to do the windows and mirrors, which she did none of.  And she left with 15 minutes still to spare.  I think I am going to go nuts by the end of this.  Why get in the job if you’re not even willing to do it properly, let alone half assed?

Yesterday, I went to my family doctor.  We always talk about books, bc I always have one to read while I’m waiting for her.  I let her play around on my Kobo to see how they work lol.  She filled out my forms for the special diet.  If you have one of the ones on the list, they’ll give you a little extra money bc special diets are usually more expensive.  There’s a lot of weird medical terms for stuff on there too that I didn’t know what they were, so I had waaay more than I realized.  I got crohn’s marked on it obviously, which was the only one I had on the original form, lactose intolerance, high blood pressure, high cholesterol and I think that may be it… can’t remember.

She also filled out a tax form that shows what problems I have, like with walking, etc. and that will help me get more money back I guess.

She also gave me a prescription for Restless Leg Syndrome.  I wasn’t going to do it originally, but now I’m getting it every night in my left leg and arm, and now quite often in my right leg.  It can make me go days without sleeping.  The medicine… can’t remember the name of course, that they put you on, is actually for Parkinson’s Disease.  So I’m hoping, that maybe it will help me with the crazy shaking I do ALL THE TIME.   I can handle my regular shaking, but hate it bc everyone I meet always thinks I’m shy and nervous from it.  But when it gets real bad, I can barely write, drink, anything!  I haven’t started it yet bc I haven’t been up near the pharmacy, but I will let yas know how it goes.

I’m now reading Jene Beker’s book, “Strutting It.”  I thought it was about her life working for Fashion Television, and her view of the fashion world, which it is to an extent, but a majority of it is for aspiring models… obviously not me LOL.  No interest in that, but still a good book so far.

Tonight my mom is coming over for dinner, and then I am hoping to get over there to her house on Sunday to do a crap load of laundry.  The laundry room here won’t be done until near the end of the summer, but I’m happy bc now I have my blue box! LOL sad I know…

Was having problems with my landlord bc she apparently said to my neighbor that there were cat litter bags or something all over the front stoop of my apartment… I’ve never left anything outside here except my welcome mat!  I was pissed bc she was annoyed I had a cat, etc.  But when I talked to housing who set the apartment up for me, and who I pay rent to, go to with questions, etc.  they said she signed off on me having a cat and that she knew I did long before I moved in.  It’s everyone else in the building who is not allowed to have cats bc they aren’t considered to be good pet owners or mentally capable of having one.  So she was obviously doing it bc she didn’t want to admit that to my neighbor but instead made me look bad.  Also there is workmen dust outside on my grass, bc you can see little pieces of rubble, that the guys who redid my bathroom obviously just through out there, so that must be all this supposed cat litter she’s seeing, since mine stays in a bag in the back closet.  Then I throw what Zeus‘ uses in a garbage bag, and take outside to the end of the driveway on garbage day. GGGRRRR women!  Grow some balls!

Alright, I’m out, will write again soon!

Ash,

Since I’ve Been Moved

I had such a hard time last week with getting rid of my psw and my counselor was out of commission bc she had the flu so badly.  She checked in to make sure I was okay, and my family was wonderful for being there for me.  They definitely had my back too.

My mom stayed the other night and we moved my living room around to give it more room and hung a bunch of pictures.  The walls in my room are really weird, so I can’t hang photos in there!  Drives me nuts lol.  I got a new floor rug, a coat stand, curtains, and a really comfy counter chair to use in the kitchen.  It’s really comfy too, and I’ve been cooking and able to do the dishes a lot more.  I will post pictures soon

My new PSW Lilian, starts here this Thursday. I haven’t met her yet though.  I’ll let yas know how it turns out.  I also have my family doctor’s appointment on Friday afternoon.  I need her to fill out some forms for my taxes and disability, and ask her if I can get something for restless leg syndrome bc it’s drive me nuts EVERY night!

I’m now reading the book, “Emma.”  If you’re into olden day girly books I definitely recommend this one

Besides that, there hasn’t been a whole lot going on!  My Grams brought by her old computer for me to use, so I thought I’d post one more entry on here before I switch over this afternoon!  Excited to use a computer that isn’t so bloody slow!

The weather has been beautiful here minus the night we had a thunder storm!  Today it is snowing and raining… go figure.. Canadian temps!

Hope you all are going well, and I’ll write again after my appointment this week.

Ash,

Horribly Gut Renching

 

this picture cracks me up every time I see it! lol

I’ve been really stressed for a LONG time, and have done nothing about it.  I am a strong believer that if you can’t say something to someone’s face, don’t say it at all!  In wrong doings I think before you get someone in trouble you should talk to the person first and see if things can be fixed bc it could easily be a misunderstanding.  I’ve gone against those feelings today and I know I had every right too for my own well being, but I hate that I hurt someone in the process.

I’ve been having mini issues with my PSW since about the beginning, but since I’m horrible for sticking up for myself, I couldn’t bring myself to do anything about it.  If someone is outrightly rude to me, I have no problem saying something, but I really don’t think my PSW was doing it to be mean or nasty in any way.

When I was at my most sick, I couldn’t do things like dishes, cooking, vacuuming, dusting, etc.  When I would have her do it, she’d be in such a rush, she’d leave food all over the dishes and glasses always full of soap, or just a quick run of the vacuum in one room, or dusting around things on my shelves instead of moving them and giving it a good dusting.  Now don’t get me wrong… I know we have all done this to save time, but when that’s the way it’s done every time, and me being too sick to fix it myself, or passing out trying to, it seemed really annoying and pointless having someone come, as my place was piling up with dirt bc it was never done properly.  She also had a constant habit of leaving the stove on when she left, and putting the litter box in backwards, so if I was sick and didn’t notice, my cat would go over 12 hours at a time without anywhere to go to the washroom… he has digestive issues and almost died in the past from them, so it’s not something I take lightly.  Or leaving food out so that when I’d be too sick to be in the kitchen to notice it was out, the food would have gone bad by the time I noticed.  The one thing that really bothered me was bumming cigarettes.  I have no problem giving someone them, and am happy to if I feel they’d be someone who would do the same, even if I never asked.  She isn’t a smoker except when she drinks… or came to my place which was twice a week.  When someone only smoked socially they don’t usually buy them, bc they don’t want get in the habit and get addicted again.  I understand that, but in order for them to smoke then, they must constantly bum them off someone… that person being me.  And it was happening just about every time she’d come here.  I am on disability.. I can barely afford my own horrible habit, let alone hers too!   I’ve been feeling very used.

So what happened to bring me to say something to her boss, was the lady had called last week about doing a yearly satisfaction survey type of thing.  I thought, if I’m going to stand up for my self, now is the time to do it.  I was really stressed and very scared to, and ended up talking to my social service worker about it.  Up until then, I hadn’t even mentioned it to her, and that kind of made me realize something was up, bc I tell her everything good and bad.  I talked again to my sis about it as well, bc she has the same mind frame as me when it comes to having a hard time saying something bad about someone who is deep down not an outright bad person.

So I put it off yesterday, and knew since I normally see my psw on Wednesdays, that I had to do it today.  I talked to her boss and forgot to mention the litter box and food going bad, and leaving the stove on, but the moment I mentioned the smoking, she was not impressed at all.  I just hope to hell she doesn’t lose her job for it.  I will be getting a new psw soon, and won’t see the one I had ever again.  I know it will come to a huge shock to her probably and I know she will cry bc she is emotional like that.  She is very caring and sweet, but I can’t let everything go that was hurting me just bc she’s a nice person!

On the illness front, I haven’t been sleeping the last couple nights, my stomachs in knots from stress, and my pots is fighting me with every step or crawl I take.  The nausea is ridiculous and driving me bonkers.  It got so bad, I had to go lay on my bed bc I thought I possibly had the flu and was going to yack at any moment!  Normally the nausea sucks, but I can tell the difference between it, and having actually caught anything.  The second I get nausea, then the room spins and spins and makes the nausea even worse.

On a good note, my dad and Lois did end up coming and they really liked the place.  I let my step mom borrow a cool book about health tips, etc. for gaining energy.  She’s all into that stuff too lol.

Anyway, the stress was getting to be a bit much, so I had to get it out here before I ralphed from it lol.  Sorry for all the negativity!

Take Care!

Ash,

Brain Fog Crazy!

Meant to bring my camera with me today.  I got the keys for my apartment yesterday, so mom, grams, Amanda, Nick and I went up for them to see it.  Love taking before shots before anything is in it, and then after once I have it all decorated.  I think which means I don’t know for sure still, but I think I’m moving sometime this coming week.  It’s hard not knowing when exactly bc I don’t know how much I should pack of the stuff I have left out!

Mom came back this afternoon with me, and helped me pack up and garbage more stuff.  I made her take the Scooby garbage can I had so I didn’t have to deal with it lol.  Nick will love it at least :-p

My dad and step mom, Lois, came over this morning.  He brought me roses for Valentines Day like he does every year nice since I’ve NEVER had a guy buy me flowers!  Even the douche whom I spent last Valentines Day didn’t…. douche! LOL.  Since they just got back on their yearly trip to Arizona (I know, wouldn’t that be nice huh?) he always brings back something little for us, and this year I got a calendar on a bunch of cactus’ …. I actually do like them weirdly enough so it’s fitting lol.

They came down to move the mattress from my Grams old bed to my mom’s bc I’m using my futon again (yay! lol) and he kept freaking out I was pushing it too much.  I go to get them a screwdriver and he ran after me so I wouldn’t have to lol.  Not quite THAT bad thankfully!  But it’s really sweet how he doesn’t question how terribly I’m doing.  I wasn’t feeling good at all this morning, and I was crouched inside my bedroom door talking to them as they were taking the frame apart, and my eyes just rolled back and I fell on my butt lol.  Didn’t fully faint though!  I think I’ve freaked them both out about it even more though, bc then they set up my futon frame for me, and made my bed (lol too cute) and then made me stay sitting until they were out of eye shot and then I got up and started moving stuff around again lol.

Sad thing was, when he handed me the roses, I thought, “Oh that’s sweet, a moving present.”  Not even realizing until I saw my sister’s facebook status, that it was for Valentines… bc I didn’t realize it was on Monday!  I’d make a horrible wife! lol.

After I barely moved my head and pulled a muscle in my neck, I decided to take a 20kg bag of cat litter and lift it with my back instead of my crap knees… bc my knees are crap… and then I pulled a muscle in my back.  I was in a lot of pain and was happy to take med.s that happily didn’t want to work!  So every time I’d lift something I’d keel over in pain.  So after a day of not actually resting, but trying to trick myself into thinking I was, I was in bed and got restlessness in my legs so I did some weird bending thing with my leg underneath me (don’t ask this helps) and instead of getting rid of it… I pulled a muscle in my calf! lol.  I got up bc my legs were going nuts and I fell over bc of the pulled muscle and just sat there and the floor shaking my head laughing trying to get my ass up off the floor.

Alright, will write again next week.  I can’t WAIT to go to the dentist!!!  No I’m lying I’m completely freaked out and am in complete denial that this appointment is coming up… until I actually have to go!

Ash,

PS New page on fighting the flu

Family Doctor Appointment

Hey!  Sorry I didn’t write right away, but I just didn’t have the energy to sit at the computer and write out all I wanted to mention.

Susan picked me up and took me to my doctor‘s appointment.  I still can’t get used to how willing to help my doctor is!  I am used to my last doctor throwing away and not listening to me and rushing like he needed to pee! lol.  It’s so remarkable to have someone willing and wanting to do everything she can… someone who actually cares how I’m doing!  I am truly lucky to have her as my doctor.

She told me to try Volteran for my fibromyalgia pain.  Have any of you tried it?  What is your experience with gels and creams to help with pain?  I noticed it helped my lower hip/butt area pain, but not my hands and fingers.  Mind you I didn’t rest them either.

I got her to check out my knee.  When you have any sort of chronic problem with your body, no matter what it is, you know when something is different.  It was a little different of a pain in my knee from the rest, and is almost constant and by far more painful.  I was cool with just leaving as is, if she said it was fibromyalgia as well, but I wanted to make sure it wasn’t something else considering I was told when I was younger, I may some day need knee surgery.  I come to find out when I am sitting I get this almost restless feeling in my left side and I twist and sounds like my hip cracks… that’s not been my hip.  It’s my knee popping back into place! Lol.  My doctor just moved my leg three different ways and POP!!!  So apparently my knees grind into my leg bones.  Not arthritis, but Patellofemoral something or other lol.  Nothing can really be done, medically, but you knees are weakened and make your knees more prone to injury.  The only thing you can do is these Patellofermoral physical therapy exercises that help strengthen the knee joints, etc.

She also switched my Pantaprazol for my Crohn’s pain, to instead of a sodium form of the pill, to a magnesium form of it.  I actually keep forgetting to try it bc my pill box for the week is filled with the old one and I keep just automatically taking it lol.  But I will let yas know if there is any difference when I give it a go.  But I was pretty mad to find out there were crohn’s ulcers, scrapes, etc. seen in my Ilium that they didn’t mention to me when I was there.  They had only said inflammation.  There were also some ulcers found where my stomach attaches to the Ilium too when they said it was fine.  I think even if nothing is to be worried about or done about it, that I at least have the right to know what’s happening in my body.

I also looked at my sleep study info.  Apparently I slept less than 3 hours, and woke up 83 times in that time!  The recommended me getting a night guard bc I grind my teeth… done, they also said I have restless leg syndrome even once I’m asleep so I should get meds for that.  I said no bc I know it can keep me up at night, but it’s not there every night, and it’s not reason I haven’t slept properly for the last 14 years.  It just showed up in the last year.  So my only option is back to my psychiatrist who had been helping me before with my depression medicine and sleep med.s and start trying more sleeping pills.  She’s the one that has the long list of ones I’ve already tried… I have no idea what all I have.

I have no idea why, but it’s 3am and my cat is screaming and driving me nuts!!!  I think he’s bored, but he’s pissing me off and probably my neighbors too! lol.

Amanda and I went and saw the new Natalie Portman and Ashton Kutcher movie… No Strings Attached.  Very funny and definitely good.  I wouldn’t recommend going to the theater to see it, but definitely rent it when it comes out!  This weekend we are hoping to go see the new Anthony Hopkins movie, the Rite.  I can’t wait!

Next up is my Cardiologist appointment next Friday.  Should be interesting to see what he says.

Talk to yas later!

Ash,

 

Insomnia Monday… No Wait Wednesday lol

Okay I’m totally out of it.. and as the title shows on NO sleep.  I apologize in advance to my horrible writing mistakes in this post bc even though there is a spell checker, I’m notorious for putting wrong words spelt right in the wrong spot… now you’re feeling as confused as I am aren’t you? Good… I’m not alone then.

So I had 3 great days.  The 3 best days I’ve had in about 5 years.  I felt good, had some boxes and some Christmas crazy going on in the apartment and I just went nuts packing stuff.  My place feels hollow now and very echoy… sadly my neighbors sex life has seemed to become more echoy as well *shudders*

Susan my Social Service Worker, has a new student Aristha or something and every time I say it, I’m saying a totally different name lol.  She’s older, which I like.  And she and Susan came by today for me to meet her.  Aristha or whatever she is, is coming by tomorrow for her first session with me.  Zeus made it very clear she digusts him and wouldn’t let her go near him without flailing and running off to the tub to scream his usual grumpy rant.  Mind you bc I didn’t sleep… that means he didn’t either.

I got rid of a whole whack load of more stuff on the Free Cycle site.  Google it bitches, bc you can get and give away free stuff in your city.  Such a great idea, bc it saves so many items from going to the dump, and helps many people who don’t have a lot of money.  I’ve gotten some stupid items that turned out to be more of a pain, and I’ve gotten great things too like my bread maker which I love!  Definitely recommend it.  The only thing I’m waiting to give away now is my couch.

I’ve been reading a LOT lately.  I finished up the new CSI digi novel which was amazing!  Also read Bitch in the Kitch and the first of the series… cannot remember its name and I lent it to my step mom to borrow.  It’s about all the interesting facts to do with food with a lot of sarcasm and swearing thrown in… perfection.  Changed my whole ideal on eating and cooking too!  Bitch in the Kitch is actually one of the cookbooks so you’d want to read the first book obviously before buying it.  So funny too.  I’ve also finished one of the free novels I got with my Kobo.. The Preacher’s something or other.  Good but wouldn’t bother to recommend it to anyone.  And am now reading everything Edgar Allen Poe has ever written lol.  I love his short stories especially!  Oh!  And read the play, The Importance of Being Ernest… omg I LOVE it!  I wish it was longer, and that I could see it performed live!

Anyway, besides that I’ve been on the phone like a fat kid clings to the refrigerator and I hate it lol.  I hate the telephone!  So many little things disability needs done.  Proving that I’m moving bc of health conditions, proving I am approved and actually moving to the new apartment… weirdos.  And getting quotes sent over to them for movers.  What do they care so long as I give them a receipt?  Which they’ll need too lol.

Also been on the phone starting my month of doctors appointment bookings!  Had a horrible time getting a hold of anyone of Christmas and the week after.  My family doctor for my knee and fibromyalgia, and my sleep study.. Susan is taking me as well to see what all my tests have said since my numb brain won’t remember everything.  Then I have to run to the dentist on Monday with the student social service worker (the same program I’m in) and sign a consent for my needle poking dentist to get a hold of my Cardiologist.  Since he NEVER phones me back! Grrrrr.    As well the Crohn’s Disease dudes to make my check up appointment… yes it’s been almost a month on these new pills.  They are now helping greatly with the heart burn and acid burn in the stomach, BUT I still have nerve damage pain that doesn’t seem to go away no matter what they give me… except Amytripline which I can’t take thanx to Postural Orthostatic Tachycardia Syndrome.

So a lot of my facebook, etc. friends have noticed me being absent a lot.  A big part of it was just all the holiday business and being with family a lot.  And now my computer which has always been a piece of crap is getting even worse!  To write an email on facebook, I literally have to wait a good 20 minutes after I’ve finished typing it, for the computer to actually input it onto the screen!  It’s insane!  Surprisingly, knock on wood, this program so far isn’t being effected, but hotmail, facebook and yahoo mail seems to be very hard to manouver around without a lot of swearing and giving up to go sit on the couch and try it again later.

I hope you’re all well and not still pooped out from the holidays!  We all seem to slowly but surely coming back to our normal crappy selves lol.  Xo!

Ash,

Good But Looong Day! :)

For once Zeus let me sleep… and then I got RSL and ended up being awake untl 6:30am!!!  I got up at 9:30 bc my personal support worker was coming.  I was so tired and out of it!  I kept trying to sleep in the car, but then my legs would drive me nuts!  Nothing is happening tomorrow, so I can sleep in

Today went good!  I knew there was nothing serious with my Crohn’s Disease, or from the results from the lower and upper endoscopy bc they never called to get me in quicker.  So apparently there is a little tiny bit of inflammation in the Ilium, but nothing to be concerned about.  I think more just to make sure I eat right and take care of my Crohn’s so it doesn’t progress into anything worse.  My upper endoscopy looked great, which is awesome!  I was worried I’d have GERD or something, that would cause me to have to get more throat scopes later on LOL.   I know I said it wasn’t that bad… and it was no where near what I expected, but I still don’t want to get them either! lol.

So basically what is going on, is what happened after my last relapse.  They found nerve damage in my intestines back then (also when my POTS started to rear it’s lovely head) so they put me on Amitriptyline and it helped with the symptoms.  So this time around since I’m not on it anymore, and haven’t been for about 3 years or so, and also bc it can aggravate my Postural Orthostatic Tachycardia Syndrome, I obviously can’t go on it again.  What they’re doing is giving me a prescription to treat the stomach burn, and that will hopefully help with the pain a bit too, but since I’ve had a little bit of pain all along… we’re willing to give this a go first.  So thanx to POTS and Fibromyalgia, it has got the nerves doing their little dance again and causing me grief.  We’re hoping it will just die down on its own, since I have had a wonderful Crohn’s history as of yet.  I heal super fast!

We were gone ALL day.  It’s 8pm, and I got home around 7pm.  I’m exhausted, but happy with the results I figured it would be the nerve damage as long as the report from the scopes came back good, so I’m happy with dealing with something I’ve already had to!  I got back in 6 months.  Of course I forgot to rebook while I was there LOL.

We went to Giant Tiger in Kingston while we were there, so mom could get some of her Christmas shopping done, and then they dropped me off at home on the way.  Speaking of Kingston, TAPS was at Old Fort Henry there!  That’s awesome, bc I lived near by there.  Apparently it’s considered one of the most haunted places in Canada, which is funny bc I never knew it was even speculated to be haunted at all lol.

Yesterday, I got my mouth guard and it fits great!  Not too bad, but still weird to get used to! hehe.  I have to go back in near the end of January for my teeth cleaning *shudders* and apparently I have cavities from the last time I got my teeth cleaned, and I never knew!  Lol, so I’m getting them fixed first!  EEEEEEK!  I’ll spazz for sure, as the time gets closer lol.  And nicely enough… I have no more doctors appointments of any kind until then!  I have over a month with none!  I’m so happy to have a bit of a break lol.

Sunday is Nick’s 5th birthday, so I will be at my mom’s celebrating with them.  I’m excited to go since I couldn’t last year.  Some of us and the kids, are going to McDonald’s before then, to take them for lunch, and let them play in the big play area.  I’ll definitely have my camera for that

Hope you’re all doing well, and will write again soon! Mwah!

Ash,

Packing, cleaning Achoo!

Hey!  I’m loving this cold weather!   It’s GREAT for sleeping.  My only big thing with falling asleep lately is I get Restless Leg Syndrome right as I’m about to fall asleep!  I twirl my legs in the weirdest way to try to stall it off, and if it gets bad enough it goes into my arm too!  Almost always on my left side.  Anyone have any non pill related tips I could try?  It can literally keep me up all night sometimes, even when I’m exhausted, so any tips would be good.

Well today I have a little bit of energy, so I am cleaning out my computer area.  There’s so many old phone books, papers, medical crap, computer parts I’m not using since I’m using the laptop with the computer monitor.  It’s been driving me crazy!  And I knew it was going to be the most time spent area going through things when packing, so I figured why not get it done with now!  Driving my allergies nuts, but I’ll feel so much better once it’s done!

I’m also going through all the stuff I don’t use and taking pictures to post of the Free Cycle site, so I can get rid of the crap!  My sis is going to take a bunch of it off me, thank God, so that’s even less I have to worry about.  I’m just basically either filing it or throwing it out in recycling!  I have only been here a little over 2 years, and it’s crazy the amount of sheer crap you accumulate.  I’m the complete opposite of a pack rat too, but since I want to be in a smaller place, a lot of this stuff just won’t fit!

It’s only Monday, and I’ve had a few days just to relax aka crash and sleep.  It’s great, but boring bc I’m not used to being bogged down with doctors appointments lol.  I like it though!  Allowing me to get some other stuff done that I usually can’t deal with after a long day.  But next week will be interesting.  Monday, dentist to get mouth guard, Wednesday to the allergist here in Belleville, Friday to Kingston for the Crohn’s specialist.  I didn’t realize that I was jamming them all into one week since most of them were booked months ago.

I got a letter from the Neurologist.  Instead of going in to see him in March, I’ll be going in February instead.  Quite a while sill, but happy that it’s slowly getting closer and closer!  As weird and annoying as getting poked with potential allergens will be, I’m really excited about going to the Allergist.  I just think the whole process is fascinating, and it will be interesting to see what they find!  I need to make an appointment with my family doctor soon, but I keep putting it off. Blaaaah lol.

Alright, break time is over!  Back to work!

Ash,