I’m so frustrated right now. Neurologists can kiss my ass!
I waited a year and a half to get my tilt table test and be diagnosed, which was okay bc the doctors were positive I had POTS so I was kinda being medicated (only got to see them twice). Six months later, I finally see my Cardiologist for the first time since being diagnosed to find out when I asked general questions.. that he didn’t know anything about POTS at all except to try Midodrine then a Beta Blocker. That’s it. The first Cardiologist (they’re a team) put me on the Midodrine, then this guy refuses to give me anything else until I’m diagnosed even though the POTS specialist said to go ahead. But this non POTS specialist swore I didn’t have it. So after the tilt he gives me a beta blocker… metroprolol I think it was and yet again it worked for a while, then stopped working and then started making me really sick. That was last November!
So I saw him again I think it was in April when he confessed to not knowing anything else about it, and says he wants to personally refer me to this specialist, who’s actually a Neurologist, bc he wanted to be able to check in on me in 6 months time, and if he did it through the hospital it would take six months before I got an appointment with the Neurologist. Well he was wrong. With his personal referral that got sent out back in April when I saw him (I called to make sure it got done, bc they forgot to set me up with the tilt table test making me wait 8 months longer than I should have) anyway, with his referral my appointment with the Neurologist isn’t until March 1, 2011!!!!!!!!!!!
I’m feeling very angry and discouraged. There will have been only 2 medications tried in over 3 years. Am I going to have to wait a year in between every appointment with this guy??? I know realistically I am going to have a long struggle find a medication or treatment that works due to my resistance and the fact that it takes all potsies forever, but I want to be on the ball about it! I feel like I’m not even getting a chance, and it’s going to take me ten times longer.
For my potsie buds… outside of family doctors, how long do you wait for after making an appointment with them? On average. I know it takes a while, but 11 months? I dread the thoughts of being house bound pretty much for another year at least. And that’s just until I see him. Makes me feel like they don’t care about my well being.
My mom’s coming over for dinner tonight, so that will be nice to have her to talk to. Just feeling lost and forgotten about (medical field wise) Sad. Nice constant asthma attacks to boot. BOOO!