My Grams took me into my heart doctor today bc my mom’s boss made her come in for a meeting at work. I prefer my mom to be there bc she comes in the room with me, so that I don’t forget all the things the doc. says. Stupid pots brain. I hope to god she won’t have to miss my Neurologist appointment at the end of the month.
I like my cardiologist. The odd time, which is rare, when he doesn’t know what I’m talking about, he goes off on a big discussion about something totally off what I was asking, usually something I already know about, and I just nod and smile like woooo interesting! lol.
My heart rate flip flopped all through the appointment, and have had chest pain and fluttering ever since I got home and was able to relax. I’m okay with the appointment, bc I’ll see him again in 6 weeks instead of 3-4 months like usual. I’m glad to see him so soon again, bc he didn’t take me off of Bisoprolol. He doubled the medicine again, now to 10mg, which I know for a fact wasn’t all that smart, bc potsy’s should be on the lowest dose possible of a beta blocker possible bc it can make us very sick from being on a medicine we weren’t technically designed to be on.
I asked him again to tell me what kind of pots I had. As in Hyperadrenic, PD Pots, or the combo type. He didn’t understand my question, and now that I’m thinking about it, obviously didn’t when I asked the first time I met him, bc both times he started explaining NCS to me. And then said, it’s a very severe type of pots. I already know what that is lol. It’s the reason I faint, I get it. I am going to ask the Neurologist at the end of this month and see if he knows since he supposedly is a pots specialist. We shall see… since this has been the question asked to everyone so far, and I find out just how much they really know, when they look at me like I’m on crack lol.
I asked him how much more salt than a normal person, should a person with pots have in a day. He said to add a bag of personalized size chips to my daily diet. I have high cholesterol which he doesn’t want to give me medicine for, which I still question, and he’s telling me to add chips? I said this to my sister, and even the first thing she said was that! So when I reminded him of it, he said eat salty soup instead lol. But now that I’m home of course, I’m thinking I don’t need to bc my blood pressure is in the normal range, and I don’t want to risk making it high again.
He had no idea and was completely stumped on why I would pass out for 27 hours. He made a good point in saying it wasn’t the NCS bc it gets regulated the second your flat out on your back. He could see if I couldn’t get up for that long if I passed out every time I tried to get back up, but I didn’t. The longest case of that he had seen was an hour and a half. He was thinking seizer (sp?), but still isn’t thinking it’s that bc even then it wouldn’t be that long. Yet again, might find out from the Neurologist.
Anyway, next week is free, then the next is the dentist work… eek! and then in the last week of February I meet the almighty guru … at least I’m hoping he is 😀
Alright, very tired, gonna relax with my Zeusy 🙂