October 30, 2012 – Niles and Zeus Finally Meet!

I was worried how Zeus would take to Niles.  I knew he wouldn’t scratch him, but instead run away and hide, which worried me.  Niles is my mom’s new dog, and totally sweet and hilarious fun, but I doubted Zeus would agree!  My mom called me this morning, and asked if I would watch him for the few hours she was gone to the doctors.  My mom will be home soon and Zeus is now out, yet still unsure of him.  A lot better than I thought though, and would be willing to watch Niles here again.

I totally botched my vegetarianism this week.  I haven’t ate meat once since I started, until I had a turkey club house sandwich this past week and it made me sicker than a dog lol.  I even had problem digesting normal food yesterday bc of it, but I’m doing a bit better today.

Susan and I finally got to Trenton too and went washer dryer hunting at Leons.  I found one that would fit perfectly in my apartment the way it is set up now, and decently priced, which I can pay monthly for 15 months without any interest.  It will be a hard row, but I can do the payments.  I just need to make sure the guy who is installing it, can instal a new plug for it for me.

I got my new list of flowers and plants I want to get next year.. not narrowed down yet.  Way too many as of yet lol.  I went out and got all the weeding done, except the small bed at the other end of the house, bc I was waiting for my med.s to be delivered and didn’t want to miss him coming to the door.

I also finally got rid of the old fridge.  The couple came yesterday and picked it up, but when they tipped it, it leaked EVERYwhere on the floor.  Yum.

I also am selling my wheel chair.  My old, original one.  Who knows if I’ll get anything much for it, but I figure it’s worth a shot instead of just giving it away yet.

Going up to do the rest of my laundry at my mom’s tonight and having dinner there.
Take Care!

Ash,

Summer Fun

Image via Wikipedia

I’m so sorry it’s been SO LONG since I’ve written!  I have no excuse!  My internet was hooked up the day I moved… I’ve just been lazy lol.

Wow okay… so I moved!  My place is huge!  I have the doors and 3 porches/decks to sit out on!  The one I chose, off my kitchen, kept getting stuff stolen off it, so I now use the back deck lol.

I quit smoking!  Or had started to on Champix the medicine, that you take for a week while still smoking, as you are slowly upping the dosage for day 8, but by day 8 I could barely breathe and had to roll off my bed and crawl the washroom bc I couldn’t stand lol.  I was so out of it I just kept randomly falling asleep!  I had finally come out of my stoned stuper long enough to check the side effects, and these were all listed as adverse stop taking medication NOW lol.  I guess it just didn’t hit me enough to listen until I doubled the dose!  Either way my smoking is now a third of what it was at least and I feel at least good about that until I see my family doctor again.

I went to the GI’s about my Crohn’s this past week, and they put me back on Aziathroprine!!!  And gave me another bunch of Prenisone in case I relapse before the Aziathroprine kicks in.  I’m still on a whack load of Prednisone, but two weeks in to showing signs of relapsing.  So I hope I don’t have to go back up on it, but I probably will bc the other usually takes months to work in me.  I have a nice Prednisone belly I call Winifred and chubby little round Prednisone cheeks to match… I look pregnant.  Not impressed about that LOL.

I am still getting the Small Bowel Follow Through done in September, just to see if there is any extra hidden inflammation or a partial or full blockage anywhere.  I think it sucks, but am glad just to double check with all the pain I’ve been having.  I will see my GI’s again in 3 months.

I also mentioned to my GI’s about how my Cardiologist thinks once the inflammation is under control, that my POTS will be too, but my doctor said that unfortunately that won’t likely happen.  It’s a very common false positive with Prednisone and people while they’re on it, and that most likely I’ll be just as sick if not more so once I’m off it again.  Will have to mention that to the Cardiologist next time I see him.  I hadn’t had my hopes totally set on that getting rid of my POTS, but I of course was hoping it might help make it not quite so disabling… and now I just feel like I’m stuck again.

I’ve also been to the dentist TWICE bc my stupid fillings keep falling out.  I understand possibly that since they were close along the gum line they may not last forever, but only a few months???  Come on now… and she said it might fall out soon again!!!  If the one does that’s been causing me so many problems, I’m just going to have her pull it bc it causes me non stop nerve pain anyway.  She put in two doses of the freezing which makes me shake like crazy bc of pots, and it still hurt enough that it made me jump out of my chair!  She thinks it’s the fibromyalgia nerve spot too.  YAY! lol.

I had my Occupational Therapist come since I moved, and she got me a wheel chair to try for a week.  It’s really light weight, and only small wheels bc you move it with your feet Flintstones style bc I just want one for it say I’m at the zoo all day, or whatever where I can’t just stop and rest, so a motorized one would be no good bc I’d never be able to lift it into a vehicle and I doubt my stubborn ass would use it around home.  Zeus is getting more use out of it as his napping spot lol.

Anyway, not much else is up besides trying to get stuff for outdoors to decorate with, and slowly but surely getting art, etc. up here inside.  This weather is crazy.  I just do something as simple as make the bed and I’m sweating like a crazy person!  I know Prednisone and POTS makes that worse too, but gross!  LOL.

Ash,

 

I Can Move! Yes!

So happy bc I am finally getting used to being on the Prednisone.  I still get bad insomnia, and bad nights of feeling terrible, but at least now, I am able to slowly take care of myself more and more!  I actually made pasta last night and then the dishes!  Wahoo! lol.

I went to the doctors, and she sent a referral to the Acess Center where nurses come into your home to help you out.  She was thinking IV help, which now that I am getting water into me more, I may not need.  Though it’s getting warmer, and maybe having that option isn’t such a bad idea with POTS since it was so bad last year.  She also signed a note for me, saying that having an air conditioner would benefit my health, so disability will pay for me to be able to buy one, and then the seasonal charge for the landlord.  That is going to be a massive help!

I’m still bruised everywhere!  My dad said it looks like I have a tattoo on my forearm from the one needle bursting a vein.  Not a sexy tattoo LOL.  So I’ve been trying despite the heat, to wear long sleeve shirts when I have to go out in public!

I’m trying to drink a coffee right now… it’s disgusting.  Not as gross as it was, but I seriously cannot believe I drink this crap lol.  Probably better to just stop now.  It’s weird, whenever I get really sick, I always throw away bad food / drink habits, like pepsi, but then I pick up another… wonder what it will be this time??? lol.

So I went with the housing co-ordinator on Thursday, to check out the apartment they are redesiging.  It used to be rented by a person in a wheel chair, so the owners are putting in all new kitchen and bathroom cabinetry, it’s repainted, new carpet is going in the living room.  There are two sinks in the bathroom.  One is for washing your hair, which would be kind of nice, and a big tub!  There is also a little room to itself that would be perfect for a computer room or spare for company.  There are 3 big decks, and two of them are my own private, and tons of windows, stained glass in some of them.  Very charming, and spacious, but still not too big for me.  I asked to have a day to think about it.  Weighing the pros and cons of living here.  This is an amazing little tiny apartment, especially for someone who is sick, but I am sick of all the stress with the land lord and always being watched by my nieghbors.  I moved out on my own ten years ago, I don’t need to be looked after.  I’m here to rest, and have my own spot to myself, and not be badgered every time I open my curtains.  So I decided in the end to take the place.  I literally walk out the door, and the bus is right there on the corner.  There’s a day care and another tennant on either side of me, so nights won’t be noisy.  The children don’t bother me at all being outside and playing.  If anything, it’s a sweet sound.  The housing company will be doing the entire move for me again (I don’t know what I’d do without these people!) and all I have to do is move from one to the other with Zeus.  I am slowly going through my crap again though getting rid of stuff I don’t need.  I should be moving around the 15th, or before if the place is ready.

Just wanted to give a big thanx to Julie, Justin and Frankie for being such great friends these past couple weeks with me being an emotional blob lol.  It helps to know I’m not alone in the fight, and that we’re all going to be kicking ass soon again!  Just takes time! *big hugs*

Alright, going to head out and attempt to clean up the mess I started in the living room.

Ash,

GP & New PSW

I finally took some photos of the apartment.  Not great ones, but they’ll have to do dammit! lol.

The weather here has been beautiful but freezing cold!  I’m always cold here!  Still better than hot weather though!

Thursday my new Personal Support Worker, Lilian came.  She is from Germany and moved to Canada years ago just for fun.  She seems like a cool person if you know her well, and has been a personal support worker for eight years….  you wouldn’t know it though lol.  I asked her to dust my living room and bedroom… she didn’t do the tv stand or the bookshelf, or the coffee table in the living room, and missed my dresser and desk… so she only did my night stand in my bedroom.  I asked her to sweep the kitchen and bathroom and bedroom area, and she only did the kitchen.  I asked to do the windows and mirrors, which she did none of.  And she left with 15 minutes still to spare.  I think I am going to go nuts by the end of this.  Why get in the job if you’re not even willing to do it properly, let alone half assed?

Yesterday, I went to my family doctor.  We always talk about books, bc I always have one to read while I’m waiting for her.  I let her play around on my Kobo to see how they work lol.  She filled out my forms for the special diet.  If you have one of the ones on the list, they’ll give you a little extra money bc special diets are usually more expensive.  There’s a lot of weird medical terms for stuff on there too that I didn’t know what they were, so I had waaay more than I realized.  I got crohn’s marked on it obviously, which was the only one I had on the original form, lactose intolerance, high blood pressure, high cholesterol and I think that may be it… can’t remember.

She also filled out a tax form that shows what problems I have, like with walking, etc. and that will help me get more money back I guess.

She also gave me a prescription for Restless Leg Syndrome.  I wasn’t going to do it originally, but now I’m getting it every night in my left leg and arm, and now quite often in my right leg.  It can make me go days without sleeping.  The medicine… can’t remember the name of course, that they put you on, is actually for Parkinson’s Disease.  So I’m hoping, that maybe it will help me with the crazy shaking I do ALL THE TIME.   I can handle my regular shaking, but hate it bc everyone I meet always thinks I’m shy and nervous from it.  But when it gets real bad, I can barely write, drink, anything!  I haven’t started it yet bc I haven’t been up near the pharmacy, but I will let yas know how it goes.

I’m now reading Jene Beker’s book, “Strutting It.”  I thought it was about her life working for Fashion Television, and her view of the fashion world, which it is to an extent, but a majority of it is for aspiring models… obviously not me LOL.  No interest in that, but still a good book so far.

Tonight my mom is coming over for dinner, and then I am hoping to get over there to her house on Sunday to do a crap load of laundry.  The laundry room here won’t be done until near the end of the summer, but I’m happy bc now I have my blue box! LOL sad I know…

Was having problems with my landlord bc she apparently said to my neighbor that there were cat litter bags or something all over the front stoop of my apartment… I’ve never left anything outside here except my welcome mat!  I was pissed bc she was annoyed I had a cat, etc.  But when I talked to housing who set the apartment up for me, and who I pay rent to, go to with questions, etc.  they said she signed off on me having a cat and that she knew I did long before I moved in.  It’s everyone else in the building who is not allowed to have cats bc they aren’t considered to be good pet owners or mentally capable of having one.  So she was obviously doing it bc she didn’t want to admit that to my neighbor but instead made me look bad.  Also there is workmen dust outside on my grass, bc you can see little pieces of rubble, that the guys who redid my bathroom obviously just through out there, so that must be all this supposed cat litter she’s seeing, since mine stays in a bag in the back closet.  Then I throw what Zeus‘ uses in a garbage bag, and take outside to the end of the driveway on garbage day. GGGRRRR women!  Grow some balls!

Alright, I’m out, will write again soon!

Ash,

All Moved Into the New Place!

I did NOT intend to be gone so long, but I’ve been having a real issue with my old phone company, and getting them to shut off my phone… it’s still hooked up too! lol.

I woke up the morning of my move… with the flu!  I’ve had the flu shot, and so had Amanda and Nick, but something they both got, and then my mom, I eventually caught too even though I was being so good about hermitting away!  I was able to do the move still and actually help a bit, but by night time I was in bed and up all night sick lol.  I didn’t sleep for the first few nights I was there bc of being sick, but it went away quickly and never got too horrible.

My fibro has been amazing… knock on wood.  Actually Zeb from The Manly Potsy’s said he heard something about rice flaring up pain… and I figured why not give it a shot?  I always eat rice, so I haven’t had it, and no major pain like I was!  So I’m considering next week trying it again and seeing if the pain comes back or not.

My POTS has been doing way better since being moved too.  Not superb, still have to use a stool to do dishes and a seat in the shower, but I was able to dust and do the windows I kid you not for the first time in almost 2 years!!  It felt great to not have to have someone else do it for me!  And the dishes I mentioned… first time in months!  Yes I have a PSW I’m not a dirty slob lol.  I’ve even been shoveling my stoop outside my apartment.  Nothing for the average person since it only takes about 10 minutes, but AMAZING for me!  I’ve had more good days in the short two weeks I’ve been here, then I had in the last 2 years at my last apartment.

It’s nice and bright and lots of natural light gets in.  So much nicer than a basement!  I loved my last apartment.  It was great.  Had tons of storage and was big!  But it was too much for me to take care of, and was becoming depressing and hard to breathe since the mold came out!  Ew!  It just feels so much healthier here!

I’m still having my rough days of my eyes randomly rolling to the back of my head… but I’m kind of used to it now LOL.  I think the worst of my symptoms is the nausea for sure and over heating!  So I am definitely talking to the Cardiologist about putting my on something so I don’t constantly feel like I’m going to yack.

Today, I had my PSW over who smoked out the entire front of the apartment cooking lol.  We had to open the windows and have fans blasting, and I even left that area bc it was choking me like crazy!  I was still coughing through my dentist appointment later that morning.  First I sat in the dentist chair into a puddle of water lol, then almost got banged by the light in the head, then my poor dentist smacked her head off it, and when she was meaning to spray water in my mouth while she was working, accidentally sprayed it at herself and we all got into a huge laughing fit and had to calm down before we could go on lol.  I had a lot of work done in and around my gums, and she whitened my teeth too so they look nice and clean!  I have to be on this prescription mouth wash that staves off infection and my mouth was crazy sore once the freezing wore off, but I’m feeling pretty good now.  Still swollen but at least I can smile with my whole mouth instead of just half rofl.

I got back and the guy was hooking up my phone, internet and cable, and the guys from the Brick showed with my new couch   I’ll post a picture later, but it’s a light stone/ beige color and really comfy   I just finished spraying the last coat of stain resistance crap on it.

My dad is coming up this weekend, and he’ll get to see the apartment   I’m really excited for him and my step mom Lois to see it.  I think he’ll like it too

Anyway, it’s late and I have a lot to do tomorrow, so I need to be up early.  Will take pictures of the apartment as I finish more rooms.  I still need to hang curtains, paintings, etc.

Ash,

PS Got approved for my moving stuff from disability!  Wahoo!

Brain Fog Crazy!

Meant to bring my camera with me today.  I got the keys for my apartment yesterday, so mom, grams, Amanda, Nick and I went up for them to see it.  Love taking before shots before anything is in it, and then after once I have it all decorated.  I think which means I don’t know for sure still, but I think I’m moving sometime this coming week.  It’s hard not knowing when exactly bc I don’t know how much I should pack of the stuff I have left out!

Mom came back this afternoon with me, and helped me pack up and garbage more stuff.  I made her take the Scooby garbage can I had so I didn’t have to deal with it lol.  Nick will love it at least :-p

My dad and step mom, Lois, came over this morning.  He brought me roses for Valentines Day like he does every year nice since I’ve NEVER had a guy buy me flowers!  Even the douche whom I spent last Valentines Day didn’t…. douche! LOL.  Since they just got back on their yearly trip to Arizona (I know, wouldn’t that be nice huh?) he always brings back something little for us, and this year I got a calendar on a bunch of cactus’ …. I actually do like them weirdly enough so it’s fitting lol.

They came down to move the mattress from my Grams old bed to my mom’s bc I’m using my futon again (yay! lol) and he kept freaking out I was pushing it too much.  I go to get them a screwdriver and he ran after me so I wouldn’t have to lol.  Not quite THAT bad thankfully!  But it’s really sweet how he doesn’t question how terribly I’m doing.  I wasn’t feeling good at all this morning, and I was crouched inside my bedroom door talking to them as they were taking the frame apart, and my eyes just rolled back and I fell on my butt lol.  Didn’t fully faint though!  I think I’ve freaked them both out about it even more though, bc then they set up my futon frame for me, and made my bed (lol too cute) and then made me stay sitting until they were out of eye shot and then I got up and started moving stuff around again lol.

Sad thing was, when he handed me the roses, I thought, “Oh that’s sweet, a moving present.”  Not even realizing until I saw my sister’s facebook status, that it was for Valentines… bc I didn’t realize it was on Monday!  I’d make a horrible wife! lol.

After I barely moved my head and pulled a muscle in my neck, I decided to take a 20kg bag of cat litter and lift it with my back instead of my crap knees… bc my knees are crap… and then I pulled a muscle in my back.  I was in a lot of pain and was happy to take med.s that happily didn’t want to work!  So every time I’d lift something I’d keel over in pain.  So after a day of not actually resting, but trying to trick myself into thinking I was, I was in bed and got restlessness in my legs so I did some weird bending thing with my leg underneath me (don’t ask this helps) and instead of getting rid of it… I pulled a muscle in my calf! lol.  I got up bc my legs were going nuts and I fell over bc of the pulled muscle and just sat there and the floor shaking my head laughing trying to get my ass up off the floor.

Alright, will write again next week.  I can’t WAIT to go to the dentist!!!  No I’m lying I’m completely freaked out and am in complete denial that this appointment is coming up… until I actually have to go!

Ash,

PS New page on fighting the flu

Busy Bee!

My lease for my apartment here is up March 1st, but I was told I can move in any time into the new one.  I said I wanted to wait until the floor in the bathroom was redone.  Would give me time to pack without actually killing myself rushing, and I wouldn’t have to worry about trying to unpack, worry about Zeus getting outside, while  work men were coming in and out of the new place.

My sis came up and helped one evening with books movies, some bedding and clothes that were hard for me to get at with pots, and Susan’s student Aarifa like I mentioned as well, came by for an hour and helped get all the dishes out of the kitchen on the highest shelves, since I’m notorious for passing out in the kitchen it seems like.  I’ve now packed everything else except the clothes, and bathroom stuff, etc. I’m still using until up until the move.

As I’ve been packing, I’ve been cleaning the walls, and shelves, etc. and getting rid of the stuff I’m not bringing with me.  The only thing I hadn’t been doing was the carpet bc yet again I broke a vacuum!  I don’t know how I do this, but I just give it to my mom and she always figures out what’s wrong to fix it.  My red one she gave me that was light weight that broke, she couldn’t figure it out though!  So I had to borrow my grandma’s vacuum until I get out to get a new one.  I was cool with that until I saw the thing!  I a HUGE one and crazy heavy!  It works great, but has taken me three days and help from my mom to be able to vacuum this apartment lol.  I am finally done until everything gets moved out, and then I’ll have to do it again.

The reason I bothered to do it at all, is I am having the rental company tomorrow come here, to do a last inspection before the move.  With Zeus’ hair, and mine now partly falling out, there  was hair everywhere!  The vacuum has one of the big ass canisters you just have to empty… I’ve emptied it twice now and it’s full again lol.  That’s how bad it’s been since Christmas!  But I was just using a carpet sweeper… that yes, I broke too lol so I don’t think it was getting everything up, just what was on the surface.

Today, I went to the dentist for a teeth cleaning, and to get some cavities filled, but they got freaked out about my mitral valve prolapse, so I have to come back for that.  Normally bc I have horrible sensitivity, they freeze my mouth for even the cleaning, but they were freaked out to do that!  So I got a basic cleaning and some whitening done in between me being ready to punch the sweet hygienist for the pain.  And now I have to call the local dental college here, about getting a treatment done with freezing, so they can get in and under the gums bc they’re so inflamed they need two appointments alone to make sure they get done properly and completely!  Ahhh   I asked them what I was doing wrong.  I use special tooth paste for my teeth, I brush daily, I floss, wtf!!!!  So bc I have all these digestive wrecking illnesses, they’re causing the acid reflux problem I mentioned… so that, my medicine that’s supposed to help that makes my mouth dryer, along with other medicine I’m on, so it’s destroying my teeth.  And because my lovely immune system is a piece of crap, the damage isn’t able to heal on its own like my dentist hoped, it’s only making matters worse, causing them to have to do even more work!!!  So I go back in a few weeks to get the cavities and breaking … yes breaking teeth fixed, and then I am going to be getting a hold of the college for 3 more appointments.  Very stressful, bc my dentist warned me that all this work is going to make my teeth in the back even more sensitive, but obviously the work needs to be done, so there’s no way to help that.  At this point, the sensitivity is the least of the problems to worry about.  So long as my teeth are healthy.

Next week, I go to my doctors appointment about my fibromyalgia and sleep clinic study and getting her to fill out some forms for disability to prove that I am sick, and that’s why I’m moving (even though in order to get disability in the first place you obviously have to prove your sick) but whatever!  Lol.

Then the week after that, I go back in to see the Cardiologist.  Obviously the Bisoprolol is STILL not doing it’s job after almost a year.  I think it’s been 9 months now.  So he better switch my beta blocker or I’m going to go absolutely bat shit crazy!… if bat shit can make you crazy! haha.

The just after my next dental appointment, I go in to see the Neurologist!  Hopefully he’ll have some ideas   I’m really hoping he’ll be willing to do some more autonomic testing on me than the cardioloy type stuff I’ve had done to get more answers about my pots.  We shall see.  I’m excited

And yes at some point in between, I’ll be moving lol.  Actually, tomorrow, the student and I are going to compare dates of when it will work.  So I am thinking if it’s good with them, moving a week tomorrow.

I’ll write more next week!

Ash,

Good But Looong Day! :)

For once Zeus let me sleep… and then I got RSL and ended up being awake untl 6:30am!!!  I got up at 9:30 bc my personal support worker was coming.  I was so tired and out of it!  I kept trying to sleep in the car, but then my legs would drive me nuts!  Nothing is happening tomorrow, so I can sleep in

Today went good!  I knew there was nothing serious with my Crohn’s Disease, or from the results from the lower and upper endoscopy bc they never called to get me in quicker.  So apparently there is a little tiny bit of inflammation in the Ilium, but nothing to be concerned about.  I think more just to make sure I eat right and take care of my Crohn’s so it doesn’t progress into anything worse.  My upper endoscopy looked great, which is awesome!  I was worried I’d have GERD or something, that would cause me to have to get more throat scopes later on LOL.   I know I said it wasn’t that bad… and it was no where near what I expected, but I still don’t want to get them either! lol.

So basically what is going on, is what happened after my last relapse.  They found nerve damage in my intestines back then (also when my POTS started to rear it’s lovely head) so they put me on Amitriptyline and it helped with the symptoms.  So this time around since I’m not on it anymore, and haven’t been for about 3 years or so, and also bc it can aggravate my Postural Orthostatic Tachycardia Syndrome, I obviously can’t go on it again.  What they’re doing is giving me a prescription to treat the stomach burn, and that will hopefully help with the pain a bit too, but since I’ve had a little bit of pain all along… we’re willing to give this a go first.  So thanx to POTS and Fibromyalgia, it has got the nerves doing their little dance again and causing me grief.  We’re hoping it will just die down on its own, since I have had a wonderful Crohn’s history as of yet.  I heal super fast!

We were gone ALL day.  It’s 8pm, and I got home around 7pm.  I’m exhausted, but happy with the results I figured it would be the nerve damage as long as the report from the scopes came back good, so I’m happy with dealing with something I’ve already had to!  I got back in 6 months.  Of course I forgot to rebook while I was there LOL.

We went to Giant Tiger in Kingston while we were there, so mom could get some of her Christmas shopping done, and then they dropped me off at home on the way.  Speaking of Kingston, TAPS was at Old Fort Henry there!  That’s awesome, bc I lived near by there.  Apparently it’s considered one of the most haunted places in Canada, which is funny bc I never knew it was even speculated to be haunted at all lol.

Yesterday, I got my mouth guard and it fits great!  Not too bad, but still weird to get used to! hehe.  I have to go back in near the end of January for my teeth cleaning *shudders* and apparently I have cavities from the last time I got my teeth cleaned, and I never knew!  Lol, so I’m getting them fixed first!  EEEEEEK!  I’ll spazz for sure, as the time gets closer lol.  And nicely enough… I have no more doctors appointments of any kind until then!  I have over a month with none!  I’m so happy to have a bit of a break lol.

Sunday is Nick’s 5th birthday, so I will be at my mom’s celebrating with them.  I’m excited to go since I couldn’t last year.  Some of us and the kids, are going to McDonald’s before then, to take them for lunch, and let them play in the big play area.  I’ll definitely have my camera for that

Hope you’re all doing well, and will write again soon! Mwah!

Ash,

Allergy Testing

*&%*&%(*&% Oh yes.. the (*^(*&^&% is starting again! lol

"I didn't do anything"

Anyone who complains about being pricked by that razor like thing during an allergy test needs to shut up lol.  It’s nothing!  Even a little wee one was getting it done next door to me and didn’t even make a peep!

So I’m happy to say I’m not too too allergic to any outdoor indoor allergens.  I was actually surprised on the inside allergens considering I’m sneezing constantly and my nose has been stuffed since I was in 5th grade!!!!!!!!!!!!!!!!!!!!!!!!!!!!!  They didn’t do a food allergy test… why?  I don’t have a clue.  I said I wanted it, bc it might explain why my Crohn’s has been being a (*^*^)&*% and it’s so common with us POTSy’s to have deadly allergies, AND it runs in my family… but nooooooo.  Apparently I’m stuffy because I have Asthma.  WTF????  And they said since my nose is always so stuffed and I have constant headaches around my sinus cavity… but have never found an over the counter medication that works… they don’t know what to do for me.  WTF????  That’s total nonsense.  I waited over 6 months to be shoved out the door with no answers, still not having a solution to why my nose has been stuffed for over 17 years?  Can you really have stuffed nose ALL THE TIME from Asthma alone?  One of you crazies must have asthma.  Hheeeeelp me!  I’m bitchy… but in a silly mood too bc of lack of sleep so it’s making quite the interesting combination!

I got a Christmas card from my uncle George and aunt Joan.  My uncle is like the biggest flatterer that ever lived when it comes to his nieces!  Every time he sees any of us.. and there are a lot of us, he always says how beautiful we are… except when he saw me when I first came home from the hospital after being diagnosed with Crohn’s Disease.  That day he just went on and one about poop LOL.  Anyway lol in the card at the top it says, “Love you beautiful!” lol.  I don’t think anyone has met my aunt Joan and uncle George and not fallen right in love with them.  They’re so adorable the way they talk to each other too.  This is the aunt I mentioned back around Canada’s Thanksgiving who has Dysautonomia too, but she has brachycardia.  Amazing people.

Tomorrow my mom is running me down to the dentist to see if the mouth guard fits this time… I hope it does, why doesn’t mouth guards like me?  It’s not like I was moving during the molding.. though I’m surprised I wasn’t!  I’m a pretty antsy person! lol.

Anyway, going to head out and terrorize my cat Zeus.  He was sleeping on my legs last night and decided to roll on his side and rolled right off me and started screeching!  Gave me and him both a nice heart stopper.  Plus he was constantly climbing on my guts.. and he’s by no means light!  And if he wasn’t doing that, he was either on the floor screaming, chasing my hands and feet under the covers, or jumping at every little sound scaring the bajeebers out of me.  So I got a whole hours sleep… now I’m keeping him awake as revenge, and maybe the little bugger will sleep tonight!

Ash,

PS anyone have a Kobo E Reader???  How the (*^(*^&*(&)(*&)(*%^#%# do you gets books from other sites other than Kobo, and get them on the &^$^%& desktop application???????????????????  It’s driving me crazy and I can’t figure it out!

Happy Unbirthday to You to You to YOU!

Marlene my Personal Support Worker came by… well I suppose yesterday now since it’s almost 5am lol.  She bought me this beautiful gray cardigan for my birthday.  It’s really comfy fabric, but has really cool stitching in the back.  It’s nice I never expected to get anything from her.  I am pretty sure she thought it was my birthday yesterday, bc she seemed all sad that I was just going to stay at home lol.

I actually ended up falling asleep after she left, and didn’t wake up until late into the night!  I woke up feeling full blown sick, but now it’s dulled back down to that cold I had with just a worse cough.  I am supposed to go to my Pauls family dinner this Saturday, and I don’t think I’ll be able to go sick bc my uncle Larry (at his and my aunt Reta’s house this year) has been on dialysis and been very ill.  I don’t want to risk making him worse!  But I’ll talk to my aunt later today, and ask her about it.

Susan, my Social Service Worker called today, and her friend found a cute small one bedroom house in the nice end of Belleville, in a house.  Apparently it’s very vacationy like and there’s a private backyard area!  She and I, are going to drive by to see the house this morning, and then next week, we are going to go see the apartment inside.  They’re willing to hold the place for February for me, which would be awesome, but I’d have to give my notice asap since I have to give this rental company notice 2 months beforehand.

Tuesday was busy but fun.  Amanda and Nick picked me up and we went to Walmart where I got coughed on by some &*%&%&*% guy that works there. lol yes, all people who cough on me are *&^*&%&*%’s .  Then we went back and dropped Amanda’s groceries off, then went to Shannonville, and the dropped mine off.  THEN, we went to the dollar store where I got a bunch of cool helpful things for around the apartment, that will be great for when my Fibromyalgia kicks in, like a jar opener, etc.

From there, we went and picked up my mom at work, and then went to Chapters, where I got my Kobo E Reader!  It comes with 100 books in it already, all classics, and then I got two free newer books.  One I actually own, but the other looks good.  The only shitty part about it, is that in order to get the two free ones, you still need to put your credit card info. in even though it won’t be charged.  Problem is, I don’t own a credit card!  GGggrrrr! lol.

Nick is too funny (he is only 4).  He was talking to my grandma who doesn’t have the best of hearing about both his and my birthdays, being this month.  He comes upstairs to where I am and asks me when my birthday is, and I told him, and he said that his birthday must be on the 3rd then since it’s after mine.  I explained his was after mine, but not until the 19th which would be two weeks and 3 days after mine.  He looks at me all disgruntled and says, “Ya, well that’s crap!!”  and stomps off to yell at my grandma for making him think it was closer lol.

Later today, for my actual birthday, since a lot of people thought it was on the first lol, I am going up to my mom’s where Nick picked out the theme for my birthday dinner… should be interesting.  My aunt Kelly got Halloween, and my sis got a princess theme lol.  But we are going to be having a boiled dinner my fav.  And instead of getting some fancy cakes that makes everyone feel like death after eating, my grams is making me her homemade chocolate Wacky Cake.  I love it!  It’s my favorite cake yum yum yum lol.  And doesn’t bother my stomach as much as store bought ones do!

Anyway, I am going to head out and take a bath, and attempt to sleep a few hours before Susan comes!  Hope you all are feeling good, and enjoying the cold weather!  I hear snow plows… lots of snow out, but not snowing I don’t think.  Hopefully it will be!  *hugs*

Ash,