I can’t believe it’s been so long since I’ve written! I think it’s bc I started writing in a private journal, so I just haven’t had the need to blast anything publicly lol.
I am now as of yesterday, down to 5mg of Prednsione! I’m really happy that it’s almost done and over with! A lot of bad side effects coming off it, and of course my Postural Orthostatic Tachycardia Syndrome is getting back to its old bad state, but my body with thank me in the end for being off this crap. My Crohn’s Disease in the mean time isn’t too bad! Not great, but no where near what it was.
I had an appointment to get a Small Bowel Follow Through done, which basically is a cat scan after drinking some gross drink that makes any blockages or parasites more visible during the scan, but something was wrong with the machine and they had to send me and the other patients home until they can reschedule.
Tomorrow, I have an appointment with my Cardiologist. Who knows what will happen there. Probably nothing knowing him lol. The problem with him, is that bc he’s a heart doctor, he doesn’t seem to want to do anything but deal with the heart rate and blood pressure issues. Now that they’re still too high, but at least within normal range, he thinks he’s done his job… but I still feel terrible, and am still too reliant on other people. I want to feel better, not just be better by his standards. He really believes that once the heart is under control, all the other symptoms will just go away… but they haven’t.
Next month will be crazy with appointments. I see my GI bout the small bowel follow through I was supposed to have and a check up, then I go to the dentist, the eye doctor, and my family doctor…
I love my new apartment, and want to post pictures, but am having problems with the batteries in my camera. I plan on posting some as soon as I can!
Hope you’re all doing well!