Low Blood Pressure Fun

Last week I fell asleep on the couch and missed my medication.  Unfortunately it really affected my blood pressure.  The second I woke up, I had something to eat and took my Beta Blocker right away, and usually by the next day I’m back to me.  This time hasn’t been the case.

I went to my mom’s not even able enough to put my walker in the van, and went through terrible waves of nausea and weakness.

I stayed at my mom’s over night by couldn’t sleep from the symptoms until around 5am even though I went to bed at 8pm the night before.

The next day I went home and mom picked me up a new shovel.  I had to use my wheel chair all day which I absolutely hate, but I kept having mottled feet and feeling like I was going to drop.

Today I was finally able to have a shower and get some normal stuff around the home picked up.  The shower did me in big time and I won’t be able to vacuum like I wanted, but at least I’m squeaky clean!

Tomorrow I have a Social Service Worker student and the new one coming by in the morning, and then I have my family doctor appointment.  Hopefully she’ll have some answers for me.

Hope you all are well.  I’m not unhappy, just hoping to feel as good as I was again!  Watching Dexter and OMG so good

Ttyl!

Ash,

Hospital 2010 Crohn’s Disease

Finally all the Crohn’s Disease tests that were stressing me out are over!  Whipee!

I was going through a LOT of back pain for a few days before the tests, but it was alright.  Even going all day and part of the day Friday without food was good.  I felt so sick to my stomach I didn’t even want to drink water lol.

 

my wonderful PSW Marlene

So my mom and grams took me in 9am.  I had my walker for after the tests, and I’m glad I did, but I walked right by the receptionist and forgot to book my next follow up appointment lol.

I was scared about getting the throat scope.  I wanted to be able to do it, but I was afraid it would get me really sick, to the point where I couldn’t get it done, but I did!  They had  a hard time getting the sedative to work on me.  They had to give me 4 doses, so I was more than aware for the lower scope.  I’ve never had a bad experience with it, but the pain I went through is unreal!  I really feel like the guy was a little off his game, bc even the G. I. that sits with the student and tells him what to do, said, “I don’t know why you’re banging off the wall so much, that’s why we use a camera.” LOL.  I never experience much pain usually if any, until they enter the smaller bowel, but this time I had horrible pain the whole way through, that I actually teared up.

So by the time we got to the throat scope and I was plenty medicated… I was nervous.  I didn’t want this guy acting like this with my throat too!  It didn’t help that the cord the camera is attached to, was way thicker than I thought lol.  The numbing spray worked fast, but you can still feel it very much so.  I kept automatically swallowing, which made me gag EVERY time lol.  I don’t know how I didn’t throw up, but I made it through!  It was bad gagging so much, but I’m more than happy with it bc I was able to get through it

We stopped off at my mom’s to get my mom’s stuff bc I had to have someone stay with me for 15 hours after.  I hung out with my sis, and ended up keeled over in my mom’s bed in even worse pain than before.  We stayed until Nick got home from school and he was rubbing my hand with his it was totally adorable   Whenever Amanda tells him my tummy is bothering me, he always leans over and kisses my stomach lol.

Amanda and I agree, that we don’t want Nick to know about my POTS.  It’s very hard to explain it to him without making the dear soul worry.  He knows about Crohn’s Disease, bc of how sick Amanda gets from it, so it’s something that is easier to have him understand.  It’s serious, but nothing to worry about.  So when my POTS affects me, we always say it’s my tummy problem like mama’s.  That way he knows not to jump on me, etc., but that he has nothing to worry about.  Hell I don’t get into it with my other nieces and nephews, and they’re all teenagers and the oldest in her 20′s.  I don’t want to unecessarily worry them when they’re so sensitive when it comes to family.

Mom and I came back here, and I got Subway, and she got Pizza Hut, and we just laid around all night and watched TV.  It was nice.  I thought it was silly to have my mom have to stay with me, but in the end I was glad she did!  She just left a couple hours ago to get ready for work.

Tonight, my sis Amanda wants to go to the movies.  Not sure what we’re seeing yet.  She wants to see the new Saw, but our certificates don’t cover 3D movies, so we might be going to see something else.

Tomorrow, I am going up to my mom’s to hand out candies, and take pictures of all of the kids on Halloween.  It will be so cute to see them all   And later this week, I head to the Gyno.  Will write more afterward.  I hope you all have a great Halloween!

Ash,

Rainy Fall

Just finishing up watching CSI and waiting for Grey’s Anatomy & Private Practice.

Today the guys from Shopper’s Home Health Care and the personal support worker intake girl came over and I got my new walker!  I have to apply online when the guy sends the quote for the grab bars, but that’s cool.  For the walker, I chose metallic blue lol  and it’s tall enough for me to possibly do dishes and cook, but still short enough that my feet or firm on the ground and the blood won’t pool down my legs like they do on the bar stool.  It’s cute.. for a walker LOL.

Afterward, Amanda picked me up to take me to get the recumbent bike, but the guy lives out of town so now he’s going to drop it off within the next couple weeks, when he can get his truck from his dad.  I can’t wait to get it!!!

So Amanda and I went to The Dollar Store, and got some Halloween decorations and picked up some stuff I needed since I wasn’t well enough to go grocery shopping.  Mom works tomorrow, so if she’s well enough, we may go after she gets off around dinner… which would be nice bc I have carrots and soup lol.

So Amanda, Nick and I hung out and I got tons of photos.  I napped for a while and was so dizzy when I got back everyone came upstairs and hung out while I laid in my mom’s bed feeling like I was going to raulph lol.  Was fun though

Then mom and I went out to the store, and came back here with subs and relaxed for a bit before she left to go to the nursing home.  My Gramps has fallen twice getting out of bed the last few days, and apparently he is going down hill fast.  My Grams was really teary about it today, I felt so bad for her.  My mom was going by to see for herself how he was doing, but he has a chest infection, so unless absolutely necessary, Amanda and I can’t go see him in case we catch it with out crap immune systems

Tomorrow, Grams is taking me to see my Cardiologist.   The only way I was able to make the whole 2 months.. which felt like years on Bisoprolol, was bc my resistance to medications set in, and it stopped working.  Woo hoo! Lol never been so happy to see it stop working.  So he’ll probably try me on a new medication, and I’m going to ask about trying Florinef.

I’m back home now and chilling with my man Zeus.  It’s been raining a lot lately which is weird for Belleville.  It never stays long, but it’s been crazy all day.  But it’s supposed to be back to sunny tomorrow!

Alright, going to head out!  Will write more after my appointment tomorrow!

Ash,

OT Assessment???

I have no idea if that’s what it’s even called… but I think that’s what I was referred to have lol.  Long before Marlene came (my PSW ie. personal support worker), they obviously came to my apartment and checked to see what I needed help with.  They even went around my apartment just to make sure it was safe for Marlene to come.  (no open wires, etc.).  But they never talked to me about aides that I could get for around the home.  My SSW (social service worker) was mad when she found out and got another referral for them to do that for me.

So the girl came this morning, and I showed her my routines and the things I had problems with, and stuff I just couldn’t do, and she is going to have me bug my dad to make a wedge for under my bed, to raise the head of it for me so I can use my bed wedge pillow for my feet or when I’m up and can lean back on my couch (blood pressure drops low when I lay flat).  As well, she is going to get me fitted for a walker next week, and get me some grab bars for the walls of the shower, for when I get in and out.  I am only going to get the suction cupped ones for now until I find a more permanent spot.  I haven’t found an apartment yet,  but I’ll be moving as soon as I do, so there’s no point in getting installation ones until I do.

I’m really excited about this, bc I’ve been needing this stuff for a while now, and nothing wrong with having some things to make pots life easier!!!  I thought it was really cool that she went online and researched pots to learn how it affects the body.  She actually has Vasovagal Syncope so she understands the whole fainting issue thankfully lol.  So if she can get an appointment, she’s going to try to have me fitted for a walker next Thursday morning around 9am before I go through my going grocery shopping fiasco. Then it’s off to get my recumbent bike and then the cardiologist on Friday!

I’ve wrecked my knee once again.  Both are hurting, but the bad one is intolerable sometimes.  I do have sports knee braces from when it got bad the last time I was really run down, but since it was before I lived here… I don’t know what I did with the damn things!  I tore my apartment apart looking for them, and think I made it worse lol.  At least I found my tensor bandage, which is better than nothing!!

Will write more next week! xo!

Ash,