I’m a Humira Baby!

So I finally got a call back from my G I and I got in to see him Monday with my Peer Support Worker, Holly. I explained everything I had been feeling, and he agreed I didn’t need to go back on Prednisone especially with how it effected me, and that I didn’t need a scope so soon after the last one. He sent the referral for me to get a call from a Humira rep. to see if I am applicable to get funding for it. I also went Tuesday to get blood work for him to check my inflammation levels.

I am going for Humira over Remicade. Remicade you have to go to a hospital and stay for a few hours getting it intravenously, but with Humira it is given in a shot in the stomach or thigh every other week from home. I will have a nurse the first couple of times, but I am going to attempt to learn to just give it to myself. Saves family from having to take me to more appointments.

I finally heard from the allergist as well. I go in, in the beginning of May. I also see my family doctor about my allergies, nausea, etc. at the end of March. That same week I will have to go back to the G I for a check up, and to the dentist to get a cleaning. Will be an exhausting week!

Other than that, I want to get my seeds started for mini tomatoes and my green and red peppers. I am also working on a huge rug hooking project, and want to get back to knitting. I won’t be going too overkill on the projects though since I haven’t been feeling well. Especially with gardening.

My computer is getting wrecked. I don’t know what is wrong with it, but I can’t even get Google Chrome to open half the time, and when I do, I can’t get it to play any videos or anything. So if I drop off you’ll understand why.

Take Care!

Ash,

Where Did My GI Doc Go?

midfeb 015I had called my GI since I last wrote bc I felt like my Crohn’s was back in havoc mode. ¬†I left a message, and he had his secretary call me and tell me to go back on Prednisone ūüė¶ ¬†I called back and asked if he was planning on getting the application out for me to go on Remicade, and she called back saying that the plan had changed, and he wasn’t going to. ¬†So why put me on Prednisone? ¬†If he thinks I’m relapsing… then apply for the medicine… if he doesn’t, and he thinks it’s just IBS then why put me on a steroid then renders my heart medicine useless making me sicker than a dog?

midfeb 018I was so mad and confused about what his new plan was, that my counsellor said, give him a call, and ask for an appointment again, even a cancellation, or a quick 3 minute phone conversation. ¬†I’ve called twice now in the last week and no one has returned my calls. ¬†Very disappointing.

midfeb 017I decided not to take the Prednisone. ¬†Last time I became allergic to my guinea pigs! ¬†Unless I’m too sick and have no choice… basically at hospital sick point, or in the case of applying for Remicade then yes, of course I would.. and I did, but this doesn’t make sense, and since he won’t even explain why, I won’t take it. ¬†I’d rather get sicker than take that crap for no reason.

midfeb 004So yes, I’ve been sick. ¬†I sleep as much as possible, have to force myself to eat anything bc I have no want for food what so ever. ¬†And I feel like I’m fighting this battle alone. ¬†I still have to do daily things like look after my pets, ¬†cook, clean, go grocery shopping, shower, etc. and it’s catching up to me big time, while other things get shoved aside. ¬†I’m just trying to make it day by day.

Oh… and my vacuum isn’t working properly… my curse… I swear.

Ash,

Feb. 2014

jan14 008This past week has been crazy. ¬†I’m exhausted! ¬†Amanda finally got moved on Thursday. ¬†I was feeling so horrible, but I went up and helped even though she didn’t expect me to. ¬†I did waaay too much and ended up in sooo much pain. ¬†Getting groceries yesterday was truly interesting when I felt so tight and achy in my muscles!

jan14 040Monday, Susan my SSW took me to see my G. I. doctor. ¬†The blood work shows my inflammation is back up. ¬†He said not to take the Metamucil since it isn’t working anyway, and gave me this prescription powder stuff instead. ¬†He wants to see if he can get the IBS calmed down, to see how bad I am crohn’s wise… symptom wise.

jan14 021The powder stuff is gross lol. ¬†I can’t hide it, and it gave me horrible Gallbladder attacks so I am not taking it. ¬†To be honest with you, I don’t know how long I could have stood it anyway. ¬†It’s just bad. ¬†Once I realized it was probably what was causing my Gallbladder attacks, I went without it, and haven’t had one. ¬†That alone makes it too much for me to take. ¬† Hence why I was feeling so awful at Amanda and Carries.

jan14 022So yesterday like I mentioned, my peer support worker took me grocery shopping, and I dropped off my medicine card.  Then I went out with mom and Carrie to do running around.

jan14 033It’s like $30 to get a months worth of Reactine! ¬†It’s insane! ¬†So expensive, but I need to have it! ¬†Too bad stuff like that and my vitamins couldn’t be covered. ¬†I did a redo on my budget again and it is doable, but just barely. ¬†I don’t know how I’m ever going to get to save money, but is definitely worth it if it means me being able to keep my pets.

jan14 003I got dropped off at the pet store while mom and Carrie did some more shopping. ¬†I got all the filter pads I needed for the two aquariums, guinea pig food and bedding, etc. ¬†I get a discount on most of the stuff and they’re always having sales, but my God it still adds up! ¬†My pets, even my fish eat better than me lol.

jan14 025Got home late last night and got to work on cleaning the 20 gal. ¬†I got this water conditioner that you are supposed to be able to add fish with right away. ¬†I’m sure you can bc my fish have been fine, but then I started getting this cottony substance in the tank. ¬†Not on the fish, but since my filter was good and clean and I kept the tank itself clean regularly, I knew it had to be bc the tank wasn’t fully cycled, so I did an over haul on the tank last night two weeks earlier than I normally do, and am doing the daily water treatments longer this time.

jan14 010Today, I had to haul my butt around even to get a drink. ¬†My body is pooped! ¬†I made myself clean the 35 gal. which wasn’t easy to do since I was so exhausted, but the fact that it had been a month since a good scrub got me to finally do it. ¬†Then I had issues with the damn filter not wanting to work, which happens every time I scrub it all out. ¬†Found out that was the damn spinner being clogged or something. ¬†At least now I know what it is so it will be easy to work next time… better be!

jan14 034I also got a couple mystery snails. ¬†One for each tank, and some small dwarf frogs that will help with the clean up in the tank of extra food! ¬†I also got three scissor tailed tetras and three more dwarf gouramis. ¬†I can’t remember the type right now bc my brain is fried, but they’re cute and colourful and that’s that lol.

Tomorrow is laundry day at mom’s, and I need to get some cat litter since the grocery store and the pet store by us didn’t have any non clumping litter.

I’m back to catching up on Lost and working on my bigger rug hooking project. ¬†Will take pictures as I go, but this one will take a long time! ¬†Finally finished the butterfly.

Will write more soon!

Ash,