I’m so sorry it’s been SO LONG since I’ve written! I have no excuse! My internet was hooked up the day I moved… I’ve just been lazy lol.
Wow okay… so I moved! My place is huge! I have the doors and 3 porches/decks to sit out on! The one I chose, off my kitchen, kept getting stuff stolen off it, so I now use the back deck lol.
I quit smoking! Or had started to on Champix the medicine, that you take for a week while still smoking, as you are slowly upping the dosage for day 8, but by day 8 I could barely breathe and had to roll off my bed and crawl the washroom bc I couldn’t stand lol. I was so out of it I just kept randomly falling asleep! I had finally come out of my stoned stuper long enough to check the side effects, and these were all listed as adverse stop taking medication NOW lol. I guess it just didn’t hit me enough to listen until I doubled the dose! Either way my smoking is now a third of what it was at least and I feel at least good about that until I see my family doctor again.
I went to the GI’s about my Crohn’s this past week, and they put me back on Aziathroprine!!! And gave me another bunch of Prenisone in case I relapse before the Aziathroprine kicks in. I’m still on a whack load of Prednisone, but two weeks in to showing signs of relapsing. So I hope I don’t have to go back up on it, but I probably will bc the other usually takes months to work in me. I have a nice Prednisone belly I call Winifred and chubby little round Prednisone cheeks to match… I look pregnant. Not impressed about that LOL.
I am still getting the Small Bowel Follow Through done in September, just to see if there is any extra hidden inflammation or a partial or full blockage anywhere. I think it sucks, but am glad just to double check with all the pain I’ve been having. I will see my GI’s again in 3 months.
I also mentioned to my GI’s about how my Cardiologist thinks once the inflammation is under control, that my POTS will be too, but my doctor said that unfortunately that won’t likely happen. It’s a very common false positive with Prednisone and people while they’re on it, and that most likely I’ll be just as sick if not more so once I’m off it again. Will have to mention that to the Cardiologist next time I see him. I hadn’t had my hopes totally set on that getting rid of my POTS, but I of course was hoping it might help make it not quite so disabling… and now I just feel like I’m stuck again.
I’ve also been to the dentist TWICE bc my stupid fillings keep falling out. I understand possibly that since they were close along the gum line they may not last forever, but only a few months??? Come on now… and she said it might fall out soon again!!! If the one does that’s been causing me so many problems, I’m just going to have her pull it bc it causes me non stop nerve pain anyway. She put in two doses of the freezing which makes me shake like crazy bc of pots, and it still hurt enough that it made me jump out of my chair! She thinks it’s the fibromyalgia nerve spot too. YAY! lol.
I had my Occupational Therapist come since I moved, and she got me a wheel chair to try for a week. It’s really light weight, and only small wheels bc you move it with your feet Flintstones style bc I just want one for it say I’m at the zoo all day, or whatever where I can’t just stop and rest, so a motorized one would be no good bc I’d never be able to lift it into a vehicle and I doubt my stubborn ass would use it around home. Zeus is getting more use out of it as his napping spot lol.
Anyway, not much else is up besides trying to get stuff for outdoors to decorate with, and slowly but surely getting art, etc. up here inside. This weather is crazy. I just do something as simple as make the bed and I’m sweating like a crazy person! I know Prednisone and POTS makes that worse too, but gross! LOL.