Some Good News!

sellssept 001I have been ranting a LOT on here lately, and I apologize, but I am going through a sick of being sick stage here.

The Neurologist went WAY better than I was hoping!  He still believes that my POTS is in remission, and I don’t have as much blood pooling into my legs as I usually do!  He does believe I have Chronic Fatigue Syndrome, and it’s my adrenalin levels being so high, that make me not sleep as much as other people with it do.  I personally feel that anyone with a chronic illness has Chronic Fatigue usually.  You’re sick… your body needs to rest and heal.

necklaces 001I also found out… and I am going to type this wrong… what kind of POTS I have.  I’d asked Cardiologists in the past, and they always looked at me like they had no idea what I was talking about, so I never bothered to ask the Neurologist.  He came out with it talking to his interns.  I have Hyperadrenic POTS.  Which explains the crazy high adrenalin levels all the time.

sellssept 005He does believe something else is going on.  Maybe with a vitamin deficiency or maybe hormones, etc.  so he got me to go for a whack load of blood work, which I did on Monday, so now I just have to wait and see if anything shows in the tests.

sellssept 011Last Friday I went to the G I with my grandma.  Good news there too!  When I was going through a relapse, my inflammation levels in my blood work were an 11, now they are down to a 2!  Wahoo!  I am still showing a lot of relapse signs, even though I don’t feel like I am getting worst.  He showed us a picture of the human anatomy, and where my Crohn’s is located.  Just above the large intestine, at the beginning of the smaller.  That is where Sodium is absorbed.  If I have a lot of scar tissue from being sick, then my body will not absorb the Sodium my body needs.  (Wondering if this may be part of my POTS problems since I am always so damn dehydrated no matter what I drink)  So if you don’t absorb this, and sodium enters the larger bowel, it will just flush it right out of you…. hence the Crohn’s relapse like symptoms.  So I may have to go in for another scope (NOT good news lol) just to see what kind of damage has been done since this last relapse.  Still only have to take Humira once every other week though, so yay!

Even with all this amazingly good news, I have been feeling rougher than usual lately weirdly enough.  I’ve been shaking so badly, like I used to when my POTS was at its worst.  I find it hard to sit up, let alone get anything done around here.  The place is a mess!  I am hoping to go grocery shopping tomorrow with Holly in the morning!  Maybe get some good fruits and veggies to load myself back up 🙂

Talk soon!

Ash,

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Another

sepppp 027I caught another  cold… really?  REALLY???  Thankfully it’s no where near as bad as last time, but OMG.  Seriously???  I think I should be okay Thursday to take my Humira though which is my main concern.

I used to work at an animal clinic.  We had the vet’s dogs, and the cats that lived at the clinic.  They became like my secondary pets bc I took care of them when I was working and grew to have a bond with them.  Since then, all of them have passed away except Yowie my gorgeous sassy girl who has diabetes.  She has lasted long than the healthier ones did!  Sadly I heard Joey, my old boss’ dog was put down due to cancer. momandgrams 028 He could be a huge pain in my ass depending on how many times he needed to go out in a shift due to being given too many Timbits the day before (lol)  and was totally spoiled rotten and knew it, but that dog had my heart.  He made me laugh, and listened when he was told something.  Very smart.  Of course by now when he was put down, he was an old dog, but it’s still sad to think of him passing.  He was a good, sweet soul.  Time goes by too quickly…

momandgrams 002This Friday I go to see my Neuro.  I am going of course, but I don’t want to.  I go to him for my POTS.  He is an amazing doctor and I highly recommend him, and also is great to talk to you and explain things you may not understand.  He just makes you feel comfortable.  I only see him once a year, for a quick, how I am doing (never anything better) and I get a, it takes time to slowly build back up, and to keep doing what I’m doing. srgff 001Then we’re done.  I have felt a big difference from before I was on a beta blocker, and now after, but only to a degree.  Yes I don’t feel like my heart is beating out of my chest, nor do I pass out like I did, but I still can barely stand still in any spot for very long.  I do the slightest thing and I am out of breath.  I try to slowly push myself to do more, and I feel the whole… one step forward, two steps back feeling.  It’s exhausting trying to do barely anything… yet it seems, any specialists I’ve met to help with my POTS, assumes once the heart rate is regulated you are fine, which is NOT the case.  POTS is an Autonomic Nervous System problem, not a heart problem!  That’s my rant.

Getting loving looks from my Zeus, so I must go and snuggle.  I also need to do the Beta tank and the girls big cage today and wash my hair if I can.

Talk soon!

Ash,

YAY Rain!

augsblog 017Ever see that show about dating on Slice… it basically (at least the episode I saw) had two men and showed them dating women off the net.  The first guy is your typical good looking guy (not my type but I see where others would find him hot) and a nerdy guy with a son.  The first guy “tests” his dates by saying really weird, creepy things to see how they react.  He is sooo full of himself, that he said he thinks there is something wrong with the girl if she isn’t attracted to him!  Seriously????  He reminded me of Christian Bale as that psycho!  I wouldn’t want to be left alone in a room with that guy!

aug14 006Since I took my Humira during my cold, and just took my next shot this past Thursday, I am having Gallbladder attacks again!  Not as horrible as it has been in the past, but my God what the (*^*^^*???  My GI was hoping that as long as my Crohn’s was settled, that my attacks would as well, so now that I am getting medicine I get them again?  My counselor did make a good point though, about why he may not want me to get the surgery unless absolutely necessary… My immune system is crap, and that would make me a big risk for infection, and hospital infections after the surgery.  I never even thought of that!

Yesterday broke records humidity wise and was supposed to be the hottest day so far of the year.  It was thunder and lightning for quite a while before the wind picked up and it finally rained, but didn’t seem to be really anything like it was supposed to.  At least it’s cooled down now.

Nicole and Adam are coming over in a bit.  Can’t wait to see them!

Talk soon!

Ash,

PS  Sad to hear about Joan Rivers 😦  I know she was 81 (but to me that isn’t old) and she was doing so well and so spry!  Definitely a shock!