Crohn’s Rearing

may182015 020Well I had my G I appointment yesterday.  Good news, is he doesn’t believe the foot pain is from my Humira!  We’ll keep an eye on it with blood work, but apparently low B12 will do the same thing, and cause really bad nerve pain, etc.  So he’s keeping an eye on that too since he hasn’t been, and where it is absorbed is where my scar tissue is, so I will double what I am taking now in vitamins and see what happens.

Bad news is… he wants to do a scope. I FREAKIN HATE SCOPES!  They never get easier, and I will have to totally abolish my diet plan bc I cannot eat half the stuff I’m supposed to, for a week or two before the scope.  I have to get it done on June 15th.  At least with him, I get put to sleep, but the prep and not eating SUCKS!  So until then, expect me to act like a big baby… just a warning lol.

may182015 017My CPAP machine isn’t working properly, so I was going to call Medigas, who I got it through about it, but decided to check the paper work they gave me, and am giving it a good thorough cleaning and changing of all of the filters, etc. and see if that works first.

I have a bunch of cleaning I want to do animal wise, but I am hoping to at least get the girl’s cages cleaned, and get Roxy’s nails trimmed.

I know I have comments, etc. to get back to on here, but I am exhaustapooted so I am going to leave it for the day if you guys don’t mind.  I just don’t have it in me.

may182015 003I did get earlier in the week, my garden beds finally weeded.  I had old plants from last year that needed to be cut back, and so much grass, etc. to rip out, but it’s been colder lately, which I love, so I will hopefully be well enough to do the transplanting of my few plants under the stairs, over to the other garden beds this weekend.  My landlord was talking of paving it over, and I do not want them wrecked with the amount of money they’re worth.  He did finally get the grass mowed today, so I’ll be a little less scared of ticks.  (they’re really bad this year)

Okay, going to head out and have a nap.  I’m sure it’s not having the CPAP machine going for a few days that’s exhausting me, but I just can’t stay awake!

Talk soon!

Ash,

Mother’s Day Weekend / Week

may12 007Mom had us up on Sunday bc she was having cold salads, etc. with Grams for Mother’s Day.  My damn gift that was supposed to be in Thursday, didn’t come in until Monday!  Mom made Grams a beautiful scrap book full of photos for her, which of course had Grams tearing up.  Meghan was down visiting too which made it even better, since we look at her as family, and we got to see her son Liam for a bit (who’s Nick’s age..9).  It was nice to see everyone :)

I had Grams and Mom over for Mother’s Day brunch on Tuesday so I could give mom her gift.  I got her a book of letter that celebrities wrote to their moms, whether still alive or passed away.  It’s called, “Letter to My Mom.”  So I wrote my own letter to mom, and put it in the inside cover.

I made this recipe I found online that had raving reviews.  Had mushroom soup, eggs, bacon, and cheese… and omg it was disgusting!  They say it was good, but it was honestly gross and such a waste of food lol.  I like cooking though, it’s fun.  Later that night I used my slow cooker for the first time… I’ve had this thing for about 4 years now lol.  Now my kitchen is overflowing with dishes!

may12 010So the woman whom Lilliane works with came for my yearly meet.  We just go over my paper work for them, and how my health is holding up.  She’s really nice, but I was having such a rough morning, that I had NOTHING done before she came, and my apartment was totally wrote off.  Didn’t help that Zeus screamed half the time she was there lol.  Thankfully Lilliane came later and helped my clean up a lot.

Next Wednesday, I go to the G I finally.  See how I am doing Crohn’s wise, and deciding whether I should get another scope, and check out the scar tissue for possible surgery.  This new diet is helping it huge though, so I doubt he will do the scope.

Trying to finally finish Gone Girl… I seriously feel like I’ve written this a few times before, but I am half way through it, so I’d like to finish it, but my God it’s just so dragging!

Will write more after my appointment.

Ash,

More of Me

may12015 006Thank God I am feeling more like myself again.  I was able to go grocery shopping and get lots of veggies, fruits, etc. and already I am starting to feel a little better.  Mentally and physically.

may12015 007A  guy I had bought a nesting doll off of a couple months ago, messaged me last night, to let me know there were two sets for sale at Value Village when he was there.  Thankfully my awesome mom, who knows my obsession with them took me over there.  I only paid $2.99 and $3.99 for them!  Cheapest ones yet hehe.  One is of a golfer, and he is missing the top part of his second piece, but that’s okay, and the other is of a bunny.  I love them :)

may12015 002I was also able to find a coffee table that I actually want now.  More for a love seat, and it’s square, but perfect for me.  Doesn’t have a shelf like I originally wanted, but was only $25 and matches the furniture I have already, so it was a great find.

may12015 003In the short amount of time before, when I was able to eat healthy, I had already lost 8lbs!  So I am excited to see my progress by the time I go back to the dietitian!  I am also interested to see how my Crohn’s is doing since it felt like the Humira wasn’t working for a while there.

may12015 004I got the girl’s cages all done, and Zeus’ litter box, as well as doing two sinks full of dishes.  If I feel well enough tomorrow, I want to test out my little rice cooker, for dinner, and get my cleaner made from my essential oils, etc.

My feet have been KILLING me.  To the point where I want to cry out of frustration, and have to put heating bags on my feet.  It’s the front half of my feet including my toes.  I just don’t get what’s causing it.  It feels like I’m walking about like Barbie lol.  I did find some insoles I might try out next month when I can afford them.  Until then… I deal!

april29 002It was two weeks ago today that I got my blood work done for Lupus, and I haven’t heard back, so I am assuming it isn’t anything that way which is kick ass!  The last thing I need is another diagnosis, and I don’t want to have to go off Humira!  It works with me so well, being able to do it at home myself.

So I need to make another family doctor appointment, to do a new diet form for Disability.  Susan, my counselor thinks I may be able to get more for groceries which would be a HUGE help!

Okay going to jet.  Watching Ghost Adventures with Zeus curled up beside me, kneading his talons into my back lol.

Take Care.

Ash,

PS  I got to play with my PSW’s little hedgehog this past week too!  I had never been around one before, but little Lu Lu was a perfect sweety and so neat!

My Head Hurts…

april25 008I am pretty sure I missed 3/4s of my morning medication and I have one Hell of a head ache for it.  I started to question as to whether I took it or not, and thought I better not just in case I had.  It’s for my depression so my emotions have been ALL OVER the map today lol.  I watched the movie Signs with Mel Gibson and I’ve seen it before, but was just in the mood to see it since it had been so long.  I damn near bawled about 50 million times watching it! LOL.

april25 017I went to the dietitian on Friday morning.  The first time I went to them years ago, I have to be honest, the lady was pretty shitty to me and not very helpful.  About 4 years ago, when I had a Crohn`s relapse and was in the hospital for almost a week, I had another one come to my home, and go through my cupboards with me.  SHE was awesome!  So I didn’t know what to expect this time around.  The woman was great!  I got lost mind you, bc I only know Kingston hospitals well.  This place is confusing as all get out!  It’s like a damn maze!  She gave me tons of options and explained well why she would cut out one thing, but then add another.  I found her very helpful with finding tips for eating for ALL of my illnesses.  She wants to see me in 6 weeks, to see how I am doing on this kind of diet.

april25 009I also went to the dentist on Thursday.  I swore I had a broken tooth or that at the very least, a filling had fallen out, but apparently not!  I got a clean bill of health teeth wise, and my hygienist did a scaling of my teeth and compared them to last year, and they have improved by 45%!!!  That makes me feel sooo good!  I do hate going there still though lol.

april25 013I have been in so much pain lately.  My right foot still looks normal, but hurts so bad and feels, when I bend my toes, like there is swelling/ inflammation.  Now my left foot is starting to hurt too.  My back is killer, my knee always is, and my wrists and fingers even hurt!  I’d blame Fibro for it, but I always know my Fibro is bad, when my elbows hurt.  Don’t ask, but that’s one of my big spots for pain, and they don’t hurt at all.  I know I am emotional from not taking my med.s properly, but this is getting so frustrating, I want to do my curl up in a ball on the carpet and cry thing I do when the pain gets so bad lol.

april25 007So my diet has been going great, except now it’s the end of the month and I have less than $2 to my name, and I have nothing but pure crap to eat in my house, and I’m even running out of that!  I hadn’t touched the Gingerale I had got for nausea, nor the bag of cookies I could have ate in a couple days.  Now I literally have a couple pieces of chicken, lettuce enough for one more meal, a box of Kraft Dinner, cookies, and a can of Scarios.  That’s it until Thursday!  I don’t even have margarine or mustard or coffee for fuck’s sake lol.  I hate being broke!  So my Crohn’s is being put through the ringer bc I can’t eat properly and it was doing so well for a while there!

april25 004It’s not even 9:30pm and I want to just get this finished, give the girls their fresh water (guinea pigs) and then go to bed.  I feel so physically and emotionally spent.

I’m in one of those, “I want my mommy with me!”  moments, but she’s too busy taking care of my sister, to be able to be here for me right now.

I was to have an appointment with the G I this Thursday about my Crohn’s, and whether I should have a scope to see the scar tissue damage, etc.  but my G I keeps changing the date!  So now I don’t know when I’ll get in to see him.  Men!  hehe.

Okay going to jet for now.  I actually have been in a lot better spirits lately, but today has just been a rough one for me all round.

Talk soon!

Ash,

PS  I woke up today feeling like someone punched me in the eye!  Seriously.. it feels like it’s bruising too! LOL.  What am I doing to myself in my sleep???

So Since Last Time…

april11 002Since last time, I called Medigas, and got set up with a CPAP machine.  I feel like I have a giant elephant nose, and I find it weird trying to cough with all the pressure that gets in you.  So last night, I just sat there with my mouth open (I know but sometimes I need amusing here lol) and it was the weirdest cccccaaaaaa noise that came out LOL.  I have noticed more energy I guess during the day, and I haven’t felt the need to nap as much.  Weirdly enough, my restless legs haven’t been as bad either.  Zeus has also decided I am not a monster, and will actually get in bed with me, but won’t go near my face yet lol.

I got a call from the sleep clinic today, and I go in Monday morning to see the doctor about my results.

april11 003Friday, I get the blood work done to find out if I have drug induced Lupus from the Humira.  Lately, it seems as though a lot of people I know with Fibro are being affected by it, so who’s to say it’s not just that?  I can’t stand the pain in my back and feet though!  Annoying!

Then later in the month, I go to the dentist for a cleaning… not looking forward to it bc I am positive my bottom, back left tooth is broke, and I hate freezing and I just don’t want the stress and anxiety I get from going there.  Just NOT in the right head space to deal with it, but I will.

april11 004I also have to go to the dietitian I think on the 27th.  I’ve been eating well since I got the pre diabetes diagnosis.  I need to go grocery shopping though, to get more veggies and meat.  It’s fine with me so far, but today I didn’t eat lunch, and by 4pm I was shaking so bad I had to have a bowl of cereal while I waited for my dinner to cook.    Any other potsy’s have this?  Know of a good recipe site for it, or a book, etc.?

I also have the GI at the end of the month.  It’ll be determined if he wants to do another scope to see if I may need surgery.  Hopefully by then, I’ll know if what the Lupus results are, bc he’d be the one to decide what to do next.

Will update when I know more!

Ash,

New and New

easter12015 015A lot has happened since I last wrote.  I apologize ahead of time if this post makes no sense because I am running on very little sleep!

easter12015 011This past weekend was Easter.  I went to dad and Lois’ for dinner Saturday.  The only people missing were Amanda and my oldest nephew Travis.  I got to spend lots of time with my great nephews, and catch up with my family.  It was fun to run around and help them get Easter eggs too.

easter12015 009Nice side note… later in the day, I found an egg the kids had missed, but I was alone, so I just threw it in my pocket to give to one of them after and totally forgot.  Getting home yesterday, I reached into my pocket to get my keys and they, my gloves and lighter, were smeared in melted chocolate lol.

easter12015 001Sunday, we had dinner at mom and Amanda’s.  It was soo good!  I got to help mom with some of the prep work for the veggies, then had a nap with Amanda in the living room lol.

Tuesday I went to my family doctors.  I do have pre diabetes and have blood work I have to get done on a regular basis for her too.  All good stuff that can be affected by my crohn’s med.s, or pots too, so it’s good to check it out often I suppose.

nicolelily 020I brought up the fact that my vision has been off, and how and where my feet have been hurting, and she’s testing me for Lupus now.  There is a 2% chance of getting it from being on Humira, my Crohn’s Disease medication that I take by pen needle every other week.  My sister sadly was part of that rare 2%.  The fact that she had gotten it, did not raise my chances of getting it, but now my doctor is worried that I am too.  Grrrr.

nicolelily 008I got a call in from the sleep clinic to come in last night.   Hence the little to no sleep.  (To see how a sleep study is done, look for the link I have on it)  I don’t tend to snore now, but I just stop breathing altogether, so I have been diagnosed with Sleep Apnea.  Sickening.  Got home this morning, and washed the gook out of my hair, and Lilliane came by early for me.

nicolelily 003I got a nice shelf, like one my mom used to have, and set up my Matryoshka dolls on it.  I also got my quit smoking aid in the mail this morning.  Starting my quit smoking week tonight!  Wish me luck!

Ash,

PS  I also had a nice visit with Nicole and Adam and Lily.  My God my little puppy is growing into such a gorgeous dog!  Love her!!!