Have a Great Easter!

Easter eggs // Ostereier

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I haven’t written in about 2-3 weeks!  I’ve been lazy on this I know!

My new PSW is going great.  She is a huge help, and I look forward to her coming every week to help out 🙂

I’ve been having a lot of problems with my Crohn’s Disease.  I’ve been in a LOT of Freddy Kruger pain.  I’ve been sleeping yet again with what my sister calls my ass bag lol.  It’s just an oatmel bag that you heat in the microwave, but it smells like burnt oatmeal the more you use it.  Oh well, it helps me! lol.

My uncle Howard, recently had a heart attack.  Not a really bad one, but he has had a terrible heart attack in the past, and this time around it really hit me hard.   I was a bawling mess.  Really makes me question being a smoker.  I have to make an appointment with my family doctor soon, so I’m going to see what she suggests and what my options are if I do decide to quit.

The new medicine, Mirapex, is working well for my Restless Leg Syndrome, but it is still keeping my heart rate a little too high.  Which of course in turn, makes me feel like crap, but I need to be able to sleep!

This weekend is Easter, and Amanda, Nick and I, will be driving out to my dad’s and Lois’ to see my nieces and oldest nephew, and do the outside Easter Egg Hunt, so I have to remember my camera!

My aunt Kelly will be here off the train at 5pm tonight to stay until Monday at my mom’s, so I’ll be going up there off and on to see her too.  I was just there yesterday doing laundry (laundry room isn’t redone here yet) so I’ll probably wait until tomorrow to see her.

Anyway, not much else is new.  I’ve been reading all the Jane Austen novels that are on my Kobo E Reader, and now I’m reading, oh hell I forget lol.

My friend Carlie and her son Wyatte are coming over on Monday to hang out for a bit, and then at some point the week after, my roommate from college Jess, is going to come down.  She keeps moving further away!  So this will be our first girls night in about two years!

Don’t forget about the Crohn’s and Colitis BBQ at M&M’s Meat Shop locations around Canada on May 7th!!!

Hope you all have a wonderful Easter!

Ash,

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Summer is Coming NOOO!

I was just reading a bunch of posts online to do with music.  Not going to get into specifics, but OMG people are so dramatic about it!  I love music, and I couldn’t believe in a world without it, but people get some damn argumentative about it, when realistically IT’S JUST MUSIC!  Yeah it’s awesome, but we’re all different, so calm down if someone else’ opinion is different than your own!  Dumb asses…

So nothing has gone on doctor wise this week.  I still haven’t heard from the Cardiologist.  I don’t know why, but when it comes to phoning people like, doctors, bill places, basically anyone but friends and family, I’m TERRIBLE for putting it off.  I’m a huge procrastinator!

I am liking this Spring weather, bc I can open my windows more, and it’s still cold at night time… still using two comforters and a heating bag to stay warm lol.  The insulation in the bedroom stinks!  But I notice the warmer it gets, my Postural Orthostatic Tachycardia Syndrome gets worse and worse.

I was hoping these new pills I’m on would help with nausea, but so far no luck.  I usually only get it really bad around 8pm or later, but lately I’ve been getting it in the afternoon too.  It’s sickening to try to live every day life when you constantly feel like you’re going to yack.

In the last month or so I have been on most days able to make myself one day a meal, instead of going a couple days at a time without eating at all.  Whenever I am not having proper meals daily, I gain weight like crazy!  This time being so sick for so long, I gained a LOT for me.  When you’re not well to begin with, the extra weight doesn’t help.  So now that I am able to do a meal a day usually, I have been losing weight!  Slowly before I was anyway, but in this last month alone, I’ve lost 10lbs!  Feeling good about yourself and getting that extra baggage off you that you’re carrying around definitely is easier to deal with!

I just finished Dean Koontz, Your Heart Belongs to Me.  OMG!  It’s my grandma’s book, that she and my sister both read, and I just finished it and absolutely love it!!!  I think he’s a great writer to begin with, but this book is a story line unlike ANY I’ve read before.  I’d recommend it to everyone it’s great!  I’m now reading a Jane Austen book, of course the name I forget.  She was writing it when she died, so it’s not fully completed by her, but by some publishing company.

Anyway, hoping to get up to my mom’s today and visit.  Hope you all have a great weekend! *hugs*

Ash,

PS  The M & M’s Meat Shop is doing their yearly Crohn’s Disease BBQ on May 7!!!  TONS of yummy food for real cheap, and helps an amazing cause!  Last year they even had rock climbing 🙂

New Med. Causes POTS?

So this medicine I was given I decided against hearing nothing bad from my pharmacist to look it up myself.  One of it’s main symptoms, is pots!  They actually say, may cause Postural Orthostatic Tachycardia Syndrome!  It also can turn your sweat brown, red or black, and stain fabrics!!!  In extreme cases it’s caused Melanoma.  Can cause scary drops in blood pressure, make breathing worse, etc. for some of the other main symptoms … no. LOL.  I called my doctor the next morning and asked instead of being on Codopra, if she’d send me one for Mirapex which my mom is on.  It can cause the fluctuating with blood pressure and heart rate, but not badly, and only for the beginning while you get used to it.  So far, all I’ve had from it is drowsiness which could be from the weather getting warmer here which always gets my POTS going.  I did ask on a POTS forum if anyone else had taken Codopra before, and one girl who’s dad has POTS as well as Parkasins does, and he had had no problems with it, but honestly I didn’t want to take the chance after what I had read.

My Social Service Worker gave me a great tip with my Personal Support Worker.  She said to make a list, of exactly what rooms I wanted swept, exactly what furniture to dust, etc.  in case she was just forgetting what I told her, or feeling like she could get away with it.  So I did, and she did EVERYthing on the list.  All the sweeping, windows, mirrors, furniture I wanted dusted, the dishes, etc.  It was great 🙂  Such a reliever.  Now I just have to get past the weird first while where you don’t know what the hell to say to each other lol.  But I am so happy it is working out so far, bc I hate dealing with trying to boss someone around who’s not my employee or having to talk to their boss.

I am now reading, The King’s Speech.  Which is really good so far!  A big part of the book, which was written for the movie, was helped out hugely by the grandson of the Elocutionist.  I thought that was really interesting, so you feel as though you are really reading the past family life of just an ordinary man, and the King, who was in big part still only a Duke, to see him on more of a personal level, and see his weak side through the letters they sent to each other.  I really like it.   I want to watch the movie after I am done reading this.

I need to get my taxes done, bring the receipts that I was too tired out from the new med.s to do yesterday to ODSP (Ontario Disability & Support Program) from the move, go grocery shopping, hopefully see my dad on Saturday if I’m well enough for the drive, and get my Zeus some new food.  I’ve decided for now to boycott Walmart after them being such dicks to me when I went to get my chair (had to carry it all by myself, etc.) and try a new grocery store that just opened up.  The only real perk to Walmart is that I can get any light bulbs, cat litter, and little extras like that, that aren’t as easy to find at other places.  Oh well!  Better than being treated like dirt!

I am still waiting to hear back from the Cardiologist about my next appointment.  I will probably give him a shout tomorrow to see if he’s back yet, or still at conferences.

Will write more soon!

Ash,

PS These are my temp. photos of my place, just to show some of the stuff.  Once I get EVERY thing done, and who knows when the hell that will be lol, I’ll take better ones to show 🙂