Low Blood Pressure Fun

Last week I fell asleep on the couch and missed my medication.  Unfortunately it really affected my blood pressure.  The second I woke up, I had something to eat and took my Beta Blocker right away, and usually by the next day I’m back to me.  This time hasn’t been the case.

I went to my mom’s not even able enough to put my walker in the van, and went through terrible waves of nausea and weakness.

I stayed at my mom’s over night by couldn’t sleep from the symptoms until around 5am even though I went to bed at 8pm the night before.

The next day I went home and mom picked me up a new shovel.  I had to use my wheel chair all day which I absolutely hate, but I kept having mottled feet and feeling like I was going to drop.

Today I was finally able to have a shower and get some normal stuff around the home picked up.  The shower did me in big time and I won’t be able to vacuum like I wanted, but at least I’m squeaky clean!

Tomorrow I have a Social Service Worker student and the new one coming by in the morning, and then I have my family doctor appointment.  Hopefully she’ll have some answers for me.

Hope you all are well.  I’m not unhappy, just hoping to feel as good as I was again!  Watching Dexter and OMG so good

Ttyl!

Ash,

Summer Fun

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I’m so sorry it’s been SO LONG since I’ve written!  I have no excuse!  My internet was hooked up the day I moved… I’ve just been lazy lol.

Wow okay… so I moved!  My place is huge!  I have the doors and 3 porches/decks to sit out on!  The one I chose, off my kitchen, kept getting stuff stolen off it, so I now use the back deck lol.

I quit smoking!  Or had started to on Champix the medicine, that you take for a week while still smoking, as you are slowly upping the dosage for day 8, but by day 8 I could barely breathe and had to roll off my bed and crawl the washroom bc I couldn’t stand lol.  I was so out of it I just kept randomly falling asleep!  I had finally come out of my stoned stuper long enough to check the side effects, and these were all listed as adverse stop taking medication NOW lol.  I guess it just didn’t hit me enough to listen until I doubled the dose!  Either way my smoking is now a third of what it was at least and I feel at least good about that until I see my family doctor again.

I went to the GI’s about my Crohn’s this past week, and they put me back on Aziathroprine!!!  And gave me another bunch of Prenisone in case I relapse before the Aziathroprine kicks in.  I’m still on a whack load of Prednisone, but two weeks in to showing signs of relapsing.  So I hope I don’t have to go back up on it, but I probably will bc the other usually takes months to work in me.  I have a nice Prednisone belly I call Winifred and chubby little round Prednisone cheeks to match… I look pregnant.  Not impressed about that LOL.

I am still getting the Small Bowel Follow Through done in September, just to see if there is any extra hidden inflammation or a partial or full blockage anywhere.  I think it sucks, but am glad just to double check with all the pain I’ve been having.  I will see my GI’s again in 3 months.

I also mentioned to my GI’s about how my Cardiologist thinks once the inflammation is under control, that my POTS will be too, but my doctor said that unfortunately that won’t likely happen.  It’s a very common false positive with Prednisone and people while they’re on it, and that most likely I’ll be just as sick if not more so once I’m off it again.  Will have to mention that to the Cardiologist next time I see him.  I hadn’t had my hopes totally set on that getting rid of my POTS, but I of course was hoping it might help make it not quite so disabling… and now I just feel like I’m stuck again.

I’ve also been to the dentist TWICE bc my stupid fillings keep falling out.  I understand possibly that since they were close along the gum line they may not last forever, but only a few months???  Come on now… and she said it might fall out soon again!!!  If the one does that’s been causing me so many problems, I’m just going to have her pull it bc it causes me non stop nerve pain anyway.  She put in two doses of the freezing which makes me shake like crazy bc of pots, and it still hurt enough that it made me jump out of my chair!  She thinks it’s the fibromyalgia nerve spot too.  YAY! lol.

I had my Occupational Therapist come since I moved, and she got me a wheel chair to try for a week.  It’s really light weight, and only small wheels bc you move it with your feet Flintstones style bc I just want one for it say I’m at the zoo all day, or whatever where I can’t just stop and rest, so a motorized one would be no good bc I’d never be able to lift it into a vehicle and I doubt my stubborn ass would use it around home.  Zeus is getting more use out of it as his napping spot lol.

Anyway, not much else is up besides trying to get stuff for outdoors to decorate with, and slowly but surely getting art, etc. up here inside.  This weather is crazy.  I just do something as simple as make the bed and I’m sweating like a crazy person!  I know Prednisone and POTS makes that worse too, but gross!  LOL.

Ash,

 

Crohn’s Disease

I’ve had crohn’s disease 8 years now.  I went almost 5 years before my first relapse.  I swore I’d make it to 5 years before my next… didn’t happen.

I got smooshed in at my family doctors for Tuesday, so I can get a referral to my G. Intestinal specialists.  I’ve been going to them since I was diagnosed at 19… but since my last relapse 3 years ago, I haven’t been coming as often to be considered a patient still, so I have to be rereferred.  My old family doctor would easily prescribe the remission drugs I need, but since my last relapse, the G.I.’s have realized the old dosing schedule could make the patients really sick, so they do it differently now.  Same medicine, Azathioprine (sp?) a.k.a. Imuran.  So hopefully I can get in there soon bc I feel like my Crohn’s is spreading up into my stomach and or throat.  I hate the idea of getting a scope down my throat, or them wanting to do the other *shudders* which I hate doing the prep for, but so is the course with having Crohn’s Disease.  I am also showing a lot of symptoms of GERD which a lot of people with Crohn’s Disease end up getting or vice versa.  Even if I have nothing new, and am not having a relapse, I will be going back on my medicine since my body obviously can’t fight it on its own right now.  So another 3 1/2 pills more a day grrrr.

I got my appointment finally to see the Allergist.  I go in mid December, and it’s actually located on the street a couple blocks away from me.  I’m really interested to find out what they’ll find!

I’m also excited weirdly enough lol bc it’s been 4 weeks tonight actually since my sleep study, so I’ll be finding out within the next couple weeks if they found anything or not.  It’ll be really nice to get some proper sleep hopefully!

I didn’t end up with a recumbent bike.  The guy who brought it over ended up giving me a regular exercise bike!  So I was using it for the first time tonight, and it obviously became too much and started to get dizzy, so instead of quitting, I set it up against the couch and used it recumbent style lol.

Tomorrow my aunt Kelly is coming down from Toronto   I’m excited!  On Saturday, Amanda, Nick and I are going out to my dad and step mom’s place for Thanksgiving dinner with them, my brothers, and my youngest niece and oldest nephew will be stopping by too for a bit

Sunday Nick is going to his other grandparents, so I’m going over to mom’s to visit with my aunt, and then we’re having our Thanksgiving dinner there, on Monday night.  It will be fun

I’ve been sleeping a lot, or going to my mom’s to stay.  I’ve also been using my bed wedge every night, so my stomach and firey throat is calmed down a bit thankfully.  I’m actually able to eat! lol.  But I’m still taking it easy on how much.  I think not eating for 2 days in a row didn’t help how I felt, but I was too sick to cook for myself.

My Gram’s friend was going to give her a wheel chair she had for my grandpa bc he’s getting worse for falling, but apparently the nursing home won’t accept it, and they have ones there that they let the residents use, so my Grams asked, and the lady is going to give it to me!  It’s obviously not going to be perfect for a POTSy probably, but I don’t mind!  It’ll just be great to have one

Alright, gonna head out to bed.  Have a great long Thanksgiving weekend!!!

Ash,