Chopped the Hair Off Again!

Yeah I grow my hair out.. then chop it lol, but this time, I left it a

Very tired and makeupless lol

longer than normal.  Was about 3 inches below my shoulders, but it gets SO knotty like that!  Ridiculously so!  Normally I go to the hairdresser and just get her to thin it out and do layers, but last minute, chopped it shorter 🙂

Today was a long rough day for me, but still good 🙂 I went with my grams to get her tax papers from her tax guy… he lives over an hour away.  I realize now, I really can’t do a trip like that!  I was fine until about an hour from

home and I started going in and out of consciousness.  Very annoying.

We get back to my mom’s place and we leave to go to the dollar store.  And when do you NOT have fun at the dollar store? hehe, I love it!  I killed my POTS though.  A lot of standing in one spot, and slowly moving.  It killed me.  My mom got me a choc. bar and I scarfed it back for energy lol.   I got a stove spoon holder… weird I know, but I’ve always wanted one and they’re always ridiculously expensive!  I also got 2 funky fake flowers to put in my tall green vase, since it sucks to put real flowers in.  As well, a little mini tripod for my camera, to do my videos with.  Right now, I have to do them in the bathroom bc it’s the only place I can set the camera on an angle to hit me talking properly lol.

After that, they dropped me off at the hair dressers.  I had always heard my fellow lady potsies say that sitting in one spot for a long time kills them… I now know that feeling, as of twice today lol.  I love my hair though, and glad I got it done even if it took a lot more energy out of me.

So after wards I was shaking like a vibrating bed lol and went to Canadian Tire where I cannot believe I didn’t pass out!  I am sick of glass baking pans, that don’t properly clean when you wash them!  So I got a 5 piece silicone set to try.  Hopefully that’ll work out better for me, bc the less time standing at the sink the better! hehe.

Tomorrow my grams goes in for foot surgery.  I am being picked up on the way home from my mom, so I can help get her up the stairs of their apartment building.  Then Tuesday, I meet with my counselor and housing coordinator about finding me an apartment that works better with my disabilities.  So I’m not so far away from family, or a grocery store and pharmacy.  Right after they leave, my counselor’s student is coming by for a visit, and then I am going to my mom’s again to sit with my grandma while my mom checks in on my grandpa at the nursing home, to see how he’s doing, since my grams won’t be able to for a while.  He’ll be worried and want to know how she is obviously.

It’ll be a great week, but EXHAUSTING!  I also have to meet with my case worker to possibly be set up with a PSW or get items that can help me get around my apartment more easily.  Also I am waiting to hear back from the bank about my student loan payments being made for me to be able to pay them each month… exhausting just writing it lol.  Normally I could do all that and more in a day.  Sad that it’s going to wear me out so much spreading it out over a week.  I think Wed.  will be the longest day, but it’ll be alright and totally worth it 🙂  I want to press myself more.  I think it helps my depression a lot, and allows me to sleep better at night, and get up at a decent time in the morning for a change 🙂

Take care everyone!  Remember to check out the new recipe page that I’ll be adding to, and soon my mom will be creating a page for what it’s like to be a parent of TWO disabled daughters, and how she manages the stress of trying to be there for us, as well as take care of herself.  Without her I’d be lost.  She takes me to my doctors appointments.. some 2 hours away!  She takes me grocery shopping and helps me carry my groceries in bc by then I’m so exhausted I can barely function some days.  She gets my medicine from the pharmacy, or at least drives me to pick it up, she helps me clean when I’m really sick and can’t get ahead of the dishes, cat hair, and as of the other day my laundry (I was wearing miss matched socks lol)  I appreciate her help so much, and without her,  I’d surely be 100% more worse off than I am already.

Take Care Everyone!  *hugs*

Ash,

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POTS, Crohn’s Disease, Family, Videos, Flowers, & Himalayan Sea Salt *YUM*

flowers from Grams 🙂 not quite opened yet

I haven’t decided on a title yet… so I’ll figure that out later lol.

The last couple days have been good!  A hard time standing mind you, but I was in good spirits for a change 🙂 like my old self again!

Yesterday was long for me.  I  woke up after only a few hours of sleep and went with my mom to get taxes.  Before she came, I saw my counselor Susan (she’s awesome!) She mentioned a light brown and white bunny that needs a home… I probably won’t take it (I’m a HUGE animal lover, but I can actually say no to taking them in somehow lol)  I’ve always wanted a rabbit, but I think with my health the way it is.. it would be another thing I’d HAVE to do when I’m feeling so crappy.  There are many days that I’m stuck in bed all day bc of my POTS.  Nice idea though 🙂 We’ll see what happens.

Then I got to see my sister and my youngest nephew Nick.  My sis has Crohn’s Disease like me, and she’s been REALLY sick, so they spent the last few days at my mom & grandma’s, so I went over to have dinner with them 🙂  My grams also bought me flowers (the pic. that’s posted)

Today, I was going to go grocery shopping, but bc I’ve had trouble standing, I obviously held off lol.  I know a lot of people with POTS use the wheel chairs with carts that are available to use, which I think is great!  For me, though;  I cannot do it.  I’m too damn stubborn about it lol.  So I’m going to attempt it tomorrow with my mom, and look for those silicone baking pans at Can. Tire.

I heard back from the PSW to help me out around my place since I live alone.  They are going to come for a home visit soon and see what things they can get me to get around easier.  I have a bath chair, an Irish cane, and walker (which I don’t use anymore) and a bar stool I keep in the kitchen for cooking, but I’d love to see if they have any ideas I haven’t thought about.  I’d really like to get a bed wedge to try (keep calling it wench lol googled it and got porn :-s lol) I hear they are supremely uncomfortable, but if it works to help my POTS I’m all for it 😀

I also found a Health Market right near my mom’s place and got some Himalayan sea salt.  It tastes yummy!!!  I got a lot of questions on facebook about the difference between it and regular table salt.  From a video I saw, sea salt has all its natural minerals in it, which regular table salt strips out for some reason.  So I figure I’ll give it a go 😀

I spent the day at my mom’s today, and her, my grams and I went out to dinner.  I had a poutine and chicken strips.  There was SO much I took the chicken home to make wraps, salads and stir frys with.

I also did a couple YouTube videos on my channel there.  http://www.youtube.com/user/ashpauls?feature=mhw4 and I have a Crohn’s group on Yahoo Groups too if you want to check out some of the tips there, and vent, etc.  http://health.groups.yahoo.com/group/crohns_group/

I will be working more on this page to make it more informative for everyone, instead of it being JUST a blog, but I want to do a bit more research before I post anything indefinitely.

For now everyone *cheers!* and hope you’re all doing well!

Ash,

Religious People

I have nothing against people who are religious.  And I understand with some religions, you must go door to door.  I find it very annoying bc some just won’t let it go when you say you aren’t interested in what they have to say, but this morning, I get woken up sicker than a dog to a sweet lady just dropping off a flyer about Jesus’ birthday or some shit, which is cool bc I think she got the hint bc I didn’t speak just smiled, and my hands were shaking so badly when I went to take the flyer from her.

When I first moved here, there were a couple young guys, maybe my age, maybe younger.  We’d stand at the door and jokingly argue our faiths.  I don’t consider myself religious, but I do believe in God, but don’t go to church, or go by any bible.  So we’d stand their for a half hour just joking around with one another, which was cool, I let them say their piece, and I understood and respected where they were coming from.  Which in turn they respected my wishes for realizing I wasn’t going to change.

As I got sicker with POTS  I quite talking to them bc I couldn’t stand at the door without feeling like I was going to pass out lol.  This morning was one of those mornings.  My knees were rocking in every direction, and my hair looked like Meduca’s lol.  I get night sweats from my Crohn’s which makes the shakiness worse bc I’m dieing of heat when I first wake up.

Needless to say I’m crabby and just woke up & wanted to say I thought it was my mom at the door and not some peddle pushing Jesus freak, but at least she didn’t stay except long enough to say she wanted me to join them in the birthday celebration… yeah right.

Ash,

"If people were mean't to pop out of bed, we'd all sleep in toasters." - Garfield

Intro

Yawn!

Hey everyone!  Still very new to this site, so it’s going to take me a bit of time to figure out how to use everything on here.  I wanted to use this blog to talk about my illnesses without imposing on people who may not be interested in hearing about it.

I’m 27, and I live on my own with my cat Zeus.  I have Crohn’s Disease, Postural Orthorstatic Tachycardia Syndrome.. or POTS.  My crohn’s is under control for the most part, but am willing to give little bits of info.  for people who are being newly diagnosed and not sure yet how to cope.  I’ve had it eight years now, and have managed it really well.  My POTS on the other hand, has ruined my quality of life.  I’m trying to figure out a normal routine while managing my symptoms, and trying to live as normal a life as possible… but unfortunately that is very difficult.

With this blog, I plan to write up the history of my illnesses, as well as tips you can ask your doctor about trying, as well as sharing my life story dealing with these ongoing chronic diseases.  Obviously this will happen on a more constant basis as I figure out all I can do on this site.

If you have a related blog to crohn’s disease, dysautonomia or pots, please feel free to comment me, and I will add the link to this blog to get the word out.  The more people doing this, the better I say!

Take Care & Cheers For Now!

Ash,