I Finally Know Yeah!

I now know for sure when I am moving! WOOHOO!  hehe.  I move this coming Friday!  I’m so excited to get into my nice, new, HEALTHY, apartment 🙂

Tomorrow is Family Day in Canada… what’s funny is very few Canadians even remember it let a lone celebrate.  Apparently it’s only a couple years old though.  Any Canadians out there celebrate this?  I don’t think we have…  This year for good old Family Day, my mom, sis, and grams are coming over and we’re moving a bunch of the boxes, and bags of bedding, clothing, etc. over to the apartment.  It will be nice to have stuff that can be put away and set up done, so I don’t have to worry about it after the move.

I made my little list of stuff to get help getting from disability.  I don’t know if it will be accepted, but I sure hope so!  I asked for a bar stool I found, with a back rest, so I can get my legs up, to use for doing dishes in the kitchen, a coat stand bc the only closet is off the bedroom, a couch I found at the Brick, and a reg. light vacuum that comes apart into a hand vacuum to use for furniture, and sucking up gross spiders… the bastards! lol, and a book shelf for in the living room.  I have a big one already, but it doesn’t hold all my stuff between my books and movies!  There’s not a LOT of storage space like I’ve been spoiled to have here, so the less I have to pack away into the one closet, the better!

The dentist went good!  The girl dentist, who normally works at their other office is sooo quicker than my normal dentist!  I really like her personality too!  She tried filling some of my cavities without freezing… and OMG lol it was painful!!!  She ended up having to freeze two for me and the rest I pushed myself through the pain.  With the epinephrine and me being in pain, it shot my adrenalin through the roof!  I felt fine, but I was mad shakey and really dizzy at first.  My mouth was swollen and pained, but nothing too bad!  I could still eat and drink fine afterward.  She agreed with me, when I go back to get the rest done (yes I still have more to go eek! lol damn heart issues) she’s definitely just going to freeze me up like crazy bc that’s better than putting me through that again.

Today I’ve been just working around the apartment packing more stuff, and now am out of boxes when I could be packing more!  I think what I’ll do, is after tomorrow bring the boxes back with me here and just repack what I have left in some of those.  It will be easier to recycle them here anyway bc we don’t have bins and stuff at the new place.

Not much else has been happening bc I’ve been in so much pain.  Ever since I was upped on the Bisoprolol, it feels like my body is trying to cave in on itself.  I think maybe it has affected my Fibromyalgia and the nerve damage in my Crohn’s bc my stomach isn’t being affected except that I’m getting horrible stomach pain like when I first got sick without all the other gross issues lol.  I call it my Freddy Kruger fingers stomach pain lol.  The crazy chest pain I was having is a lot better though.  Even when you know it’s POTS, it’s still scary to have it none the less, and it was lasting for almost 2 weeks!  Freaked me out, but now it’s just little bits of pain every once in a while not none stop 🙂

Tuesday, I go in to see the Neurologist.  I’m excited, but not wanting to be too hopeful.  I hear he usually only does studies on potsy’s at MacMaster Uni. so I don’t know if he will do much if anything for me, while I have a Cardiologist.  I’m hoping if anything, he will do more autonomic testing on me… but not too sure.  Will be interesting to see though what all he knows!

Alright, will write soon, but maybe not right away after the appointment with the move coming up.  Will see what kind of time I have in between, otherwise, will write from my new place 🙂

Later Gaters!

Ash,

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Brain Fog Crazy!

Meant to bring my camera with me today.  I got the keys for my apartment yesterday, so mom, grams, Amanda, Nick and I went up for them to see it.  Love taking before shots before anything is in it, and then after once I have it all decorated.  I think which means I don’t know for sure still, but I think I’m moving sometime this coming week.  It’s hard not knowing when exactly bc I don’t know how much I should pack of the stuff I have left out!

Mom came back this afternoon with me, and helped me pack up and garbage more stuff.  I made her take the Scooby garbage can I had so I didn’t have to deal with it lol.  Nick will love it at least :-p

My dad and step mom, Lois, came over this morning.  He brought me roses for Valentines Day like he does every year 🙂 nice since I’ve NEVER had a guy buy me flowers!  Even the douche whom I spent last Valentines Day didn’t…. douche! LOL.  Since they just got back on their yearly trip to Arizona (I know, wouldn’t that be nice huh?) he always brings back something little for us, and this year I got a calendar on a bunch of cactus’ …. I actually do like them weirdly enough so it’s fitting lol.

They came down to move the mattress from my Grams old bed to my mom’s bc I’m using my futon again (yay! lol) and he kept freaking out I was pushing it too much.  I go to get them a screwdriver and he ran after me so I wouldn’t have to lol.  Not quite THAT bad thankfully!  But it’s really sweet how he doesn’t question how terribly I’m doing.  I wasn’t feeling good at all this morning, and I was crouched inside my bedroom door talking to them as they were taking the frame apart, and my eyes just rolled back and I fell on my butt lol.  Didn’t fully faint though!  I think I’ve freaked them both out about it even more though, bc then they set up my futon frame for me, and made my bed (lol too cute) and then made me stay sitting until they were out of eye shot and then I got up and started moving stuff around again lol.

Sad thing was, when he handed me the roses, I thought, “Oh that’s sweet, a moving present.”  Not even realizing until I saw my sister’s facebook status, that it was for Valentines… bc I didn’t realize it was on Monday!  I’d make a horrible wife! lol.

After I barely moved my head and pulled a muscle in my neck, I decided to take a 20kg bag of cat litter and lift it with my back instead of my crap knees… bc my knees are crap… and then I pulled a muscle in my back.  I was in a lot of pain and was happy to take med.s that happily didn’t want to work!  So every time I’d lift something I’d keel over in pain.  So after a day of not actually resting, but trying to trick myself into thinking I was, I was in bed and got restlessness in my legs so I did some weird bending thing with my leg underneath me (don’t ask this helps) and instead of getting rid of it… I pulled a muscle in my calf! lol.  I got up bc my legs were going nuts and I fell over bc of the pulled muscle and just sat there and the floor shaking my head laughing trying to get my ass up off the floor.

Alright, will write again next week.  I can’t WAIT to go to the dentist!!!  No I’m lying I’m completely freaked out and am in complete denial that this appointment is coming up… until I actually have to go!

Ash,

PS New page on fighting the flu

Cardiologist Appointment

 

Only our 2nd big snow fall so far this year!

My Grams took me into my heart doctor today bc my mom’s boss made her come in for a meeting at work.  I prefer my mom to be there bc she comes in the room with me, so that I don’t forget all the things the doc. says.  Stupid pots brain.  I hope to god she won’t have to miss my Neurologist appointment at the end of the month.

I like my cardiologist.  The odd time, which is rare, when he doesn’t know what I’m talking about, he goes off on a big discussion about something totally off what I was asking, usually something I already know about, and I just nod and smile like woooo interesting! lol.

My heart rate flip flopped all through the appointment, and have had chest pain and fluttering ever since I got home and was able to relax.  I’m okay with the appointment, bc I’ll see him again in 6 weeks instead of 3-4 months like usual.  I’m glad to see him so soon again, bc he didn’t take me off of Bisoprolol.  He doubled the medicine again, now to 10mg, which I know for a fact wasn’t all that smart, bc potsy’s should be on the lowest dose possible of a beta blocker possible bc it can make us very sick from being on a medicine we weren’t technically designed to be on.

I asked him again to tell me what kind of pots I had.  As in Hyperadrenic, PD Pots, or the combo type.  He didn’t understand my question, and now that I’m thinking about it, obviously didn’t when I asked the first time I met him, bc both times he started explaining NCS to me.  And then said, it’s a very severe type of pots. I already know what that is lol.  It’s the reason I faint, I get it.  I am going to ask the Neurologist at the end of this month and see if he knows since he supposedly is a pots specialist.  We shall see… since this has been the question asked to everyone so far, and I find out just how much they really know, when they look at me like I’m on crack lol.

I asked him how much more salt than a normal person, should a person with pots have in a day.  He said to add a bag of personalized size chips to my daily diet.  I have high cholesterol which he doesn’t want to give me medicine for, which I still question, and he’s telling me to add chips?  I said this to my sister, and even the first thing she said was that!  So when I reminded him of it, he said eat salty soup instead lol.  But now that I’m home of course, I’m thinking I don’t need to bc my blood pressure is in the normal range, and I don’t want to risk making it high again.

He had no idea and was completely stumped on why I would pass out for 27 hours.  He made a good point in saying it wasn’t the NCS bc it gets regulated the second your flat out on your back.  He could see if I couldn’t get up for that long if I passed out every time I tried to get back up, but I didn’t.  The longest case of that he had seen was an hour and a half.  He was thinking seizer (sp?), but still isn’t thinking it’s that bc even then it wouldn’t be that long.  Yet again, might find out from the Neurologist.

Anyway, next week is free, then the next is the dentist work… eek! and then in the last week of February I meet the almighty guru … at least I’m hoping he is 😀

Alright, very tired, gonna relax with my Zeusy 🙂

Ash,